When you’re diagnosed with an illness, there are many unknowns ahead. For example, what’s the best future possible for you? At PatientsLikeMe, we believe that no one should have to face these questions alone. Like today’s patients, today’s youth are also facing uncertainties. With the world economy remaining in a precarious state, it can be… Continue reading Daring and Dreaming
Category: Organ Transplants
A Peek at Our June Newsletter for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our June edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up… Continue reading A Peek at Our June Newsletter for Members
PatientsLikeMe “Express Yourself” Video Contest: Cast Your Vote!
The submissions are in and it’s now time for you to decide the winners of the first-ever PatientsLikeMe Video Contest! We asked “How has PatientsLikeMe changed your life?” and our members have worked long and hard to prepare their answers in these memorable videos. Take a look and vote for your favorite! PATIENTSLIKEME VIDEO CONTEST – VOTE HERE There… Continue reading PatientsLikeMe “Express Yourself” Video Contest: Cast Your Vote!
Join the Band: Raising Our Voices for Lupus Awareness
“I was diagnosed with lupus (SLE) at age 20 and had already lost about 60% of my kidney function. I had chemotherapy for nine months along with intense steroid therapy. I thankfully went into remission and have been since four months after my diagnosis. I still struggle with fatigue and kidney problems although I was… Continue reading Join the Band: Raising Our Voices for Lupus Awareness
One for All (Video): The Road Ahead at PatientsLikeMe
“We’re just getting started on a long road to really impact your individual disease and your quality of life…” Each week this month, we’ll be posting a video interview with a member of the PatientsLikeMe executive team. You’ll hear from Ben Heywood, Jamie Heywood, David S. Williams and Paul Wicks, Ph.D. about what the recent… Continue reading One for All (Video): The Road Ahead at PatientsLikeMe
PatientsLikeMeOnCall™: “A Look Ahead” at Openness in Healthcare (Episode 4)
“I think we can see there are a lot of ways where openness can be powerful. What’s necessary is to help facilitate openness and reduce the barriers to sharing medical information.” – Ben Heywood PatientsLikeMe Co-Founder Ben Heywood has blogged previously about openness and sharing – and how important they are for patients. In this… Continue reading PatientsLikeMeOnCall™: “A Look Ahead” at Openness in Healthcare (Episode 4)
PatientsLikeMe Calls All Patients With Any Condition to Join
Today, PatientsLikeMe announces its expansion in the following news release. (You can click on the image on the right to see a visualization of real-time profile views on PatientsLikeMe.) ***** CAMBRIDGE, MA–(Marketwire – April 11, 2011) – Today, PatientsLikeMe (www.patientslikeme.com) announces the expansion of its platform and invites patients with any condition to join. The five-year-old… Continue reading PatientsLikeMe Calls All Patients With Any Condition to Join
What Kind of Scars Do You Have?
A recent search of the PatientsLikeMe forum reveals that there are thousands of posts that mention the word “scar.” Looking closer, you’ll see that there are discussions of physical scars – for example, from certain procedures or diseases – as well emotional scars. One moving thread – entitled “A letter to help others understand you… Continue reading What Kind of Scars Do You Have?
Tell the World: The PatientsLikeMe “Express Yourself” Video Contest
It’s time to dust off your home video skills! We are excited to announce the first-ever PatientsLikeMe “Express Yourself” Video Contest. Every day, patients like you are sharing your health data and experiences at PatientsLikeMe in order to take control of your health and help others. Now we are inviting you to create a video… Continue reading Tell the World: The PatientsLikeMe “Express Yourself” Video Contest
PatientsLikeMeOnCall™: “A Look Ahead” at Patient Safety (Episode 3)
“What are the things that affect a patient’s safety? It’s everything – it’s not just whether the drug is good or bad, it’s the whole process.” –Jamie Heywood Why does the healthcare industry need to shift from drug safety to patient safety? PatientsLikeMe Co-Founder and Chairman Jamie Heywood explains his view in this week’s edition of… Continue reading PatientsLikeMeOnCall™: “A Look Ahead” at Patient Safety (Episode 3)