Tag: Friedreich’s Ataxia

Some of the common questions that people ask after getting a Friedreich’s Ataxia (FA) diagnosis are: These are normal questions to have! FA affects the nervous system, heart, muscles, how your body produces energy, and emotions. It touches every part of daily life and can lead to a mental wear-and-tear that builds slowly over many… Continue reading Symptoms, Burnout, and the Invisible Mental Load

Living with Friedreich’s Ataxia (FA) changes many parts of your life. Over time, things that once felt easy can start to take more planning, more energy, or more patience. One of the hardest parts of FA that many people talk about is the feeling that your world is getting smaller. Maybe you used to love… Continue reading Keeping the Hobbies You Love With FA – From Travel to Gaming to Everyday Routines

Living with Friedreich’s Ataxia (FA) changes the way someone moves through school, work, and everyday life. It is a progressive neuromuscular disease that affects balance, coordination, speech, endurance, and fine motor skills. But having FA does not mean someone cannot succeed in school or build a meaningful career! What usually makes the biggest difference is… Continue reading Workplace and School Accessibility Accommodations That Actually Help When Living With FA

Have you felt the constant wear of having to change parts of your life to fit with your new normal? Friedreich’s Ataxia can do that. Over time, the mental and physical exhaustion that comes with adapting to a chronic health condition can get to anyone! There is no shame in it, and for better or… Continue reading Managing the Mental Exhaustion of Constantly Adapting to Life With FA

How do you stay connected to the people and things you love as you navigate the changes that come with Friedreich’s Ataxia? FA changes how your body moves, how quickly you fatigue, how you navigate public spaces, and sometimes even how you see yourself. Things that once were effortless can get harder, more exhausting, or… Continue reading How to Stay Social and Keep Doing What You Love With FA

Friedreich’s Ataxia leads to changes in strength, balance and energy levels. Things that once felt routine or automatic for mealtimes, like standing at the stove watching something simmer or chopping vegetables, can become difficult! Eating well with FA does not take perfection. There are things that you can do to cook smarter and build out… Continue reading Low-effort Meals, Adaptive Cooking, and Eating Well with Limited Energy

From the very start, a Friedreich’s Ataxia diagnosis means making changes. As a condition it will affect how you move, talk, your ability to work and go to school. What our members have found is that there are a number of small adjustments you can make that go a long way in helping save energy… Continue reading Small Adjustments That Make Daily Life Easier with FA