Did you know that 9% – 23% of the world’s population live with irritable bowel syndrome (IBS)1, including over 5,000 members on PatientsLikeMe? For IBS Awareness Month, we’re digging deeper into how people are coping with this condition that affects so many. We asked IBS members for some insight — which foods help and… Continue reading Food for Thought: IBS Awareness Month edition
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“Technology is the cure”: An update with member Steve Saling (SmoothS)
Recently, we paid a follow-up visit to ALS member Steve Saling (Smooth S) to see what he’s been up to and talk about future plans. When we last spoke with him in 2012, Steve was using his expertise as an architect and his interest in technology to spearhead the ALS Residence Initiative (ALSRI), starting with the Steve… Continue reading “Technology is the cure”: An update with member Steve Saling (SmoothS)
“These lungs are a precious gift” — Member John shares his new “new normal” for National Donate Life Month
April is National Donate Life Month, an annual awareness effort to encourage Americans to register as organ, eye and tissue donors — and to celebrate those who have donated and saved lives. We recently caught up with IPF member John (John_R), who we interviewed back in 2014. At that time, John described what his “new… Continue reading “These lungs are a precious gift” — Member John shares his new “new normal” for National Donate Life Month
World Bipolar Day 2016 – Share how you’re #MoreThanADiagnosis
“What am I in the eyes of most people – a nonentity, an eccentric, or an unpleasant person – somebody who has no position in society and will never have; in short, the lowest of the low. All right, then – even if that were absolutely true, then I should one day like to show… Continue reading World Bipolar Day 2016 – Share how you’re #MoreThanADiagnosis
Digital Health Authority Monique Levy Joins PatientsLikeMe
New head of Customer Strategy and Value Delivery brings 20+ Years of research and commercial experience to the role CAMBRIDGE, Mass., March 30, 2016—PatientsLikeMe today announced the appointment of Monique Levy as Senior Vice President, Head of Customer Strategy and Value Delivery. In the newly-created role, Levy will use her extensive experience to shape how… Continue reading Digital Health Authority Monique Levy Joins PatientsLikeMe
Study results: What patients like you said about sleep medications
Over a year ago, we partnered up with Merck Pharmaceuticals to learn more about insomnia and sleep medications. More than 1,200 PatientsLikeMe members responded to questions about how long they’ve had sleep problems, what treatments they’re using, what interferes with sleep most and what their overall quality of sleep is like. Here’s what we uncovered… Continue reading Study results: What patients like you said about sleep medications
“Each day is different and you do what you can” — Member Rick shares his story for Myeloma Action Month
A few weeks ago, we shared Marcia’s story for Myeloma Action Month. Today, we’re introducing Rick (ricktowner), another member of the multiple myeloma community. Before he was diagnosed in 2012, Rick and his wife led active lives volunteering in private, state and federal parks. Now in remission, he still travels when he can and rides… Continue reading “Each day is different and you do what you can” — Member Rick shares his story for Myeloma Action Month
Joy Morel Joins PatientsLikeMe
Veteran of Leading Tech Brands to Direct B2B and B2C Marketing Strategy CAMBRIDGE, Mass., March 23, 2016—PatientsLikeMe today announced the appointment of Joy Morel as Senior Vice President, Marketing, Patient Engagement and Business Intelligence. A global marketing strategist with both business-to-business and business-to-consumer branding experience, Morel now leads the 25-person team that focuses on attracting… Continue reading Joy Morel Joins PatientsLikeMe
Brain Injury Awareness Month: Roxana’s story from our partners at One Mind
March is Brain Injury Awareness Month, so we’re sharing the story of Roxana Delgado, whose husband Victor is one of the 2.5 million Americans who survive traumatic brain injuries (TBIs) each year.1 In this video from our partners at One Mind, Roxana opens up about the challenges of caring for Victor after he suffered a… Continue reading Brain Injury Awareness Month: Roxana’s story from our partners at One Mind
Meet Laura from the PatientsLikeMe Team of Advisors
We’d like to introduce you to Laura, another member of your 2015-2016 Team of Advisors. When Laura was diagnosed in 2013, she’d never heard of Idiopathic Pulmonary Fibrosis (IPF). Flash forward three years, and she’s made patient education and advocacy her main focus. Laura has spoken before the FDA, regularly blogs about IPF on various… Continue reading Meet Laura from the PatientsLikeMe Team of Advisors