The Value of Openness

Welcome to the PatientsLikeMe blog. Here you will get firsthand accounts of our growth and how we are impacting global health care. Why have we chose the name “The Value of Openness”? Read our Openness Philosophy below, and you’ll see why. ________________________ Openness is a good thing. Most healthcare websites have a Privacy Policy. Naturally,… Continue reading The Value of Openness

PatientsLikeMe at the Toronto ALS/MND Symposium

This year PatientsLikeMe was the major sponsor of the 18th International ALS/MND Symposium held in Toronto, Canada. Research scientist Paul Wicks, marketing officer Lori Scanlon, and community liaison Emma Willey were all in attendance to tell people about the site. We first started telling the ALS/MND community about us at the Yokohama conference in 2006,… Continue reading PatientsLikeMe at the Toronto ALS/MND Symposium

PatientsLikeMe T-Shirts

As the holiday spirit finally came upon us we thought we should do something nice for our members. There are thousands of them (and many more every day), so it isn’t reasonable to thank every one (we may look like Santa Claus, but we’re not, sadly). So we decided to thank the “stars” of the… Continue reading PatientsLikeMe T-Shirts

PatientsLikeMe Update: November 2007

It’s been six months since we launched our first newsletter, and a lot has happened at PatientsLikeMe in that time. With the holiday season now upon us, we thought we should give thanks for the amazing strides made in all our communities. There is power in numbers, as they say, and we are grateful to… Continue reading PatientsLikeMe Update: November 2007

Happy Thanksgiving! PatientsLikeMe MS Patient Spotlight: FeliciOlivar

At PatientsLikeMe, we believe in getting to know the person, not just the “patient.” That’s why we’ve decided to interview one patient each month to find out more about how he or she approaches life. This month we are pleased to feature FeliciOlivar, a two-star member. 1. What are you thankful for? I am thankful… Continue reading Happy Thanksgiving! PatientsLikeMe MS Patient Spotlight: FeliciOlivar

PatientsLikeMe Parkinson’s Patient Spotlight: Lynette1400

At PatientsLikeMe, we believe in getting to know the person, not just the “patient.” That’s why we’ve decided to interview one patient each month to find out more about how he or she approaches life. This month we are pleased to feature Lynette1400, a two-star member. What are you thankful for? A loving husband and… Continue reading PatientsLikeMe Parkinson’s Patient Spotlight: Lynette1400

PatientsLikeMe at Health 2.0 Conference

PatientsLikeMe attended the inaugural Health 2.0 conference in San Francisco. Congratulations to Matthew Holt and Indu Subaiya for putting on a great show. Ben Heywood participated in the Social Media panel along with other great health 2.0 companies, DailyStrength, OrganizedWisdom, Inspire, MedHelp, and Sophia’s Garden. The high quality of each company’s offering ensures that patients… Continue reading PatientsLikeMe at Health 2.0 Conference

PatientsLikeMe Parkinson’s Patient Spotlight: chethk

At PatientsLikeMe, we believe in getting to know the person, not just the “patient.” That’s why we’ve decided to interview one member each month to find out more about how he or she approaches life. This month we are pleased to feature chethk, a two-star member. Where do you find joy? I find joy by… Continue reading PatientsLikeMe Parkinson’s Patient Spotlight: chethk

PatientsLikeMe MS Patient Spotlight: jtjackson

At PatientsLikeMe, we believe in getting to know the person, not just the “patient.” That’s why we’ve decided to interview one member each month to find out more about how he or she approaches life. This month we are pleased to feature jtjackson, a two-star member. What is your favorite time of the day? My… Continue reading PatientsLikeMe MS Patient Spotlight: jtjackson

PatientsLikeMe ALS Patient Spotlight: swhite.geo

At PatientsLikeMe, we believe in getting to know the person, not just the “patient.” That’s why we’ve decided to interview a PALS each month to find out more about how he or she approaches life. This month we are pleased to feature swhite.geo, a two-star member. What are your interests and hobbies? Since my diagnosis,… Continue reading PatientsLikeMe ALS Patient Spotlight: swhite.geo