I recently had a chance to speak about PatientsLikeMe at the 3rd Annual Comal County Parkinson’s Support Group Symposium, held in New Braunfels, Texas, on Saturday October 1, 2011. Both the event and the support group were started by one of our longtime members, daddytom, who’s been part of PatientsLikeMe since 2007. As daddytom said: “In… Continue reading Tell the World: Visiting the Comal County Parkinson’s Support Group Symposium
Category: Conditions
Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.
Get Healthy for Good: An Interview with Catie Coman of the National Psoriasis Foundation
In August, we recognized Psoriasis Awareness Month on our blog and shared some facts and figures about this autoimmune disease, which affects 7.5 million Americans. One of the statistics we shared is that psoriasis often occurs in conjunction with other serious health conditions, including diabetes, hypertension, heart attack and obesity. What these conditions share is… Continue reading Get Healthy for Good: An Interview with Catie Coman of the National Psoriasis Foundation
Mental Illness Awareness Week: Stigmas, Stereotypes and Sharing
On Tuesday, we recognized Mental Illness Awareness Week (October 2-8) by sharing some of our mental health members’ vivid descriptions of what depression feels like. Today, we’ve taken a look at what else our members are sharing – or not sharing – about more than a dozen mental health conditions at PatientsLikeMe. On the site,… Continue reading Mental Illness Awareness Week: Stigmas, Stereotypes and Sharing
Mental Illness Awareness Week: What Does Depression Feel Like?
Since 1990, the first week of October has been recognized as National Mental Illness Awareness Week by the U.S. Congress. Under the leadership of the National Alliance on Mental Illness (NAMI), mental health advocates across the country are joining together this week to sponsor numerous awareness-raising activities based on the theme of “Changing Attitudes, Changing… Continue reading Mental Illness Awareness Week: What Does Depression Feel Like?
“A Mile and a Candle” for World MSA Day
Today, October 3rd, is World MSA Day. MSA stands for multiple system atrophy, a degenerative neurological disorder that causes symptoms similar to Parkinson’s disease. As a result, it is included in a group of diseases called “Parkinson-plus syndromes,” which have the classical symptoms of Parkinson’s (such as tremor and stiffness) as well as additional physical… Continue reading “A Mile and a Candle” for World MSA Day
How’s Your HDL and LDL?
September is National Cholesterol Education Month, which means it’s a good time to find out your total cholesterol levels as well as your HDL (“good” cholesterol) and LDL (“bad” cholesterol) levels. Have you had them checked in the last five years? More than 102 million Americans have a total cholesterol level at or above 200… Continue reading How’s Your HDL and LDL?
See the PatientsLikeMeInMotion Program in Action
We’ve shared a lot of great photos on the blog lately of run/walk teams sponsored by PatientsLikeMeInMotion this year. Now you can learn more about this dynamic program in a more dynamic format with our new PatientsLikeInMotion video. Find out how to get involved, what sponsorship entails and how much PatientsLikeMe has donated towards our sponsored… Continue reading See the PatientsLikeMeInMotion Program in Action
TWO OUT OF THREE PATIENTS REPORT DISCONTINUING TYSABRI WITHOUT DOCTORS’ ADVICE
FOR IMMEDIATE RELEASE TWO OUT OF THREE PATIENTS REPORT DISCONTINUING TYSABRI WITHOUT DOCTORS’ ADVICE PatientsLikeMe Releases First in Series of Reports on Real-World Patient Experiences with Top Multiple Sclerosis Drugs CAMBRIDGE, Mass. — September 22, 2011 — In the first report of a series on Multiple Sclerosis (MS) disease modifying therapies(DMTs), PatientsLikeMe reveals that nearly two-thirds (64%)… Continue reading TWO OUT OF THREE PATIENTS REPORT DISCONTINUING TYSABRI WITHOUT DOCTORS’ ADVICE
Do You Know Someone with Dementia?
Today, September 21st, is World Alzheimer’s Day. For this annual event, Alzheimer’s associations around the globe are coming together to raise awareness about Alzheimer’s disease, which affects an estimated 36 million people worldwide. This degenerative brain syndrome impacts memory, thinking, behavior and emotion. Eventually, those affected require assistance with all aspects of daily life. The… Continue reading Do You Know Someone with Dementia?
Photo of the Week: Hamming It Up for MS Awareness
Sometimes you have to hog the spotlight to bring attention to your condition – in this case, multiple sclerosis. Please meet PatientsLikeMeInMotion team leader Pjohns, who was supported by family and friends as well as “Hammy Hog,” the mascot of the Rockford Icehogs hockey team, at a 2011 Walk MS event in Northwest Illinois. Congrats… Continue reading Photo of the Week: Hamming It Up for MS Awareness