Debra Quinn’s father, sister, aunt, grandmother and great aunt all passed away from ALS, and in 2009, she was diagnosed with ALS herself. This hereditary form of the disease is called familial ALS (fALS). After the loss of her younger sister in 2007, Debra decided that she could no longer stay silent.Today, she is “the… Continue reading I Will Not Be Quiet: An Interview with ALS Advocate Debra Quinn
Category: ALS
Photo of the Week: Wheels in Motion
A number of our ALS and PLS members use wheelchairs, but that doesn’t keep them from participating in awareness walks sponsored by PatientsLikeMeInMotion. Please meet Power Mom, a grandmother of six who led a team at the Walk to Defeat ALS in Long Island, New York. Congrats to Power Mom and all of our sponsored teams… Continue reading Photo of the Week: Wheels in Motion
PatientsLikeMeOnCall: Living with Type 1 Diabetes
Welcome to the third installment of our new weekly podcast series called “It’s Friday – Let’s Journal Club.” This week’s guest interview is with Sarah Taylor, a type 1 diabetes patient, registered nurse (RN) and friend of the company. Sarah stopped by PatientsLikeMe headquarters last Friday to talk about being diagnosed with type 1 diabetes… Continue reading PatientsLikeMeOnCall: Living with Type 1 Diabetes
A Little More About Us: A Look Back at the Founding of PatientsLikeMe
“I got this call from my brother Stephen, and he said the news doesn’t look good. At that point, he’d been through enough processes to know what that meant – he had ALS. So I began this journey with my brother and my family…. We were thinking there had to be a way to make… Continue reading A Little More About Us: A Look Back at the Founding of PatientsLikeMe
We’re a 2011 Dosie Award Winner!
Sponsored by the health blog Dose of Digital, the Dosie Awards were created to recognize the best examples of social media in the healthcare industry. Now in its second year, this award program was expanded in 2011 to include both Judges’ Choice and People’s Choice Awards. Within each category, a Gold, Silver and Bronze medal… Continue reading We’re a 2011 Dosie Award Winner!
Let Patients Help: The Undying Mission of E-Patient Dave
“Patients know what patients want to know.” – Dave deBronkart Blogger, author and international keynote speaker Dave deBronkart is a familiar name at PatientsLikeMe, as his writings and health talks tend to strike a chord with us. You see, “E-Patient Dave,” as he calls himself, has a story that underscores exactly why we founded PatientsLikeMe. After… Continue reading Let Patients Help: The Undying Mission of E-Patient Dave
Photo of the Day: A Glimpse of PatientsLikeMeInMotion
As we mentioned in our blog post last week, our PatientsLikeMeInMotion program is off to a running start this year with more than 30 sponsored teams thus far. What does one of these run/walk/bike teams look like? Below is Team Sylvan, a 40-person team led by ALS patient Panda155. Decked out in bright blue PatientsLikeMe… Continue reading Photo of the Day: A Glimpse of PatientsLikeMeInMotion
Daring and Dreaming
When you’re diagnosed with an illness, there are many unknowns ahead. For example, what’s the best future possible for you? At PatientsLikeMe, we believe that no one should have to face these questions alone. Like today’s patients, today’s youth are also facing uncertainties. With the world economy remaining in a precarious state, it can be… Continue reading Daring and Dreaming
Taking It to the Streets: The Spring PatientsLikeMeInMotion Report
Every year, PatientsLikeMe sponsors run/walk/bike teams around the country through PatientsLikeMeInMotion. Led by a three-star member – someone with a complete health profile at PatientsLikeMe – each team receives bright blue PatientsLikeMe t-shirts, business cards and a donation towards their fundraising goal. Some of the events our members participate in include the Parkinson’s Unity Walk,… Continue reading Taking It to the Streets: The Spring PatientsLikeMeInMotion Report
A Peek at Our June Newsletter for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our June edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up… Continue reading A Peek at Our June Newsletter for Members