Multiple sclerosis (MS) can be one of the most difficult conditions to diagnose because of the variety of symptoms it causes and the ways they present. Most people with MS experience their first symptoms between the ages of 20 and 40. Sometimes, symptoms can come on suddenly and go away just as quickly. Other times, symptoms will start minimally and progressively get worse. Because MS effects everyone… Continue reading Unexpected Warning Signs of Multiple Sclerosis (MS)
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10 Early Warning Signs of Chronic Kidney Disease
How often do you think about your kidneys? Probably not very often. When your kidneys are functioning properly, it’s easy to forget what a key role they play in your health. But when your kidneys aren’t working as well as they should, your body will send you warning signals to let you know something is wrong. These warnings can be early indicators of chronic kidney disease. What is… Continue reading 10 Early Warning Signs of Chronic Kidney Disease
Lupus Advocate and PatientsLikeMe Team of Advisors Member, Juana Mata
“Living with lupus [a systemic autoimmune disease] is difficult. I thrive by staying positive,” says 2019 Team of Advisors member, Juana (@Juanymata). Advocating on behalf of lupus patients like herself is one key way Juana stays positive. Off and Running Only months after being diagnosed with rheumatoid arthritis and systemic lupus erythematosus, Juana Mata and her two sisters formed a team to… Continue reading Lupus Advocate and PatientsLikeMe Team of Advisors Member, Juana Mata
ASMR – The Phenomenon Everyone’s Whispering About
Chills. Goosebumps. Tingles. “Autonomic sensory meridian response” or ASMR is described as a pleasurable wave of calm that comes to some people during exposure to gentle actions and/or sounds: think whispering, tapping fingernails or turning pages. These ordinary audio and visual triggers can inspire a deeply soothing effect on many people – making ASMR potentially… Continue reading ASMR – The Phenomenon Everyone’s Whispering About
Easy Listening: Podcasts for Relaxation
Podcasts are super popular, so let’s chat about what helps you chill out…with your earbuds in. Whose voices and which topics or types of podcasts do you find most de-stressing? Take a look at what folks around the web and here in the PatientsLikeMe forums have to say about podcasts and ideas for “easy listening.” Ideas from… Continue reading Easy Listening: Podcasts for Relaxation
“Smart” Gear for Cold Hands Due to Raynaud’s Disease?
Member Julia (mjguimaraes), a product designer in Montreal who’s living with Raynaud’s disease and multiple autoimmune conditions, is creating hand-warmers and other smart gear intended to help patients. She even involved fellow PatientsLikeMe members in shaping her first product. What’s in the works? Check it out! Helping (Cold) Hands Julia is originally from Brazil and began to… Continue reading “Smart” Gear for Cold Hands Due to Raynaud’s Disease?
Keto + other diet trends: Healthy or hype?
Keto. Carnivore. Fasting. What should you know about these diet buzzwords and the potential benefits or risks, especially when you’re living with an existing or chronic health condition? Take a peek (and always talk with your doctor before making big dietary changes). 3 Hot Diet Trends In 2019 According to Google Trends data (accessed in early 2019),… Continue reading Keto + other diet trends: Healthy or hype?
See our members’ online art show!
PatientsLikeMe members have a lot in common beyond their experiences with their health conditions. For example: a love of creativity and visual arts. For the second year in a row, PatientsLikeMe members have contributed to an online community art show, hosted in our Mental Health and Behavior forum but open to all members. With their… Continue reading See our members’ online art show!
Meet our 2019 Team of Advisors!
We’re excited to announce the nine members who have been selected to join the 2019 Team of Advisors! This group of active members will be collaborating with PatientsLikeMe in the next year to offer feedback on new research and product development, to advocate on behalf of patients, and provide real-world perspectives to us and our… Continue reading Meet our 2019 Team of Advisors!
Supplement safety smarts
It’s easy to see the temptation of taking dietary supplements. Getting vitamins, minerals and herbs or other “health foods” in pill form sounds simple. And some of the products’ claims — “Live longer!” or “Have more energy!” — may seem enticing. But even though most supplements don’t require a prescription, it’s best to check with… Continue reading Supplement safety smarts