In August, we proudly announced that PatientsLikeMe Research Scientist Catherine Brownstein, PhD, MPH, had won a prestigious “Young Investigator Award” from the International Congress for Human Genetics (ICHG). As promised, here is Catherine’s first-person report from the conference, held October 11-15, 2011, in Montreal. *********************************************************** The 12th International Congress for Human Genetics (ICHG) was a… Continue reading Moving Genetic Data Discovery Forward
Category: Conditions
Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.
Reflecting on National Disability Employment Awareness Month
Have your health conditions ever caused you to lose a job? Or prevented you from applying – or getting hired – in the first place? October is National Disability Employment Awareness Month, an event that aims to recognize the skills that those with disabilities bring to the workforce and promote employment opportunities and access for… Continue reading Reflecting on National Disability Employment Awareness Month
Photo of the Week: Angels in Motion
Please meet ALS patient sillyangel, who led a PatientsLikeMeInMotion-sponsored team at the Walk to Defeat ALS in Des Moines, Iowa, on October 8, 2011. As you’ll see, she proudly wore her bright blue PatientsLikeMeInMotion t-shirt to stand out in the crowd. Congrats to sillyangel and all of our PatientsLikeMeInMotion-sponsored teams for your efforts to raise… Continue reading Photo of the Week: Angels in Motion
Creating Wheelchair Awareness Through Photos
For someone who uses a wheelchair, there are barriers and hazards everywhere – things that others may not see. But how do you raise visibility of the issue? One of our longtime MS members, gamma, decided that a photo essay of the obstacles that exist in her neighborhood (considered a wheelchair-friendly community) and others would… Continue reading Creating Wheelchair Awareness Through Photos
What Patients Are Saying About Physical Therapy
Mobile. Active. Independent. How close are you or the patient in your life to those attributes? October is National Physical Therapy Month, which is designed the highlight the role of physical therapy (PT) in restoring and improving motion. According to the American Physical Therapy Association (APTA), the benefits can include enhanced quality of life as… Continue reading What Patients Are Saying About Physical Therapy
Photo of the Week: Little People in Motion
Please meet the youngest supporters of MS member Not Awake, who led a PatientsLikeMeInMotion-sponsored team at a Walk MS event in Springfield, Missouri, this spring. Although our bright blue t-shirts are offered in adult sizes only, you’ll see that this young fellow was able to wear a creatively adapted version nonetheless. Congrats to Not Awake… Continue reading Photo of the Week: Little People in Motion
Tell the World: Visiting the Comal County Parkinson’s Support Group Symposium
I recently had a chance to speak about PatientsLikeMe at the 3rd Annual Comal County Parkinson’s Support Group Symposium, held in New Braunfels, Texas, on Saturday October 1, 2011. Both the event and the support group were started by one of our longtime members, daddytom, who’s been part of PatientsLikeMe since 2007. As daddytom said: “In… Continue reading Tell the World: Visiting the Comal County Parkinson’s Support Group Symposium
Get Healthy for Good: An Interview with Catie Coman of the National Psoriasis Foundation
In August, we recognized Psoriasis Awareness Month on our blog and shared some facts and figures about this autoimmune disease, which affects 7.5 million Americans. One of the statistics we shared is that psoriasis often occurs in conjunction with other serious health conditions, including diabetes, hypertension, heart attack and obesity. What these conditions share is… Continue reading Get Healthy for Good: An Interview with Catie Coman of the National Psoriasis Foundation
Mental Illness Awareness Week: Stigmas, Stereotypes and Sharing
On Tuesday, we recognized Mental Illness Awareness Week (October 2-8) by sharing some of our mental health members’ vivid descriptions of what depression feels like. Today, we’ve taken a look at what else our members are sharing – or not sharing – about more than a dozen mental health conditions at PatientsLikeMe. On the site,… Continue reading Mental Illness Awareness Week: Stigmas, Stereotypes and Sharing
Mental Illness Awareness Week: What Does Depression Feel Like?
Since 1990, the first week of October has been recognized as National Mental Illness Awareness Week by the U.S. Congress. Under the leadership of the National Alliance on Mental Illness (NAMI), mental health advocates across the country are joining together this week to sponsor numerous awareness-raising activities based on the theme of “Changing Attitudes, Changing… Continue reading Mental Illness Awareness Week: What Does Depression Feel Like?