Are you living with lupus (SLE) and experiencing problems with your monthly period? (Like, not getting it. Or having a really heavy, long period.) And have you ever wondered how lupus might play a role in this? Read on. What Does The Research Show? Small studies have found that people with SLE are at greater risk… Continue reading Lupus And Period Problems, Explained
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Can dogs detect disease? Studies say…
Can “Spot” spot cancer, diabetes, Parkinson’s disease and more? We’ve rounded up some of what the initial research shows so far — and it’s not just fluff. “The full potential of dogs to detect human disease is just beginning to be understood,” says Claire Guest, chief executive of a U.K.-based organization called Medical Detection Dogs, which trains… Continue reading Can dogs detect disease? Studies say…
Family activities with a health condition
Your chronic health condition may steal your energy, but it shouldn’t rob you of family fun. Jeanette Alston-Watkins was diagnosed with lupus (SLE) when her kids were 11 and 14. Check out this Q&A about activities she enjoyed with them despite SLE. Try some of these with your children or grandchildren over the upcoming holiday… Continue reading Family activities with a health condition
Advocacy 101: See our new guide!
Interested in getting into advocacy for your health condition community this year? Raising your voice to boost awareness about your condition or the reality of being a patient takes courage. Yet it’s pretty simple to get started with advocacy, so together with members of our Team of Advisors (a team of highly active members and… Continue reading Advocacy 101: See our new guide!
Gift guide: Gadgets for people with health conditions
Who needs another scarf or coffee mug? With the holiday shopping season upon us, PatientsLikeMe members are crowd-sourcing a list of handy products and tools that can actually help people living with pain, fatigue and other symptoms of chronic illness or aspects of aging. Check out the list below, for starters, and then join PatientsLikeMe or log in to… Continue reading Gift guide: Gadgets for people with health conditions
Parkinson’s Freezing Triggers and Fall Prevention
Gait freezing and falls are common among people with Parkinson’s disease (PD). Take a closer look at patients’ experiences, common triggers of freezing and tips that may help prevent falls. What is known about freezing and falls? Researchers and movement experts have been studying gait freezing in people with PD for several decades. The exact… Continue reading Parkinson’s Freezing Triggers and Fall Prevention
Brits are boosting men’s mental health — can the U.S. follow suit?
The British Royals’ passion for improving mental health is giving us all the feels — and possibly helping reduce male suicide rates in the U.K. Who’s raising awareness of men’s mental health in the U.S.? (See how PatientsLikeMe member John, pictured above, is doing his part!) Diverging stats in the U.K. and U.S. The U.K.… Continue reading Brits are boosting men’s mental health — can the U.S. follow suit?
Lupus Diagnosis and Lupus Self Test: Member Hetlena’s Pointers For Her Old (Newbie with SLE) Self
What would someone who has lived with lupus (SLE) for decades tell her younger, newly diagnosed self? PatientsLikeMe member Hetlena (@TheLupusLiar), who was diagnosed with lupus in 1993, recently answered that question for us in the following personal essay reflecting on what she’s learned through the years… Tips For A Newly Diagnosed SLE Patient “This… Continue reading Lupus Diagnosis and Lupus Self Test: Member Hetlena’s Pointers For Her Old (Newbie with SLE) Self
5 must-watch TED Talks Mental Health
Ever watch TED Talks? TED is a nonprofit “devoted to spreading ideas, usually in the form of short, powerful talks (18 minutes or less).” We’ve rounded up some of the top health-related videos from the TED series (1,700+ talks and counting) that might resonate or give you food for thought. Phil Hansen – “Embrace the shake” Hansen developed… Continue reading 5 must-watch TED Talks Mental Health
Ommm: People with cancer practice chair yoga for bone benefits
Chemotherapy and other cancer treatments can take a toll on your bones and overall strength, so some patients are turning to chair yoga to boost their bone health and balance. Things like bone health ‘seemed trivial compared to cancer’ We heard about chair yoga in this New York Times article, “Chair yoga for my funny bones.” The… Continue reading Ommm: People with cancer practice chair yoga for bone benefits