In an incredible leap for medical technology, a 64-year-old named Mark with amyotrophic lateral sclerosis (ALS), has become the first patient to use the Apple Vision Pro headset through an implantable brain-computer interface (BCI). This highlights the potential of BCIs in treating neurodegenerative diseases like ALS. It also opens up new possibilities for enhancing the… Continue reading How Virtual Reality is Transforming ALS Treatment
Category: ALS
Hints and Ideas for Those with ALS or Mobility Issues and Their Caregivers
Written by Leigh Ann Nielson, PLM Member My name is Leigh Ann Nielson and I was diagnosed with ALS/Lou Gehrig’s Disease on November 27, 2019. It has been quite a journey. I am not a doctor, nor do I advocate for not following your doctor’s advice. That said, you have choices. Be sure your medical… Continue reading Hints and Ideas for Those with ALS or Mobility Issues and Their Caregivers
Risk Factors for ALS
Once considered a rare disease, amyotrophic lateral sclerosis (ALS) has become a common condition. About 6,000 new cases of ALS are diagnosed each year, and approximately four to six people per every 100,000 are living with the disease. Also called Lou Gehrig’s disease, it’s a progressive illness that affects nerve cells in the brain and… Continue reading Risk Factors for ALS
How to Adapt Your Living Space and Daily Activities for ALS
Your home is your sanctuary, but if you’ve recently been diagnosed with amyotrophic lateral sclerosis (ALS), it may feel like that sanctuary isn’t as safe as it used to be. As the illness progresses, it can become harder to move around your home and do the daily tasks you used to do. Because ALS is a… Continue reading How to Adapt Your Living Space and Daily Activities for ALS
2018 National ALS Advocacy Conference: A recap from Team of Advisors members Rich & Paul
Last month, Rich and Paul from this year’s Team of Advisors attended the 2018 National ALS Advocacy Conference in Washington D.C. to learn about the latest ALS research, network, and meet with members of congress on Capitol Hill. Just over 600 people attended the event, including 100+ pALS and 240 first-time participants. The event started on Sunday with opening remarks followed… Continue reading 2018 National ALS Advocacy Conference: A recap from Team of Advisors members Rich & Paul
Dr. Rick Bedlack weighs in on telemedicine
Do you have difficulty getting to your doctor’s appointments? Ever thought about using telemedicine? Connecting online can make it easier to get the care you need. Here, Dr. Rick Bedlack (a tenured associate professor of Medicine/Neurology at Duke University and the director of the Duke ALS Clinic that’s partnering with PatientsLikeMe in the current Lunasin study) explains… Continue reading Dr. Rick Bedlack weighs in on telemedicine
Circulation issues & ALS
Do you have circulation issues like swelling (also called edema) or a burning (or cold) sensation in your legs and feet? How do you cope? From compression stockings to therapeutic massage and limiting salt intake, pALS are managing their circulation issues in some creative ways. Why do some people with ALS experience poor circulation? For many… Continue reading Circulation issues & ALS
Cannabidiol (CBD) oil and product FAQs: Fad or effective? Legal or not?
Trending: Cannabidiol (CBD) oil, gummies, tinctures and more. Why are cannabis products gaining popularity as medical treatments and in general? As more states have legalized medical marijuana, more people have shifted their views on cannabis treatments (like former Speaker of the House John Boehner’s recent change of heart). And last month, an advisory panel at the U.S. Food and… Continue reading Cannabidiol (CBD) oil and product FAQs: Fad or effective? Legal or not?
Health news: What’s making headlines this month
Let’s stay on top of the latest health news — in case you missed it, check out this round up of some of the stories making headlines in May. ALS May is ALS awareness month: Later this month, advocates from across the U.S. will head to Capitol Hill to meet with their legislators. Check out how… Continue reading Health news: What’s making headlines this month
Remodeling for ALS? Tips from a pALS who’s been there
Thinking about remodeling your home but don’t know where to begin? You’re not alone. Many people living with ALS consider a remodel to accommodate their needs as their condition progresses but don’t know where to start. To get some real-world advice, we talked to Jonathan Woodman, a pALS who recently renovated his garage into what… Continue reading Remodeling for ALS? Tips from a pALS who’s been there