Meet Cidney, a PatientsLikeMe member with Parkinson’s disease who recently took part in RAGBRAI (The Register’s Annual Great Bicycle Ride Across Iowa). Started in 1973, this annual seven-day bicycle ride is the oldest, largest and longest event of its kind. Here’s what Cidney, who lives in Las Vegas, Nevada, says about her experience: “Well I… Continue reading Photo of the Week: Pedaling for Parkinson’s
Category: Conditions
Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.
PatientsLikeMe’s Paul Wicks Ph.D. Named Humanitarian of the Year and TR35 Honoree by MIT Technology Review
CAMBRIDGE, MA–(Marketwire – Aug 23, 2011) – Today, PatientsLikeMe‘s Research Director, Paul Wicks Ph.D., was named a TR35 Honoree and spotlighted as Humanitarian of the Year by MIT Technology Review magazine, which profiled him in an in-depth article and video. The TR35 list recognizes the world’s top innovators under the age of 35, spanning medicine, energy, computing, communications,… Continue reading PatientsLikeMe’s Paul Wicks Ph.D. Named Humanitarian of the Year and TR35 Honoree by MIT Technology Review
What Do You Know About Psoriasis?
Last week, we told you about the Spotlight on Psoriasis and Psoriatic Arthritis Online Film Festival and how you could participate. But for those of you who don’t have psoriasis and don’t know much about it, we wanted to tell you a little more about this chronic condition as August is Psoriasis Awareness Month. An… Continue reading What Do You Know About Psoriasis?
ALS and Athleticism: What Have We Learned?
“Clinicians are used to seeing ALS patients who are or have been athletic. So is there a link, and if so, could exercise have a direct effect on the condition?”– BMJ Group Podcasts In 2010, PatientsLikeMe researchers collaborated with the University of Oxford Motor Neuron Disease (MND) Centre in the UK on a study about… Continue reading ALS and Athleticism: What Have We Learned?
I Will Not Be Quiet: An Interview with ALS Advocate Debra Quinn
Debra Quinn’s father, sister, aunt, grandmother and great aunt all passed away from ALS, and in 2009, she was diagnosed with ALS herself. This hereditary form of the disease is called familial ALS (fALS). After the loss of her younger sister in 2007, Debra decided that she could no longer stay silent.Today, she is “the… Continue reading I Will Not Be Quiet: An Interview with ALS Advocate Debra Quinn
Photo of the Week: Wheels in Motion
A number of our ALS and PLS members use wheelchairs, but that doesn’t keep them from participating in awareness walks sponsored by PatientsLikeMeInMotion. Please meet Power Mom, a grandmother of six who led a team at the Walk to Defeat ALS in Long Island, New York. Congrats to Power Mom and all of our sponsored teams… Continue reading Photo of the Week: Wheels in Motion
Spolighted Blogger: Mollee Sullivan of My Broken Stomach
Recently, it came to our attention that one of our members has an outstanding blog called My Broken Stomach, in which she chronicles her experiences with gastroparesis. We reached out to hear to learn a little more about her as well as how she’s managing her condition, which causes partial paralysis of the stomach. (As… Continue reading Spolighted Blogger: Mollee Sullivan of My Broken Stomach
PatientsLikeMeOnCall: Living with Type 1 Diabetes
Welcome to the third installment of our new weekly podcast series called “It’s Friday – Let’s Journal Club.” This week’s guest interview is with Sarah Taylor, a type 1 diabetes patient, registered nurse (RN) and friend of the company. Sarah stopped by PatientsLikeMe headquarters last Friday to talk about being diagnosed with type 1 diabetes… Continue reading PatientsLikeMeOnCall: Living with Type 1 Diabetes
Photo of the Week: All Ages in Motion
When our members organize a run/walk/bike team sponsored by PatientsLikeMeInMotion, it’s often a family affair involving multiple generations. Below is a great shot of member Hapeone along with her daughter at the 2011 National Alliance on Mental Illness (NAMI) Walk in Dallas, Texas. Congrats to Hapeone and all of our sponsored teams for your efforts… Continue reading Photo of the Week: All Ages in Motion
What Do You Know About Hepatitis?
Today, July 28th, marks the first official World Hepatitis Day sponsored by the World Health Organization (WHO) and the World Hepatitis Alliance (WHA). Hepatitis kills more than one million people each year, while millions more suffer acute sickness or long-term ill health. The goal of this new event is to raise awareness of this global… Continue reading What Do You Know About Hepatitis?