In honor of Sjögren’s Awareness Month, we connected with PatientsLikeMe member Dana, a New Jersey-based poet and screenplay writer who was recently diagnosed. This isn’t the first time we’ve interviewed Dana — she was a member of our 2014 Team of Advisors! Here, Dana talks about the daily challenges of living with Sjögren’s, an autoimmune… Continue reading “Adapt, improvise and overcome.” — PatientsLikeMe member Dana shares her experience for Sjögren’s Awareness Month
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“I am working on all of it slowly” — Member David opens up about his experience with PTS
Meet member David (david61060), a United States Air Force veteran who’s living with multiple conditions including PTS, sleep apnea, and epilepsy. When we caught up with him, David shared what it was like to grow up as a “navy brat,” his experience in the military, and how It took him more than nine years to… Continue reading “I am working on all of it slowly” — Member David opens up about his experience with PTS
“Seesawing Libidos”: A podcast for Parkinson’s Awareness Month
April is Parkinson’s Awareness Month, and this year we’re getting personal. “Seesawing libidos,” an episode of WBUR Boston’s Modern Love podcast, explores an unexpected side effect of a Parkinson’s medication: an overactive sex drive. The story comes from comedian Marc Jaffe, whose wife Karen was diagnosed with Parkinson’s 15 years into their marriage. Before Karen’s… Continue reading “Seesawing Libidos”: A podcast for Parkinson’s Awareness Month
Food for Thought: IBS Awareness Month edition
Did you know that 9% – 23% of the world’s population live with irritable bowel syndrome (IBS)1, including over 5,000 members on PatientsLikeMe? For IBS Awareness Month, we’re digging deeper into how people are coping with this condition that affects so many. We asked IBS members for some insight — which foods help and… Continue reading Food for Thought: IBS Awareness Month edition
“Technology is the cure”: An update with member Steve Saling (SmoothS)
Recently, we paid a follow-up visit to ALS member Steve Saling (Smooth S) to see what he’s been up to and talk about future plans. When we last spoke with him in 2012, Steve was using his expertise as an architect and his interest in technology to spearhead the ALS Residence Initiative (ALSRI), starting with the Steve… Continue reading “Technology is the cure”: An update with member Steve Saling (SmoothS)
“These lungs are a precious gift” — Member John shares his new “new normal” for National Donate Life Month
April is National Donate Life Month, an annual awareness effort to encourage Americans to register as organ, eye and tissue donors — and to celebrate those who have donated and saved lives. We recently caught up with IPF member John (John_R), who we interviewed back in 2014. At that time, John described what his “new… Continue reading “These lungs are a precious gift” — Member John shares his new “new normal” for National Donate Life Month
World Bipolar Day 2016 – Share how you’re #MoreThanADiagnosis
“What am I in the eyes of most people – a nonentity, an eccentric, or an unpleasant person – somebody who has no position in society and will never have; in short, the lowest of the low. All right, then – even if that were absolutely true, then I should one day like to show… Continue reading World Bipolar Day 2016 – Share how you’re #MoreThanADiagnosis
Digital Health Authority Monique Levy Joins PatientsLikeMe
New head of Customer Strategy and Value Delivery brings 20+ Years of research and commercial experience to the role CAMBRIDGE, Mass., March 30, 2016—PatientsLikeMe today announced the appointment of Monique Levy as Senior Vice President, Head of Customer Strategy and Value Delivery. In the newly-created role, Levy will use her extensive experience to shape how… Continue reading Digital Health Authority Monique Levy Joins PatientsLikeMe
Study results: What patients like you said about sleep medications
Over a year ago, we partnered up with Merck Pharmaceuticals to learn more about insomnia and sleep medications. More than 1,200 PatientsLikeMe members responded to questions about how long they’ve had sleep problems, what treatments they’re using, what interferes with sleep most and what their overall quality of sleep is like. Here’s what we uncovered… Continue reading Study results: What patients like you said about sleep medications
“Each day is different and you do what you can” — Member Rick shares his story for Myeloma Action Month
A few weeks ago, we shared Marcia’s story for Myeloma Action Month. Today, we’re introducing Rick (ricktowner), another member of the multiple myeloma community. Before he was diagnosed in 2012, Rick and his wife led active lives volunteering in private, state and federal parks. Now in remission, he still travels when he can and rides… Continue reading “Each day is different and you do what you can” — Member Rick shares his story for Myeloma Action Month