“The true strength of the American family finds its roots in an unwavering commitment to care for one another.” – President Barack Obama November is National Family Caregivers Month, “a time to thank, support, educate and empower family caregivers.” There are more than 65 million family caregivers in the US who day in and day… Continue reading Giving Caregivers the Recognition They Deserve
Category: ALS
It’s the Season for Seasonal Affective Disorder
Now that daylight savings time has ended, the days are shorter, and before you know it, it’s nightfall. Has this affected your mood? Seasonal affective disorder (SAD), also known as seasonal depression, is a condition marked by a period of depression that occurs during the same season year after year. In most cases, that season… Continue reading It’s the Season for Seasonal Affective Disorder
What Patients Are Saying About Physical Therapy
Mobile. Active. Independent. How close are you or the patient in your life to those attributes? October is National Physical Therapy Month, which is designed the highlight the role of physical therapy (PT) in restoring and improving motion. According to the American Physical Therapy Association (APTA), the benefits can include enhanced quality of life as… Continue reading What Patients Are Saying About Physical Therapy
How’s Your HDL and LDL?
September is National Cholesterol Education Month, which means it’s a good time to find out your total cholesterol levels as well as your HDL (“good” cholesterol) and LDL (“bad” cholesterol) levels. Have you had them checked in the last five years? More than 102 million Americans have a total cholesterol level at or above 200… Continue reading How’s Your HDL and LDL?
PatientsLikeMe’s Catherine Brownstein, PhD, MPH, Wins “Young Investigator Award” from the 12th International Congress of Human Genetics
The spotlight is on PatientsLikeMe’s research team this week – and deservedly so. On Tuesday, Research Director Paul Wicks, PhD, was named “Humanitarian of the Year” and a TR35 Honoree by MIT Technology Review. Now, we are extremely proud to announce that PatientsLikeMe Research Scientist Catherine Brownstein, PhD, MPH, has won a Young Investigator Award… Continue reading PatientsLikeMe’s Catherine Brownstein, PhD, MPH, Wins “Young Investigator Award” from the 12th International Congress of Human Genetics
PatientsLikeMe’s Paul Wicks Ph.D. Named Humanitarian of the Year and TR35 Honoree by MIT Technology Review
CAMBRIDGE, MA–(Marketwire – Aug 23, 2011) – Today, PatientsLikeMe‘s Research Director, Paul Wicks Ph.D., was named a TR35 Honoree and spotlighted as Humanitarian of the Year by MIT Technology Review magazine, which profiled him in an in-depth article and video. The TR35 list recognizes the world’s top innovators under the age of 35, spanning medicine, energy, computing, communications,… Continue reading PatientsLikeMe’s Paul Wicks Ph.D. Named Humanitarian of the Year and TR35 Honoree by MIT Technology Review
I Will Not Be Quiet: An Interview with ALS Advocate Debra Quinn
Debra Quinn’s father, sister, aunt, grandmother and great aunt all passed away from ALS, and in 2009, she was diagnosed with ALS herself. This hereditary form of the disease is called familial ALS (fALS). After the loss of her younger sister in 2007, Debra decided that she could no longer stay silent.Today, she is “the… Continue reading I Will Not Be Quiet: An Interview with ALS Advocate Debra Quinn
PatientsLikeMe Refutes Published Clinical Trial
Congratulations to our R&D team here at PatientsLikeMe for its most recent paper published in Nature Biotechnology (“Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm”). The full paper has been made available by Nature so you can read the results and access all of the supplemental data and figures. Below are… Continue reading PatientsLikeMe Refutes Published Clinical Trial
PatientsLikeMe Calls All Patients With Any Condition to Join
Today, PatientsLikeMe announces its expansion in the following news release. ***** CAMBRIDGE, MA–(Marketwire – April 11, 2011) – Today, PatientsLikeMe (www.patientslikeme.com) announces the expansion of its platform and invites patients with any condition to join. The five-year-old free online health data-sharing website was previously only available to patients with 22 chronic conditions (including ALS, Parkinson’s disease, HIV,… Continue reading PatientsLikeMe Calls All Patients With Any Condition to Join
Patient Choices: How Open Are You Now?
At PatientsLikeMe, we have a Privacy Policy that explains what we do with the health data that patients like you share. But as many of you know, we also have an Openness Philosophy, which outlines what we believe are the substantial benefits of being open versus private about your condition. Here’s an excerpt: “Currently, most… Continue reading Patient Choices: How Open Are You Now?