Today’s guest post is written by PatientsLikeMe member Jeri Burtchell (TickledPink), who has been living with multiple sclerosis (MS) for 13 years. A tie dye apparel store owner and mother of two, she writes a blog entitled “Gilenya and Me: My Story of Being an MS Patient, a Hypochondriac and a Guinea Pig.” Her patient… Continue reading How Social Media Is Changing Research (Part II): A Guest Post by MS Clinical Trial Participant and Blogger Jeri Burtchell
Tag: clinical trial search feature
A Peek at Our July Newsletter for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our July edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to recently,… Continue reading A Peek at Our July Newsletter for Members
Data Mashups, “Wow Week” and the Fruits of Experimentation
Recently, I had the pleasure of helping to represent PatientsLikeMe at the 2nd Annual Health Data Initiative Forum, which is known as “Health Data-Palooza” to its friends. (See our first blog post about this event here.) The forum was conceived as a way to showcase the wonderful things that people are achieving with open government… Continue reading Data Mashups, “Wow Week” and the Fruits of Experimentation