Can facing your fears help you come to terms with them? That’s the idea behind a recent discussion in our multiple sclerosis (MS) forum, in which one member asked, “What part of MS are you most afraid of?” The answers poured in from dozens of MS members who found it cathartic to reveal their true… Continue reading What Part of MS Are You Most Afraid of?
Category: Multiple Sclerosis
Marcia Hirst: Don’t Let Multiple Sclerosis Take the Joy Out of Your Life
“The benefit of sharing on PatientsLikeMe is the support. For me, it doesn’t matter what I’m going through, there are people there that understand. They’re not judgmental. They get it. They’re there too. I get lots of emotional moral support.” – Multiple Sclerosis Patient Marcia Back in June, we shared with you a video interview… Continue reading Marcia Hirst: Don’t Let Multiple Sclerosis Take the Joy Out of Your Life
PatientsLikeMe Researchers Score a Hat Trick
The term “hat trick” originated in 1858 after English cricketer HH Stephenson successfully bowled out three batsmen with consecutive bowls and he was presented with a hat to commemorate his feat. In June, PatientsLikeMe’s research team scored a hat trick of our own by publishing three new studies in scientific journals in just four days,… Continue reading PatientsLikeMe Researchers Score a Hat Trick
The Importance of Open Access: An Interview with Patient Advocate Graham Steel
A native of Glasgow, Scotland, Graham Steel is a longtime “Guest Researcher Member” of PatientsLikeMe. Following the death of his brother Richard at the age of 33 from a rare condition known as variant Creutzfeldt-Jakob Disease (vCJD), Graham became involved in patient advocacy work, and most recently, in lobbying for open access to published scientific… Continue reading The Importance of Open Access: An Interview with Patient Advocate Graham Steel
Today’s Photo: Walking Warriors for MS
As we get deeper into summer, there are disease-related walk/run events happening almost every weekend. What they all share is an opportunity for patients, friends and family to come together in solidarity and raise money for research and patient services. For inspiration, please meet multiple sclerosis (MS) patient barneyhouse and her “Walking Warriors,” who took… Continue reading Today’s Photo: Walking Warriors for MS
Surviving Multiple Sclerosis (MS)
It’s Men’s Health Week, and we’re featuring the perspectives of – you guessed it – men. Following tiredoftired’s guest post about depression on Monday, we are pleased to present this poignant essay by longtime PatientsLikeMe member and mentor Rick N, who has lived with multiple sclerosis (MS) for 23 years. I am a 58-year-old man… Continue reading Surviving Multiple Sclerosis (MS)
Someone Like Me
We are pleased to present a guest post by PatientsLikeMe member Jasmine (Jazz1982), who was diagnosed with multiple sclerosis (MS) in her mid-twenties. Don’t miss this beautiful essay about the commonalities between all patients who have lost functionality – regardless of how different their conditions might seem. I recently met someone that happened to be just like… Continue reading Someone Like Me
Women’s Health Week: “It’s Your Time”
Ladies, we know your lives get busy. So why not pull out your calendar or smartphone right now and see if you’re due for a visit to your health care providers? You’ll be doing your part for National Women’s Checkup Day (observed today, Monday, May 14th), an annual event that’s part of National Women’s Health… Continue reading Women’s Health Week: “It’s Your Time”
A Day in the Life of PatientsLikeMe Research Scientist Timothy Vaughan
What’s it like to work at PatientsLikeMe? We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features employees from different departments. So far, we’ve interviewed User Experience Engineer Cris Necochea, Research Assistant Shivani Bhargava and Office Manager Alison Dutton. Today we hear from Research Scientist Timothy Vaughan,… Continue reading A Day in the Life of PatientsLikeMe Research Scientist Timothy Vaughan
Today’s Photo: A Celebration of Solidarity
The weather is warming up, and calendars are filling up. That means it’s time to starting thinking about spring walk/run events for your health condition! For inspiration, please meet multiple sclerosis patient NewLife (center), who led a PatientsLikeMeInMotion-sponsored team at Walk MS in St. Louis, Missouri. Including a monetary donation from PatientsLikeMe, NewLife and her… Continue reading Today’s Photo: A Celebration of Solidarity