Please meet ALS patient alsgirl (front and center in the wheelchair), who led a PatientsLikeMeInMotion-sponsored team at the 2011 Walk to Defeat ALS in Dallas, Texas. A longtime PatientsLikeMe member who is part of the ALS Public Registry, alsgirl has been living with this degenerative disorder – also known as Lou Gehrig’s disease – for… Continue reading Today’s Photo: Texans in Motion for ALS
Category: Conditions
Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.
Our Patients’ Hopes, Thoughts and Resolutions for 2012
Many people look at a new year as a fresh start – a chance to begin new routines, eliminate bad habits and shift priorities. But not everyone believes in making resolutions. Here are several different patient perspectives on approaching the new year: “In 2012, I will make daily exercise a priority. Research reveals it is the… Continue reading Our Patients’ Hopes, Thoughts and Resolutions for 2012
Today’s Photo: A Sea of Bright Blue in Motion
Please meet ALS patient iceberg (front right), who led a PatientsLikeMeInMotion-sponsored team at the 2011 Walk to Defeat ALS in Western Pennsylvania. We count at least 25 bright blue PatientsLikeMeInMotion t-shirts worn by the team (called “Hrezo’s Heroes”), making this one of the biggest groups we’ve sponsored! Congrats to iceberg and all of our PatientsLikeMeInMotion-sponsored… Continue reading Today’s Photo: A Sea of Bright Blue in Motion
Holidays Wishes from PatientsLikeMe to You
The holidays are a time for thinking about everything you hope and wish for in the coming year. They’re also a time for appreciating everything you already have. As our season’s greetings to you, we wanted to share a wish expressed by each member of our management team. “I wish for every patient and family… Continue reading Holidays Wishes from PatientsLikeMe to You
Open Access for All: PatientsLikeMe’s Epilepsy Survey Results Now Published
Last April, we had the honor of presenting the results of our epilepsy survey at the American Academy of Neurology (AAN) Annual Meeting. In some of the key takeaways, we shared that 55% of respondents consider PatientsLikeMe “moderately or very” helpful in learning about the type of seizures they experience. 45% found it useful for… Continue reading Open Access for All: PatientsLikeMe’s Epilepsy Survey Results Now Published
A Peek at the December Newsletters for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our December edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to… Continue reading A Peek at the December Newsletters for Members
Living with ALS: What We’ve Learned
Yesterday, our interview with ALS blogger and three-star member Rachael gave you a glimpse into what it’s like to live with ALS (Lou Gehrig’s disease). Today we take a closer look using the data and experiences shared by our 4,844 ALS members, who comprise the world’s largest online ALS population. ALS, which stands for amyotrophic… Continue reading Living with ALS: What We’ve Learned
Spotlighted Blogger: ALS Patient Rachael of “Notes to Self”
Welcome to the third installment of our new blog series featuring patient bloggers. Last week, we introduced you to Parkinson’s blogger Steve, and today, we’d like you to meet Rachael, a three-star member who has been a part of PatientsLikeMe’s flagship ALS community since the very beginning. In fact, she joined PatientsLikeMe in May 2006,… Continue reading Spotlighted Blogger: ALS Patient Rachael of “Notes to Self”
Coping with Holiday Stress and Blues
It’s the most wonderful time of the year. Or is it? The holidays can be a time of merriment and joy marked by festive parties and family reunions. But they can also be quite challenging. Despite the great cheer advertised everywhere you look, some people find themselves struggling with stress, anxiety, loneliness and/or depression. This… Continue reading Coping with Holiday Stress and Blues
Life with Parkinson’s Disease: What We’ve Learned
On Tuesday, our interview with blogger Steve Ploussard of “Attitude & Fitness Wins” revealed how one person is managing his Parkinson’s disease (PD). Today we take a closer look at this progressive neurological condition using the data and experiences shared by our 5,920 PD members. Taking a look at the makeup of our PD community,… Continue reading Life with Parkinson’s Disease: What We’ve Learned