Getting back in the groove — 5 hacks + hints for routines that work

Even if you haven’t been a student for several years, back-to-school season feels like the time to get back into a routine. What’s involved in a good routine? And what are the potential health perks of a basic regimen? See what the research shows, and join PatientsLikeMe to swap ideas with other members in this forum chat. How… Continue reading Getting back in the groove — 5 hacks + hints for routines that work

“Breaking up” with a doctor after 14 years — Bernadette’s journey to better care

PatientsLikeMe member Bernadette (yellsea), who’s on the 2018 Team of Advisors, has been living with Parkinson’s disease (PD) since 2002. She recently filled us in about switching specialists after more than a decade with the same neurologist, and advocating for herself after enough “red flags” popped up in her interactions with that physician. Out with the… Continue reading “Breaking up” with a doctor after 14 years — Bernadette’s journey to better care

MS & Vertigo: How do you cope?

Ever have a sudden loss of balance or feel like the room is spinning? You’re not alone —it’s a popular topic in the forum, and vertigo might be to blame. See what other members have shared about their experience with this symptom and how they cope. What’s vertigo? Vertigo is the feeling that you, or the… Continue reading MS & Vertigo: How do you cope?

“This’ll make you feel better!î About Depression Advice from people who don’t have depression

Martha Mills, a writer for The Guardian, candidly wrote a piece called “’Just go for a run’: testing everyday advice for depression,” where she reviews tips that people unfamiliar with depression have offered her to “keep the blues away.” Check out her assessment of different kinds of advice, plus hear what the PatientsLikeMe community has said about mental health–related tips… Continue reading “This’ll make you feel better!î About Depression Advice from people who don’t have depression

“Not tonight”: How health conditions can affect your sex life + relationships

Personal (but important) question: How’s your sex life? Explore how your diagnosis (and symptoms and treatments) can impact your romantic relationships, see what members are saying about the topic on PatientsLikeMe — and learn what you can possibly do about love-life struggles. Intimacy, interrupted According to sexologists, people with a variety of health conditions can… Continue reading “Not tonight”: How health conditions can affect your sex life + relationships

MS constipation blues? See 12+ treatment options

Feeling “irregular” on the regular? Constipation is a common issue for people living with multiple sclerosis (MS), affecting as many as 40% of patients. Over 15,000 MS members on PatientsLikeMe report experiencing bowel problems and of those, about 47% have reported it as “moderate” or “severe” – take a look here. With help from our team of… Continue reading MS constipation blues? See 12+ treatment options

Let’s talk: Parkinson’s disease, speech changes + communication issues

Parkisnon's Speech

Parkinson’s disease can cause your voice to become raspy, quiet or unsteady, and motor symptoms can make writing and typing more difficult. Have you experienced communication issues like these? See what others have tried — from Lee Silverman Voice Treatment and voice-activated “smart” devices to (drumroll please…) singing classes. How PD can impact communication Parkinson’s… Continue reading Let’s talk: Parkinson’s disease, speech changes + communication issues

What’s New In Lupus Research & Treatments?

Keeping tabs on the latest info about lupus research is no easy task. So we’ve boiled down some highlights and trends in the world of lupus research and drug development — take a peek. Rising areas of research Stem cells – Initial studies have shown that mesenchymal stem cells (MSC) — a type of stem cell that lives in bone marrow, umbilical… Continue reading What’s New In Lupus Research & Treatments?

Epidiolex: First FDA-approved drug made from cannabis component (CBD)

In a historic move, the U.S. Food and Drug Administration (FDA) recently approved Epidiolex — an epilepsy medication made from purified cannabidiol (CBD), found in cannabis. Read all about it and what it could mean for the future of cannabis-based treatments. As background, see these other recent write-ups we’ve done on medical cannabis/marijuana and CBD. What is Epidiolex?… Continue reading Epidiolex: First FDA-approved drug made from cannabis component (CBD)

Zoodles! Let’s dish on lupus/food + swap recipes

zucchini pasta with shrimp and tomato on a plate. horizontal top view

If you’re living with lupus, have you found any particular foods that affect you and your condition — for better or worse? Member Jeanette (JeanetteA6872), a member of the 2018 Team of Advisors who’s living with systemic lupus erythematosus (SLE), shares which ingredients she tries to include or avoid in her diet, plus three of her favorite… Continue reading Zoodles! Let’s dish on lupus/food + swap recipes