Last April, we had the honor of presenting the results of our epilepsy survey at the American Academy of Neurology (AAN) Annual Meeting. In some of the key takeaways, we shared that 55% of respondents consider PatientsLikeMe “moderately or very” helpful in learning about the type of seizures they experience. 45% found it useful for… Continue reading Open Access for All: PatientsLikeMe’s Epilepsy Survey Results Now Published
Category: Conditions
Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.
A Peek at the December Newsletters for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our December edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to… Continue reading A Peek at the December Newsletters for Members
Living with ALS: What We’ve Learned
Yesterday, our interview with ALS blogger and three-star member Rachael gave you a glimpse into what it’s like to live with ALS (Lou Gehrig’s disease). Today we take a closer look using the data and experiences shared by our 4,844 ALS members, who comprise the world’s largest online ALS population. ALS, which stands for amyotrophic… Continue reading Living with ALS: What We’ve Learned
Spotlighted Blogger: ALS Patient Rachael of “Notes to Self”
Welcome to the third installment of our new blog series featuring patient bloggers. Last week, we introduced you to Parkinson’s blogger Steve, and today, we’d like you to meet Rachael, a three-star member who has been a part of PatientsLikeMe’s flagship ALS community since the very beginning. In fact, she joined PatientsLikeMe in May 2006,… Continue reading Spotlighted Blogger: ALS Patient Rachael of “Notes to Self”
Coping with Holiday Stress and Blues
It’s the most wonderful time of the year. Or is it? The holidays can be a time of merriment and joy marked by festive parties and family reunions. But they can also be quite challenging. Despite the great cheer advertised everywhere you look, some people find themselves struggling with stress, anxiety, loneliness and/or depression. This… Continue reading Coping with Holiday Stress and Blues
Life with Parkinson’s Disease: What We’ve Learned
On Tuesday, our interview with blogger Steve Ploussard of “Attitude & Fitness Wins” revealed how one person is managing his Parkinson’s disease (PD). Today we take a closer look at this progressive neurological condition using the data and experiences shared by our 5,920 PD members. Taking a look at the makeup of our PD community,… Continue reading Life with Parkinson’s Disease: What We’ve Learned
Spotlighted Blogger: Parkinson’s Patient Steve Ploussard of “Attitude & Fitness Wins”
Last week we kicked off a new blog series featuring patient bloggers, and today, we’re pleased to present our second installment. Please meet Steve Ploussard, a longtime PatientsLikeMe member who writes a blog about living with Parkinson’s disease (PD) called “Attitude & Fitness Wins.” Steve decided that blogging was the perfect way to “come out”… Continue reading Spotlighted Blogger: Parkinson’s Patient Steve Ploussard of “Attitude & Fitness Wins”
Today’s Photo: Mama in Motion
Please meet multiple sclerosis (MS) patient hotmama08, who led a PatientsLikeMeInMotion-sponsored team that included two four-legged advocates at Walk MS in Columbia, SC, on May 14, 2011. We especially love how the team member to the right wore bright blue shoes to match her PatientsLikeMeInMotion t-shirt! Congrats to hotmama08 and all of our PatientsLikeMeInMotion-sponsored teams… Continue reading Today’s Photo: Mama in Motion
Life with Bipolar I Disorder: What We’ve Learned
Yesterday, our interview with bipolar blogger Andrea gave you a glimpse into what it’s like to live with bipolar I disorder. Today we take a deeper look into this mental health condition using the data and experiences shared by our 1,237 bipolar I members. First off, however, you may have heard of something called bipolar… Continue reading Life with Bipolar I Disorder: What We’ve Learned
Spotlighted Blogger: Bipolar patient Andrea of “Lithium and Lamictal”
How do we know we’re truly living in a Health 2.0 age? Recently, we’ve discovered that a number of PatientsLikeMe members have fascinating blogs chronicling what it’s like to live with their respective health conditions. For example, we told you in August about the acclaimed gastroparesis blog “My Broken Stomach,” written by one of our… Continue reading Spotlighted Blogger: Bipolar patient Andrea of “Lithium and Lamictal”