Conditions Archives

Meet Jacquie from the PatientsLikeMe Team of Advisors

Say hello to Jacquie (@Jacquie1961), another member of the 2016-2017 Team of Advisors. We chatted with Jacquie recently about how she lives with her condition and what it meant to become part of this year’s Team of Advisors; “Joining the team is allowing me to…help others who are newly diagnosed or those who think they… Continue reading Meet Jacquie from the PatientsLikeMe Team of Advisors

Member JoeSixPack shares his experience with diabetes

Say hello to Peter (JoeSixPack), a father of three and member of the diabetes community. He was first diagnosed with type 2 diabetes in 1998 when he was 34 years old. In a recent interview, he told us about his life-long struggle with his weight, managing treatment, and how he found the motivation to lose… Continue reading Member JoeSixPack shares his experience with diabetes

Meet Glenda from the PatientsLikeMe Team of Advisors

Meet Glenda (gagafor2), a member of the 2016-2017 Team of Advisors. Glenda is a wife, mother and grandmother who finds great joy in making others happy. She’s also living with idiopathic pulmonary fibrosis (IPF). Recently, Glenda told us about coming to terms with the “unknown” in her future and coping with anxiety: “PatientsLikeMe became… Continue reading Meet Glenda from the PatientsLikeMe Team of Advisors

Another successful 24 Days of Giving!

That’s right – thanks to your awesome rallying, we reached our 24 Days of Giving goal again! Together, the PatientsLikeMe community donated a total of 428,459 health data points. We’ll be making a $25,000 donation to Make-A- Wish® Massachusetts and Rhode Island to help fund life-affirming wishes for seriously ill children. What did the community… Continue reading Another successful 24 Days of Giving!

Meet Laura from the PatientsLikeMe Team of Advisors

Say hello to Laura (thisdiva99), another member of your 2016-2017 Team of Advisors. Laura chatted with us about what it’s like to live with bipolar disorder and why she thinks it’s essential to find and connect with others who live with the same condition: “It is of the utmost importance to connect with other… Continue reading Meet Laura from the PatientsLikeMe Team of Advisors

Member Susan shares about life with type 2 diabetes

Meet Susan (sugarpolicewoman) from Montgomery, Alabama. She loves birds, flowers and kittens and was diagnosed with type 2 diabetes over 40 years ago. Check out her story to learn more about how she manages her condition while living in an assisted living facility. Can you tell us a little about yourself? What are your passions?… Continue reading Member Susan shares about life with type 2 diabetes

Meet John from the PatientsLikeMe Team of Advisors

Have you met John (JohnJFB126)? He’s another member of the 2016-2017 Team of Advisors. John is a musician, husband and father of four. He’s also living with MS. For John, living with an “invisible” disease is challenging, and he hopes for more compassion and understanding from others in the future. Here, John shares how he finds… Continue reading Meet John from the PatientsLikeMe Team of Advisors

The power of your data: Patient empowerment

We’re more than halfway through 24 Days of Giving and we’ve been sharing how patient data has the power to create better communities, better care and a better you. So, while we’re on the subject of you – let’s talk more about how patients see themselves as the captains of their own health when it… Continue reading The power of your data: Patient empowerment

PatientsLikeMe Co-Founders Jamie and Ben Heywood Win International Alliance of ALS/MND Associations 2016 Humanitarian Award

DUBLIN—December 8, 2016—A decade after their work sparked a revolution in patient empowerment and patient-centered medicine, PatientsLikeMe co-founders Jamie and Ben Heywood were awarded the 2016 Humanitarian Award by the International Alliance of ALS/MND Associations. Inaugurated in 2000, the Humanitarian Award recognizes and encourages contributions to the fight against Amyotrophic Lateral Sclerosis/Motor Neurone Disease (ALS/MND) and is awarded to those… Continue reading PatientsLikeMe Co-Founders Jamie and Ben Heywood Win International Alliance of ALS/MND Associations 2016 Humanitarian Award

Meet Jim from the PatientsLikeMe Team of Advisors

We recently announced the 2016-2017 Team of Advisors, and now we’ll be introducing each member so you can get to know them better as they kick off their year-long term. First up is Jim (jangrilah), a member of the MS community. Jim is a new grandfather, a husband and an international executive and leadership development… Continue reading Meet Jim from the PatientsLikeMe Team of Advisors