Many of you have already met Letitia. She’s part of the PatientsLikeMe epilepsy community, and from her Patient Voice video to Twitter (@Pulchritude81), she continues to be a rockstar when it comes to sharing her experiences and advocating for patient centered research. Her latest efforts focused on patient empowerment where she headlined a webinar with our friends at… Continue reading Taking control: from PatientsLikeMe member Letitia and our friends at the Partnership to Improve Patient Care
Tag: seizure
The Patient Voice- MS member Jackie shares her story
When Jackie was diagnosed with multiple sclerosis after a long, exhausting process, she struggled with a fear of the unknown and had no idea what she would be facing. But then she connected with the thousands of MS members on PatientsLikeMe. Jackie shared with the community about how she felt her current medication was… Continue reading The Patient Voice- MS member Jackie shares her story
What’s your epilepsy story?
That’s what everyone’s asking this November during National Epilepsy Awareness Month. If you’ve been diagnosed, or know someone living with epilepsy, put on your brightest purple clothes and start raising awareness for this neurological condition. What are three things you need to know about epilepsy? 1 It’s a condition that affects the nervous system and causes… Continue reading What’s your epilepsy story?
The Patient Voice- Epilepsy member Letitia shares her story
What would you do if you were living with seizures from epilepsy since you were ten years old? And you weren’t even able to drive a car? Letitia turned others living with epilepsy on PatientsLikeMe and shared about her journey in a recent video. Watch above to see her inspiring story, and how… Continue reading The Patient Voice- Epilepsy member Letitia shares her story