We recently launched a blog series about patients who’ve started (or are gearing up to launch) their own businesses, sparking a discussion around how to manage your health without giving up on your career goals. Say hello to Nancy (@spicerna), who sat down with us to discuss how she finds a balance between living with… Continue reading Patients at work: Member Nancy on being her own boss
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Meet Jacquie from the PatientsLikeMe Team of Advisors
Say hello to Jacquie (@Jacquie1961), another member of the 2016-2017 Team of Advisors. We chatted with Jacquie recently about how she lives with her condition and what it meant to become part of this year’s Team of Advisors; “Joining the team is allowing me to…help others who are newly diagnosed or those who think they… Continue reading Meet Jacquie from the PatientsLikeMe Team of Advisors
PatientsLikeMe Partners with iCarbonX and Secures $100+ Million Investment
CAMBRIDGE, Mass., JANUARY 5, 2017— PatientsLikeMe, the world’s largest personalized health network, has entered into a broad-ranging partnership with digital life company iCarbonX to apply next generation biological measures and machine learning, and accelerate a deeper understanding of the basis of human health and disease. iCarbonX, founded in 2015 by renowned genomicist Jun Wang,… Continue reading PatientsLikeMe Partners with iCarbonX and Secures $100+ Million Investment
Member JoeSixPack shares his experience with diabetes
Say hello to Peter (JoeSixPack), a father of three and member of the diabetes community. He was first diagnosed with type 2 diabetes in 1998 when he was 34 years old. In a recent interview, he told us about his life-long struggle with his weight, managing treatment, and how he found the motivation to lose… Continue reading Member JoeSixPack shares his experience with diabetes
Meet Glenda from the PatientsLikeMe Team of Advisors
Meet Glenda (gagafor2), a member of the 2016-2017 Team of Advisors. Glenda is a wife, mother and grandmother who finds great joy in making others happy. She’s also living with idiopathic pulmonary fibrosis (IPF). Recently, Glenda told us about coming to terms with the “unknown” in her future and coping with anxiety: “PatientsLikeMe became… Continue reading Meet Glenda from the PatientsLikeMe Team of Advisors
Meet Laura from the PatientsLikeMe Team of Advisors
Say hello to Laura (thisdiva99), another member of your 2016-2017 Team of Advisors. Laura chatted with us about what it’s like to live with bipolar disorder and why she thinks it’s essential to find and connect with others who live with the same condition: “It is of the utmost importance to connect with other… Continue reading Meet Laura from the PatientsLikeMe Team of Advisors
Member Susan shares about life with type 2 diabetes
Meet Susan (sugarpolicewoman) from Montgomery, Alabama. She loves birds, flowers and kittens and was diagnosed with type 2 diabetes over 40 years ago. Check out her story to learn more about how she manages her condition while living in an assisted living facility. Can you tell us a little about yourself? What are your passions?… Continue reading Member Susan shares about life with type 2 diabetes
Meet John from the PatientsLikeMe Team of Advisors
Have you met John (JohnJFB126)? He’s another member of the 2016-2017 Team of Advisors. John is a musician, husband and father of four. He’s also living with MS. For John, living with an “invisible” disease is challenging, and he hopes for more compassion and understanding from others in the future. Here, John shares how he finds… Continue reading Meet John from the PatientsLikeMe Team of Advisors
Meet Kimberly from the PatientsLikeMe Team of Advisors
We’d like to introduce you to Kimberly (firefly84), another member of your 2016-2017 Team of Advisors. Kimberly lives with autonomic neuropathy and describes what it’s like to manage a condition that is at times invisible, how she tackles each day by taking “baby steps” and focusing on the moment at hand. Before becoming ill, Kimberly… Continue reading Meet Kimberly from the PatientsLikeMe Team of Advisors
The power of your data: Members define compassionate care
For these 24 Days of Giving, we’re rethinking what it means to give and how the power of patient data can change healthcare for the better. Here’s a snapshot of your data in action. Let’s talk compassionate care. Our partners at the Schwartz Center for Compassionate Healthcare had developed a scale based on input from… Continue reading The power of your data: Members define compassionate care