In this blog, Libby Frandsen shares how her life has changed for the better since being diagnosed with Friedreich’s Ataxia (FA)! If you are interested in anything else Libby has shared about her life, be sure to check out these resources: Experiences I’ve Had Thanks to FA When I was first diagnosed with Friedreich Ataxia… Continue reading Cool Things FA Has Allowed Me To Do
Category: Patient Experiences
Reflecting On My College Journey with Friedreich’s Ataxia
Note: This is a repost from Noah’s Blog. Please visit his fantastic site to read more about his journey! College is hard for me to look back on. I love it; I hate it; I miss it, but I couldn’t do it again. It holds some of the most precious memories of my life. The… Continue reading Reflecting On My College Journey with Friedreich’s Ataxia
When Your Partner Becomes Your Helper: Navigating Love and Caregiving With FA
What changes when you or your loved one starts to rely on you more for help around the house? What happens in a relationship when the dynamic now has to accommodate being a caregiver? This is a hard change for anyone to go through, and for people with Friedreich’s Ataxia (FA) it is inevitable that… Continue reading When Your Partner Becomes Your Helper: Navigating Love and Caregiving With FA
‘No Manual For That’: Mental Health & FA
Note: This is a repost from Noah’s Blog. Please visit his fantastic site to read more about his journey! Throwback to a September night in Alabama. It’s hot and the stars are sparkling, but I wouldn’t have known. The roof had been the peak of my view all day. After hours of scrolling on my… Continue reading ‘No Manual For That’: Mental Health & FA
Traveling Overseas For the First Time Since Being Disabled
In this blog, Libby Frandsen shares her experience going overseas for the first time since become a wheelchair user! As someone with Friedreich’s Ataxia, there is a great deal of planning and many extra steps that go into travel. If you are interested in anything else Libby has shared about her life, be sure to… Continue reading Traveling Overseas For the First Time Since Being Disabled
How I Learned to Do Things Differently With FA
In this Q&A with PLM member and FA Ambassador Kelly Gregory, she shares how she has adapted to living with Friedreich’s Ataxia. As someone who heavily prioritizes movement and exercise in her life, FA has presented Kelly with a number of challenges. But she is no stranger to obstacles! If you are interested in any… Continue reading How I Learned to Do Things Differently With FA
Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Libby Frandsen
We have been fortunate enough to speak with a number of our members about their career journeys! It is a very tricky part of life to navigate, and in this piece Libby Frandsen speaks about her career evolution as she adapted to FA. Libby has worked with us on a number of articles and videos,… Continue reading Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Libby Frandsen
When You’re Running on Empty But Still Have to Be A Caregiver
Stop me if you have heard this before: caregiver fatigue (or burnout) is one of the most common things anyone in a position where they have to manage a loved one’s health will experience. Over 60% of people who are caregivers feel it. For some, this fatigue can be mild. Maybe you feel slightly more… Continue reading When You’re Running on Empty But Still Have to Be A Caregiver
Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Hayden Howard
We are very excited to bring another featured interview of one of our members! Hayden Howard has helped us plan and build the FA community on PLM, and was directly responsible for contributing some content to the site: Hayden is also both a FARA Ambassador and has presented at NAF events! She is an incredibly… Continue reading Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Hayden Howard
Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Kathleen Moore
We have been extraordinarily fortunate in finding people to join the PatientsLikeMe FA community who are willing to talk about some of the challenges they have faced. Chief among those – Kathleen! She has contributed a number of pieces already: And that’s just a few of them! Here, we wanted to cover a topic that… Continue reading Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Kathleen Moore