Today, July 28th, marks the first official World Hepatitis Day sponsored by the World Health Organization (WHO) and the World Hepatitis Alliance (WHA). Hepatitis kills more than one million people each year, while millions more suffer acute sickness or long-term ill health. The goal of this new event is to raise awareness of this global… Continue reading What Do You Know About Hepatitis?
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Photo of the Week: PatientsLikeMe Company Outing
Who are the people behind PatientsLikeMe? You’re looking at them! Every summer, we gather our team for a fun and relaxing company outing. This photo is from our recent summer 2011 event. As you can see, it was a great time for all of us to come together and enjoy each other’s company outside of… Continue reading Photo of the Week: PatientsLikeMe Company Outing
PatientsLikeMeOnCall: From Open Data to Actionable Data
Every Friday, PatientsLikeMe holds “Journal Club” in our Boston headquarters with a different guest speaker. Last week we were privileged to hear from Dave Hale, Project Manager for Pillbox, a National Library of Medicine (NLM) and Federal Drug Administration (FDA) patient safety initiative. And thanks to PatientsLikeMeOnCall’s new podcast series “It’s Friday – Let’s Journal… Continue reading PatientsLikeMeOnCall: From Open Data to Actionable Data
A Little More About Us: A Look Back at the Founding of PatientsLikeMe
“I got this call from my brother Stephen, and he said the news doesn’t look good. At that point, he’d been through enough processes to know what that meant – he had ALS. So I began this journey with my brother and my family…. We were thinking there had to be a way to make… Continue reading A Little More About Us: A Look Back at the Founding of PatientsLikeMe
We’re a 2011 Dosie Award Winner!
Sponsored by the health blog Dose of Digital, the Dosie Awards were created to recognize the best examples of social media in the healthcare industry. Now in its second year, this award program was expanded in 2011 to include both Judges’ Choice and People’s Choice Awards. Within each category, a Gold, Silver and Bronze medal… Continue reading We’re a 2011 Dosie Award Winner!
Let Patients Help: The Undying Mission of E-Patient Dave
“Patients know what patients want to know.” – Dave deBronkart Blogger, author and international keynote speaker Dave deBronkart is a familiar name at PatientsLikeMe, as his writings and health talks tend to strike a chord with us. You see, “E-Patient Dave,” as he calls himself, has a story that underscores exactly why we founded PatientsLikeMe. After… Continue reading Let Patients Help: The Undying Mission of E-Patient Dave
Photo of the Day: A Glimpse of PatientsLikeMeInMotion
As we mentioned in our blog post last week, our PatientsLikeMeInMotion program is off to a running start this year with more than 30 sponsored teams thus far. What does one of these run/walk/bike teams look like? Below is Team Sylvan, a 40-person team led by ALS patient Panda155. Decked out in bright blue PatientsLikeMe… Continue reading Photo of the Day: A Glimpse of PatientsLikeMeInMotion
Remembering Jimmy V
If you’re a longtime college basketball fan, you definitely know Jim Valvano (“Jimmy V”), the beloved former NC State basketball coach and award-winning broadcaster. Valvano’s battle with bone cancer galvanized the sports world, leading to the creation of the The V Foundation for Cancer Research by ESPN and Valvano in 1993. 18 years later, the foundation… Continue reading Remembering Jimmy V
Media Roundup: PatientsLikeMe in the News
PatientsLikeMe was recently highlighted in three national media outlets: CBS News, BNET and The Washington Post. See below for an excerpt of what each said about us. CBS News Health 2.0? 7 apps and sites that may save your life. “With information on more than 500 conditions, the crowdsourced research site [PatientsLikeMe] provides treatment and… Continue reading Media Roundup: PatientsLikeMe in the News
Daring and Dreaming
When you’re diagnosed with an illness, there are many unknowns ahead. For example, what’s the best future possible for you? At PatientsLikeMe, we believe that no one should have to face these questions alone. Like today’s patients, today’s youth are also facing uncertainties. With the world economy remaining in a precarious state, it can be… Continue reading Daring and Dreaming