From legality to availability, recreational use and potential use as treatment, marijuana is a hot topic. In the MS forum, members are talking about marijuana and its potential to relieve symptoms of MS like pain, tremor and spasticity. We wanted to know more, so we asked our Health Data Integrity team to take a look… Continue reading Marijuana and MS: Get the scoop
Category: Multiple Sclerosis
How to be your best health advocate
PatientsLikeMe is pleased to announce a new collaboration with Cathy Chester, a wife, mother, advocate and the voice behind her blog, “An Empowered Spirit: Living a Healthy and Vibrant Life After 50.” You might’ve already seen Cathy’s #MoreThan story about her diagnosis and how she’s much more than MS. Here, Cathy dives into the importance of being your… Continue reading How to be your best health advocate
MS and Biotin: Is there a link?
You’ve probably heard about biotin and reports that it might improve health. Like most things on the internet, the truth isn’t always clear. To clear up some of the swirl, our Health Data Integrity team took a deep dive into the current research. So, what’s biotin and how can it impact health and MS? Take… Continue reading MS and Biotin: Is there a link?
MS and Bowel Incontinence
More than 14,000 members living with MS report bowel problems (difficulty in passing feces including constipation, bowel incontinence [loss of bowel control], and diarrhea). So, what’s the deal with bowel incontinence and MS? What can you do to manage symptoms? We checked in with Meaghan Zisk, RN MPH, a nurse and Health Data and Patient… Continue reading MS and Bowel Incontinence
Ocrevus: You asked, we answered
Last month, we asked the MS community to share their questions about Ocrevus. Now, PatientsLikeMe’s Maria Lowe, Pharm.D., BCPS, sheds more light on what it is, how it works and what patients need to know. Maria’s rundown is meant to give you more context so you can have better conversations with your care team –… Continue reading Ocrevus: You asked, we answered
“Everyone needs a “Me too!” moment” – Member Shannon on exposing her truth
“With every part of me that becomes less than what it used to be, a different part of me usually becomes more than what it used to be. In fact, maybe that’s the point, but it doesn’t make it any less difficult.” Shannon (Sna2164) is a wife, mother, animal lover and writer, living in southern California. She was officially… Continue reading “Everyone needs a “Me too!” moment” – Member Shannon on exposing her truth
#MoreThan multiple sclerosis: Guest blogger Cathy Chester’s journey as a writer, mom, advocate and optimist
As part of our ongoing #MoreThan series, we’re continuing to highlight patients’ stories of all the ways they’re more than their diagnoses. Here, Cathy Chester – blogger, wife, mother and advocate – shares her diagnosis story and how she’s much more than MS. When I was in my 20s I was thrilled to work for… Continue reading #MoreThan multiple sclerosis: Guest blogger Cathy Chester’s journey as a writer, mom, advocate and optimist
Going global for World MS Day
It’s World MS Day and this year we checked in with the global MS community to see how members around the world are living with MS. Here’s what they had to say: “MS is very rare in India. I’m from North India, known as Kashmir, a very beautiful place and it’s rightly known as… Continue reading Going global for World MS Day
“There were so many people asking the things that I was too afraid to ask”
It’s the 10-year anniversary of the MS community, and we’re sharing a story from one of our members, Jackie (OldSalt). Jackie was diagnosed with relapsing-remitting multiple sclerosis (RRMS) in 2007 and more recently, her condition transitioned to secondary progressive MS (SPMS). She found PatientsLikeMe in 2008 and believes that being part of the site over… Continue reading “There were so many people asking the things that I was too afraid to ask”
Going the distance for MS awareness
Meet Cheryl (CherylRunner), a marathoner living with MS. Since it’s MS Awareness Month, we sat down to chat with her about what she’s doing to raise awareness: running 7 marathons on 7 continents in a 12-month span. So far under her belt are South Africa, Argentina, Hawaii, Antarctica and Japan, and now she prepares to… Continue reading Going the distance for MS awareness