During #24DaysofGiving this December, we’ve been highlighting all the good your health data is doing. For this one, we wanted to share more about how the data you donate is the centerpiece of a new collaboration between PatientsLikeMe and the Food and Drug Administration (FDA). Even after a new medication or treatment makes it through… Continue reading Your data doing good: Our collaboration with the FDA
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Your data doing good: The Lithium study
During #24DaysofGiving this December, we’re highlighting all the good your health data donations are doing. And this time, we’re starting at the beginning. As you probably know already, PatientsLikeMe launched its first community in 2006 for people living with ALS, also known as Lou Gehrig’s disease. Two years later, we had an amazingly engaged and… Continue reading Your data doing good: The Lithium study
From our partners at One Mind: Zack Lystedt’s football story
Accidents happen, anywhere to anyone. Whether it’s from playing soccer or football, snowboarding, riding a bike, competing in synchronized swimming, slipping on ice or falling off of a ladder. In sports, even with the best safety procedures in place, there are still accidents. That’s why our partners at One Mind have started the #TreatBrainsBetter campaign.… Continue reading From our partners at One Mind: Zack Lystedt’s football story
At the #24DaysofGiving halfway point, you can help get us to our goal!
Just a couple of weeks ago we recognized #GivingTuesday, a day to celebrate generosity. But this idea of giving back isn’t just about one day – it’s bigger than that. We’re asking you to re-think what it means to give back by donating your health data this December for what we call #24DaysofGiving. And right… Continue reading At the #24DaysofGiving halfway point, you can help get us to our goal!
Your data doing good: A collaboration with Walgreens
During #24DaysofGiving this December, we’re highlighting all the good your health data is doing within – and well beyond – the PatientsLikeMe website. Here’s another great example. Did you know the side effect data you report on your PatientsLikeMe treatment evaluations is helping pharmacy customers understand how the medications they take may affect them, too?… Continue reading Your data doing good: A collaboration with Walgreens
Your data doing good: IPF treatment experiences
Every minute of every day, people are sharing their health data on PatientsLikeMe. Some of you are focused on tracking how you’re doing over time. Many want to make sure the next person diagnosed can learn from your experience. All are contributing to the greater good, because what you share helps researchers see what patients… Continue reading Your data doing good: IPF treatment experiences
Christel’s story
Last month, we introduced Christel, a member of your 2015-2016 Team of Advisors living with type 1 diabetes. Here she talks about the important role peer support has played in her journey. Here’s her story: You can see how much good data can do. During the month of December, we’re celebrating #24DaysofGiving. Any data… Continue reading Christel’s story
RWJF Awards Grant to PatientsLikeMe to Develop New Measures for Healthcare Performance
Patient Network to Work with the National Quality Forum to Ensure Patients Drive Healthcare Value CAMBRIDGE, MA., December 8, 2015—PatientsLikeMe has been awarded a $900,000 grant from the Robert Wood Johnson Foundation (RWJF) to help jumpstart changes that will amplify the patient voice in the measurement of healthcare performance. A portion of the grant funds… Continue reading RWJF Awards Grant to PatientsLikeMe to Develop New Measures for Healthcare Performance
Gus’s story
Last month, we introduced Gus, a member of your 2015-2016 Team of Advisors living with ALS. Here he talks about his hope that the data he donates will help not just one person – but many. Here’s more of his story: You can see how much good data can do. During the month of… Continue reading Gus’s story
Your data doing good: The POEM Study
When you share your health data, we all learn Every minute of every day, people are sharing their health data on PatientsLikeMe. Some of you are focused on tracking how you’re doing over time. Many want to make sure the next person diagnosed can learn from your experience. All are contributing to the greater good,… Continue reading Your data doing good: The POEM Study