Recently, I had the pleasure of helping to represent PatientsLikeMe at the 2nd Annual Health Data Initiative Forum, which is known as “Health Data-Palooza” to its friends. (See our first blog post about this event here.) The forum was conceived as a way to showcase the wonderful things that people are achieving with open government… Continue reading Data Mashups, “Wow Week” and the Fruits of Experimentation
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Turning Stories into Data…and Data into Knowledge
How do you make sense of all the information and stories that come with chronic illness? That’s exactly the challenge that the Patient Experience Team has taken on at PatientsLikeMe. Our goal is to create data visualizations that help you gain insight into your health, recognize emerging patterns and learn from one another’s experiences. Recently,… Continue reading Turning Stories into Data…and Data into Knowledge
Let’s Hear What Men Have to Say
It’s National Men’s Health Week, and as a follow up to our blog on Monday, we thought you might enjoy hearing the perspectives of four male members of PatientsLikeMe – one with MS, two with Parkinson’s disease and one with HIV. Men may make up a smaller percentage of our 105,000+ patients, but their contributions… Continue reading Let’s Hear What Men Have to Say
PatientsLikeMe and BBK Worldwide Join Forces to Bring Mass Patient Exposure to the Clinical Research Process
CAMBRIDGE, Mass. — June 14, 2011 — Today, PatientsLikeMe, the leading online health platform, and BBK Worldwide, a pioneer in healthcare marketing and patient recruitment, announce an alliance to jointly offer their services to pharmaceutical companies and other industry stakeholders interested in enhancing patient recruitment and retention for ongoing and upcoming clinical research studies. Both companies have a long-standing commitment… Continue reading PatientsLikeMe and BBK Worldwide Join Forces to Bring Mass Patient Exposure to the Clinical Research Process
Let’s Talk About Men’s Health
Did you know that, on average, American men are more likely to live sicker and die younger than American women? This has been called “the silent health crisis in America” by Dr. David Gremillion of the Men’s Health Network, and it’s one of the startling health statistics for men being brought to the surface during National… Continue reading Let’s Talk About Men’s Health
Janumet Side Effects: What patients say.
Janumet 50 1000 (see details) is the brand name (and dosage level) of sitagliptin-metformin, a combination prescription drug used in the management of type 2 diabetes. (50 refers to 50 mg of sitagliptin while 1000 refers to 1000 mg of metformin.) In addition to diet and exercise, Janumet 50 1000 is prescribed when the use… Continue reading Janumet Side Effects: What patients say.
Improving the Clinical Trial Process with Shared Data
“Today is a day of massive celebration of what health innovators have done,” said US Department of Health & Human Services’ Chief Technology Officer Todd Park this morning as he welcomed everyone to the 2nd Annual Health Data Initiative Forum (or “Health Data-Palooza,” as Park called it). The goal? To create “a self-propelled, open ‘ecosystem… Continue reading Improving the Clinical Trial Process with Shared Data
National Cancer Survivors Day: Meet a True Survivor
National Cancer Survivors Day was recently celebrated on June 5th. According to the organization behind it, the purpose of this annual event – now in its 24th year – is to “show the world that life after a cancer diagnosis can be meaningful and productive.” To help illustrate this inspiring message, we’d like to share… Continue reading National Cancer Survivors Day: Meet a True Survivor
Being an Advocate for ALS
Last month, we had the opportunity to interview PatientsLikeMe member t1961, who attended ALS Advocacy Day, held May 8-10, 2011, in Washington, DC. What does it mean to advocate for your disease on Capitol Hill? How can you personally make a difference? Check out the interview below to learn why this ALS patient felt the need… Continue reading Being an Advocate for ALS
Coping with Nerve Sensitivity
Do you suffer from nerve sensitivity – or a feeling akin to pins and needles? Known clinically as paresthesia, this uncomfortable sensation if often described as a tingling, pricking and/or creeping feeling. For some people with nerve sensitivity, it can be painful for clothing to touch your skin. Although there is no objective causes, nerve… Continue reading Coping with Nerve Sensitivity