FOR IMMEDIATE RELEASE TWO OUT OF THREE PATIENTS REPORT DISCONTINUING TYSABRI WITHOUT DOCTORS’ ADVICE PatientsLikeMe Releases First in Series of Reports on Real-World Patient Experiences with Top Multiple Sclerosis Drugs CAMBRIDGE, Mass. — September 22, 2011 — In the first report of a series on Multiple Sclerosis (MS) disease modifying therapies(DMTs), PatientsLikeMe reveals that nearly two-thirds (64%)… Continue reading TWO OUT OF THREE PATIENTS REPORT DISCONTINUING TYSABRI WITHOUT DOCTORS’ ADVICE
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Do You Know Someone with Dementia?
Today, September 21st, is World Alzheimer’s Day. For this annual event, Alzheimer’s associations around the globe are coming together to raise awareness about Alzheimer’s disease, which affects an estimated 36 million people worldwide. This degenerative brain syndrome impacts memory, thinking, behavior and emotion. Eventually, those affected require assistance with all aspects of daily life. The… Continue reading Do You Know Someone with Dementia?
Photo of the Week: Hamming It Up for MS Awareness
Sometimes you have to hog the spotlight to bring attention to your condition – in this case, multiple sclerosis. Please meet PatientsLikeMeInMotion team leader Pjohns, who was supported by family and friends as well as “Hammy Hog,” the mascot of the Rockford Icehogs hockey team, at a 2011 Walk MS event in Northwest Illinois. Congrats… Continue reading Photo of the Week: Hamming It Up for MS Awareness
PatientsLikeMeOnCall: Monitoring Health Hazards with Modern Tools
Welcome to the fifth installment of our latest PatientsLikeMeOnCall podcast series, entitled “It’s Friday – Let’s Journal Club.” This week’s guest is Dr. Taha Kass-Hout, Deputy Director of the Division of Notifiable Diseases and Healthcare Information at the CDC. He came by PatientsLikeMe headquarters recently to discuss the BioSense project, an initiative launched following 9/11… Continue reading PatientsLikeMeOnCall: Monitoring Health Hazards with Modern Tools
What Patients Are Saying About Yoga
Never done a downward dog? Now is your chance. September is National Yoga Awareness Month, a grassroots campaign to inspire a healthy lifestyle. As part of this national observance, those who have never experienced yoga can try it for free for a week at more than 1,600+ participating studios. Also, beginners and veterans alike are… Continue reading What Patients Are Saying About Yoga
Photo of the Week: A Gathering of Hearts
Last month, we featured a blog interview with ALS advocate Debra Quinn, who is the spokesperson for the Hearts for ALS NY organization. Today we’d like you to meet her PatientsLikeMeInMotion-sponsored team for the 2011 Hearts for ALS NY Walk, which took place on August 21, 2011, in Angelica, New York. Congrats to Debra (far… Continue reading Photo of the Week: A Gathering of Hearts
What Do You Know About Celiac Disease?
Gluten-free products are now readily available in many grocery stories – and for good reason. One in 133 Americans has celiac disease, an autoimmune digestive disease that damages the villi of the small intestine and interferes with the absorption of nutrients from food. As a result, people with celiac disease cannot tolerate gluten, a protein… Continue reading What Do You Know About Celiac Disease?
Our Pledge to You, the Patient
“We founded PatientsLikeMe on the concept that sharing health data could lead to a more empowered patient and better overall healthcare system. It’s an exciting and giant step forward for us as an industry as we unite around making health data more accessible to those that matter most – the patients.” – Ben Heywood, PatientsLikeMe… Continue reading Our Pledge to You, the Patient
“Go Back for the Future” of Parkinson’s Research
Haven’t heard of the Nike MAG shoe? Perhaps that’s because it’s only been worn by one person – the indelible Marty McFly (Michael J. Fox). Yet today, this rarest of Nike Footwear will become a reality for a lucky few. 1,500 pairs of “the most famous shoe never made” are being auctioned off on Ebay… Continue reading “Go Back for the Future” of Parkinson’s Research
Photo of the Week: Three Generations in Motion
A multiple sclerosis (MS) diagnosis affects the whole family, which is why it can be great to get the whole family involved in awareness activities. Please meet PatientsLikeMeInMotion team leader PepsiGirl, who was supported by several family members at a 2011 Walk MS event in her home state of New York. Congrats to PepsiGirl and… Continue reading Photo of the Week: Three Generations in Motion