Your chronic health condition may steal your energy, but it shouldn’t rob you of family fun. Jeanette Alston-Watkins was diagnosed with lupus (SLE) when her kids were 11 and 14. Check out this Q&A about activities she enjoyed with them despite SLE. Try some of these with your children or grandchildren over the upcoming holiday… Continue reading Family activities with a health condition
Category: Conditions
Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.
Gift Guide: Gadgets for People with Health Conditions
Who needs another scarf or coffee mug? With the holiday shopping season upon us, PatientsLikeMe members are crowd-sourcing a list of handy products and tools that can actually help people living with pain, fatigue and other symptoms of chronic illness or aspects of aging. Check out the list below, for starters, and then join PatientsLikeMe or log in to… Continue reading Gift Guide: Gadgets for People with Health Conditions
Parkinson’s Freezing Triggers and Fall Prevention
Gait freezing and falls are common among people with Parkinson’s disease (PD). Take a closer look at patients’ experiences, common triggers of freezing and tips that may help prevent falls. What is known about freezing and falls? Researchers and movement experts have been studying gait freezing in people with PD for several decades. The exact… Continue reading Parkinson’s Freezing Triggers and Fall Prevention
Lupus Diagnosis and Lupus Self Test: Member Hetlena’s Pointers For Her Old (Newbie with SLE) Self
What would someone who has lived with lupus (SLE) for decades tell her younger, newly diagnosed self? PatientsLikeMe member Hetlena (@TheLupusLiar), who was diagnosed with lupus in 1993, recently answered that question for us in the following personal essay reflecting on what she’s learned through the years… Tips For A Newly Diagnosed SLE Patient “This… Continue reading Lupus Diagnosis and Lupus Self Test: Member Hetlena’s Pointers For Her Old (Newbie with SLE) Self
Ommm: People with cancer practice chair yoga for bone benefits
Chemotherapy and other cancer treatments can take a toll on your bones and overall strength, so some patients are turning to chair yoga to boost their bone health and balance. Things like bone health ‘seemed trivial compared to cancer’ We heard about chair yoga in this New York Times article, “Chair yoga for my funny bones.” The… Continue reading Ommm: People with cancer practice chair yoga for bone benefits
Spring Time Change (Spring Daylight Savings) and your Health
Do the spring/fall clock changes throw you off?
Parents with lupus (or any health condition) ‘don’t have to be perfect’ — take it from this mom
PatientsLikeMe member Jeanette Alston-Watkins (JeanetteA6872) was diagnosed with lupus in 2006, when her kids were 11 and 14. “My kids are my strength and they gave me energy and willpower,” she says in this Q&A about parenting with SLE. Can you share a bit about your diagnosis and how it impacted your children? They were… Continue reading Parents with lupus (or any health condition) ‘don’t have to be perfect’ — take it from this mom
Stem Cell Treatment For MS
Stem cell therapy is a popular topic in the MS forum and some members are already tracking and evaluating their experience. How does it work? Are there risks? To find answers to your stem cell therapy questions, we asked our team of in-house health professionals to take a look at the current research What are stem cells?… Continue reading Stem Cell Treatment For MS
Lupus Weight Gain: Q&A with the founder of Making Lupus Look Good
Alyshia Merchant knows first-hand how lupus can affect you inside and out. After her diagnosis in 2012 and struggles with visible symptoms and self-esteem, she launched an organization called Making Lupus Look Good, which provides wigs and “glam sessions” to people with lupus-related hair loss and other symptoms. The organization currently serves people in Alyshia’s home… Continue reading Lupus Weight Gain: Q&A with the founder of Making Lupus Look Good
5 Tips for Life After Lung Cancer Surgery
Your body just went through a significant afront, and returning to regular life at home after lung cancer surgery can be daunting. Hopefully, you have a support network in place to help you adjust. But, if you could use an extra hand on your back as you recover, we are here to remind you that… Continue reading 5 Tips for Life After Lung Cancer Surgery