Last week, in Part I of this interview, PatientsLikeMe member and blogger Michael Burke shared his sister Linda’s struggle with type 1 diabetes. Today, we learn about his own type 1 diabetes journey, including his June 2011 kidney transplant as a result of diabetes-induced kidney failure. 1. What diabetes complications have you faced? Diabetes is… Continue reading Battling the Complications: An Interview with Diabetes Patient Michael Burke (Part II)
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PATIENTSLIKEME AND R.A.R.E PROJECT UNITE TO FIND AND CONNECT ONE MILLION RARE DISEASE PATIENTS
FOR IMMEDIATE RELEASE Nonprofit and “Not Just for Profit” Announce Collaboration at PartneringForCures Event NEW YORK, NY – November 7, 2011 – Today, PatientsLikeMe and R.A.R.E Project, a nonprofit advocacy and support group for patients with all rare diseases, announce a new partnership to find and connect 1 million rare disease patients to share and… Continue reading PATIENTSLIKEME AND R.A.R.E PROJECT UNITE TO FIND AND CONNECT ONE MILLION RARE DISEASE PATIENTS
Medication Non-Adherence: The Costs and Complexities
On October 24-25th, PatientsLikeMe attended the 8th Annual Patient Adherence, Communication and Engagement (PACE) Conference in Philadelphia. The event focused on how the healthcare industry can deliver measurable improvements in patient adherence (i.e., taking medications as prescribed by your doctor). Put simply, how can we help patients like you take the correct dosages at the correct… Continue reading Medication Non-Adherence: The Costs and Complexities
“A White Coat Affair”: A Wonderful Evening Celebrating ALS TDI
Last night, the PatientsLikeMe team came together for a great cause: the “White Coat Affair” gala benefit in support of the ALS Therapy Development Institute (ALS TDI). Founded by PatientsLikeMe Co-Founder and Chairman Jamie Heywood in 1999, ALS TDI is the world’s most advanced research laboratory dedicated to ALS. Held the night before the institute’s… Continue reading “A White Coat Affair”: A Wonderful Evening Celebrating ALS TDI
MS PATIENTS PERCEIVE COPAXONE EFFICACY AND TOLERABILITY AS COMPARABLE TO REBIF AND AVONEX
FOR IMMEDIATE RELEASE PatientsLikeMe Continues Report Series on Real-World Patient Experiences with Multiple Sclerosis Medications CAMBRIDGE, MA – November 3, 2011 – In the second report of a series on Multiple Sclerosis (MS) disease modifying therapies (DMTs), PatientsLikeMe reveals that MS patients perceive Copaxone as having comparable efficacy and tolerability profiles to the interferon therapies… Continue reading MS PATIENTS PERCEIVE COPAXONE EFFICACY AND TOLERABILITY AS COMPARABLE TO REBIF AND AVONEX
Remembering My Sister Linda: An Interview with Diabetes Patient Michael Burke (Part I)
As we’ve discussed in recent blog posts, November is American Diabetes Month. To help you learn about diabetes from a patient’s point of view, we interviewed Michael Burke, a PatientsLikeMe member who writes “Life on the T List”, a blog about his life as a diabetic before and after a kidney transplant. But as you’ll soon… Continue reading Remembering My Sister Linda: An Interview with Diabetes Patient Michael Burke (Part I)
American Diabetes Month Kicks Off with “T1 Day”
As we mentioned in our blog about the “Calling All Types” campaign last week, November is American Diabetes Month. Today, November 1st, is also “T1 Day,” a new event sponsored by the Juvenile Diabetes Research Foundation (JDRF) to raise awareness about type 1 diabetes (previously known as juvenile diabetes), which is often diagnosed in children,… Continue reading American Diabetes Month Kicks Off with “T1 Day”
A Peek at the October Newsletter for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our October edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to recently, and… Continue reading A Peek at the October Newsletter for Members
Competing Against MS: An Interview with MLR
PatientsLikeMe member MLR was an avid BMX (Bicycle Motocross), MTB (Mountain Bike Racing) and Motocross athlete his entire life – until he was diagnosed with multiple sclerosis (MS) last year. After having to give up the sport he loved, MLR began to suffer from depression. Today, however, he’s happy to report that he’s racing again… Continue reading Competing Against MS: An Interview with MLR
Announcing the “Calling All Types” Campaign for Diabetes Awareness
In June, we told you about our new partnership with BBK Worldwide, a pioneer in healthcare communications. Now, we’re excited to report that our first outreach project together is kicking off. In preparation for American Diabetes Month in November, PatientsLikeMe and BBK Worldwide announced today the launch of a new online diabetes health movement entitled… Continue reading Announcing the “Calling All Types” Campaign for Diabetes Awareness