We have been fortunate enough to speak with a number of our members about their career journeys! It is a very tricky part of life to navigate, and in this piece Libby Frandsen speaks about her career evolution as she adapted to FA. Libby has worked with us on a number of articles and videos,… Continue reading Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Libby Frandsen
Category: Patient Experiences
When You’re Running on Empty But Still Have to Be A Caregiver
Stop me if you have heard this before: caregiver fatigue (or burnout) is one of the most common things anyone in a position where they have to manage a loved one’s health will experience. Over 60% of people who are caregivers feel it. For some, this fatigue can be mild. Maybe you feel slightly more… Continue reading When You’re Running on Empty But Still Have to Be A Caregiver
Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Hayden Howard
We are very excited to bring another featured interview of one of our members! Hayden Howard has helped us plan and build the FA community on PLM, and was directly responsible for contributing some content to the site: Hayden is also both a FARA Ambassador and has presented at NAF events! She is an incredibly… Continue reading Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Hayden Howard
Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Kathleen Moore
We have been extraordinarily fortunate in finding people to join the PatientsLikeMe FA community who are willing to talk about some of the challenges they have faced. Chief among those – Kathleen! She has contributed a number of pieces already: And that’s just a few of them! Here, we wanted to cover a topic that… Continue reading Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Kathleen Moore
Wondering Whether Menopause Can Affect Brain Health Long Term?
As a natural biological process, every woman that hits middle age will go through menopause! In the United States, about 1.3 million women reach this change every year. With menopause come a wide range of symptoms and changes. Wildly fluctuating hormone levels can impact mood, sleep, your ability to concentrate, and so much more! Not… Continue reading Wondering Whether Menopause Can Affect Brain Health Long Term?
Managing Fatigue with Friedreich’s Ataxia: Tips For Daily Life
For normies, a full night of sleep means waking up refreshed, ready for the day, and as if your energy battery is at 100%. For people living with Friedreich’s ataxia (FA), it can feel different. PatientsLikeMe member, Tiffany, shares how the chronic fatigue she feels from her FA experience feels as if every morning after… Continue reading Managing Fatigue with Friedreich’s Ataxia: Tips For Daily Life
Why Cruising Can Be One of the Best Ways to Travel When You’re Living With FA
Taking a vacation when you have a degenerative condition like Friedreich’s Ataxia takes a huge amount of preparation. You cannot expect to just hop on a plane, get to your destination, and be able to enjoy everything there is to offer! New locations mean new accessibility challenges. Will the restaurants have ramps? Does the hotel… Continue reading Why Cruising Can Be One of the Best Ways to Travel When You’re Living With FA
Feeling Like Your Brain Is Full? How Women Are Managing Decision Fatigue and Mental Overload
One of the most common symptoms of depression is fatigue. Feeling like your body and your mind are just not up to the task is commonplace for people living with MDD! One variation of this is called decision fatigue. Simply put, this is the exhaustion that many people feel after having to make choice after… Continue reading Feeling Like Your Brain Is Full? How Women Are Managing Decision Fatigue and Mental Overload
The Unexpected Connection Between Better Sleep, More Energy, and Cardiometabolic Health
Sleep, it turns out, is incredibly important. Shocking, right? But for how important it is to both physical and mental health, the reality is that people do not get enough sleep. In 2022, the CDC took a survey to see how many American adults were getting the recommended 7 hours of sleep each day. Overall?… Continue reading The Unexpected Connection Between Better Sleep, More Energy, and Cardiometabolic Health
What Should I Actually Be Asking My Doctor? FA Appointments, PT, and Planning Ahead
Interview with PatientsLikeMe Patient Advocate, Kelly Gregory Doctor’s appointments can feel overwhelming, especially when you’re not sure what questions to ask. In this Q&A, I’m sharing what I’ve learned about preparing for appointments, getting the most out of physical therapy, and planning ahead while living with FA. Q: How do you prepare before an appointment… Continue reading What Should I Actually Be Asking My Doctor? FA Appointments, PT, and Planning Ahead