Last week, we shared some study results for National Migraine and Headache Awareness Month. Today, we’re digging deeper into which foods might trigger – or help – chronic headaches. We asked the community for their diet dos and don’ts, and here’s what members have said so far… “I have found too much sugar can… Continue reading Food for thought: Which foods trigger headaches and migraines?
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Migraine & Headache Awareness Month: New insights from a recent study
It’s National Migraine and Headache Awareness Month, so let’s help spread that awareness by sharing the results of a recent survey that 300 members from the migraine community on PatientsLikeMe took. For this study, we defined chronic migraine as having had 15 or more headaches in the past month. Here’s what members helped uncover: High level… Continue reading Migraine & Headache Awareness Month: New insights from a recent study
Patients as Partners: Allison shares her insight on teaming up with organizations
This year’s Team of Advisors has been sharing how they use the Partnership Principles in their health journeys. Today, we hear from Allison, who’s living with bipolar II. Allison is a volunteer with the National Alliance on Mental Illness (NAMI) in Dallas and also runs support groups for the Depression Bipolar Support Alliance (DBSA). See… Continue reading Patients as Partners: Allison shares her insight on teaming up with organizations
PatientsLikeMe Co-founder Ben Heywood reflects on a recent visit from Dr. Jill Biden
Last month, PatientsLikeMe was honored to host a special visitor — Dr. Jill Biden was in town as part of the Cancer Moonshot Initiative announced by President Obama in his 2016 State of the Union Address. She made time to stop by our office to learn more about how PatientsLikeMe works and how members use… Continue reading PatientsLikeMe Co-founder Ben Heywood reflects on a recent visit from Dr. Jill Biden
Patients as Partners: Cyrena talks empathy and assertiveness
We’ve been talking to 2015-2016 Team of Advisors about the Partnership Principles they put together and how they use them in their personal health journeys. Next up is Cyrena, who’s living with bipolar II and lupus and recently completed her PhD in pharmacology. Below, she talks about managing multiple conditions, getting on the same page… Continue reading Patients as Partners: Cyrena talks empathy and assertiveness
Patients as Partners: John and David share their clinical trial experiences
We’ve been hearing from members of the Team of Advisors about how they’ve used the Partnership Principles in their health journeys. Recently, we sat down with John (Dockstoy), living with ALS, and David (Davidgewirtz), who’s living with lung cancer. John and David are both interested in research and have been involved in a few clinical trials. Below,… Continue reading Patients as Partners: John and David share their clinical trial experiences
Arthritis Awareness Month: Shedding light on an invisible condition
It’s National Arthritis Awareness Month, and while more than 50 million Americans live with it, arthritis is often an invisible condition. It can be hard for those who don’t have it to understand what it’s all about and how it impacts a person. So let’s test your arthritis knowledge — did you know any of the… Continue reading Arthritis Awareness Month: Shedding light on an invisible condition
“I learned that life is precious.”
Meet Jenna. She’s been part of the PatientsLikeMe Team since back in 2012 when she first started as an intern. And for Jenna, working at PatientsLikeMe is personal. Her father was diagnosed with ALS when she was just eight years old, and so, being part of PatientsLikeMe is especially meaningful for her. For ALS Awareness… Continue reading “I learned that life is precious.”
Patients as Partners: An open letter from Craig to the “normals”
We’ve been hearing from members of the Team of Advisors about how they’ve used the Partnership Principles in their health journeys. For Craig (woofhound), who’s living with fibromyalgia, it’s important to forge strong relationships with “normals,” or people who don’t know what it’s like to live with a chronic condition. By talking openly about illness, Craig believes,… Continue reading Patients as Partners: An open letter from Craig to the “normals”
“TransFatty Lives”: An interview with ALS filmmaker Patrick O’Brien
Meet Patrick O’Brien, a.k.a. “TransFatty,” whom we met through our friend and longtime PatientsLikeMe ALS member Steve Saling (Smooth S) after catching up with him earlier this year. Patrick is one of Steve’s housemates at the Steve Saling ALS Residence at the Chelsea Jewish Foundation’s Leonard Florence Center for Living and he’s also an award-winning filmmaker. Back… Continue reading “TransFatty Lives”: An interview with ALS filmmaker Patrick O’Brien