This is it, the last report in our 5-part series of seasonal surveys focused on uncovering the experiences our psoriasis members. Like the seasons before it, this summer more than 300 psoriasis community members added their voices to research to help everyone understand what it’s like to live with the condition. Thanks to everyone who… Continue reading Uncovering psoriasis with patients like you
Category: Conditions
Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.
World Psoriasis Day – Global access to treatment
The international community is coming together today to raise awareness about psoriasis, and this year’s theme for World Psoriasis Day is ‘global access to treatment.’ The International Federation of Psoriasis Associations (IFPA) includes almost 50 member associations around world, including the National Psoriasis Foundation (NPF) right here in the U.S. They’re helping to spread the… Continue reading World Psoriasis Day – Global access to treatment
Canary in a Coal Mine- Raising awareness for myalgic encephalomyelitis
Everyday on PatientsLikeMe, people just like you are sharing their experiences, contributing to real-time research and raising awareness, together. Jen is part of your patient community and is living with myalgic encephalomyelitis (ME), sometimes called chronic fatigue syndrome. She’s working on a new project called Canary in a Coal Mine to help shed light on this largely… Continue reading Canary in a Coal Mine- Raising awareness for myalgic encephalomyelitis
Trying to put insomnia to rest – An interview on sleep with insomnia patient and PatientsLikeMe member Marcia
As part of our “Are You Sleeping?” initiative, we’re talking with different patients to learn what it’s like to live with a lack of sleep and how that impacts their health. Recently, we caught up with Marcia, a PatientsLikeMe MS community member (some of you might know her as gamma) and happy grandmother of 3… Continue reading Trying to put insomnia to rest – An interview on sleep with insomnia patient and PatientsLikeMe member Marcia
National Depression Screening Day and National Bipolar Awareness Day
As part of Mental Illness Awareness Week, today is both National Depression Screening Day and National Bipolar Awareness Day. It’s all part of a larger effort to raise awareness about the mental conditions that affect the lives of millions of people around the world. So what are the stats on depression?[1] Depression affects as many… Continue reading National Depression Screening Day and National Bipolar Awareness Day
Did you know it’s Mental Illness Awareness Week?
The U.S. Congress has recognized the week of October 6th as Mental Illness Awareness Week (MIAW), and if you or anyone you know is living with a mental health or neurological condition, it’s time to raise awareness and share your experiences. Serious mental illnesses cover a lot of different conditions (including depression, schizophrenia and bipolar… Continue reading Did you know it’s Mental Illness Awareness Week?
Restless Leg Syndrome/Willis-Ekbom Disease Awareness Day is on Monday
Did you know that PatientsLikeMe is located up in Boston? For us New Englanders, the end of September isn’t just about falling leaves and colder weather; it’s also about Restless Leg Syndrome (RLS) Awareness Day. On September 23rd, medical organizations all across the world will join together to raise awareness for this health condition, which affects… Continue reading Restless Leg Syndrome/Willis-Ekbom Disease Awareness Day is on Monday
Epilepsy “Rescue Medication” Survey results are in
PatientsLikeMe recently partnered with Acorda® Therapeutics to research how epilepsy patients respond to seizures using rescue medications, and we’re happy to announce that the results are in. Rescue meds are a type of medication used once a seizure starts to help end it faster or prevent further seizures. Has there been any 24-hour period in… Continue reading Epilepsy “Rescue Medication” Survey results are in
It’s Global Pulmonary Fibrosis Awareness Day!
Do you know someone with pulmonary fibrosis? Thanks to the Pulmonary Fibrosis Foundation, today – Sept 7th – is dedicated to raising awareness about this condition and sharing the stories of patients living with PF. It’s Global Pulmonary Fibrosis Awareness Day, and we want to do our part to help raise awareness of this lung condition. Pulmonary… Continue reading It’s Global Pulmonary Fibrosis Awareness Day!
PatientsLikeMe creates largest open registry of IPF patients in the world
Community One of Website’s Fastest Growing; Reveals Real-World Picture Of Daily Life With the Rare Lung Disease CAMBRIDGE, Mass.— August 22, 2013—In a few short months, PatientsLikeMe has created the largest open registry of idiopathic pulmonary fibrosis (IPF) patients online, and some of the most current patient-reported data on the disease. The information the community… Continue reading PatientsLikeMe creates largest open registry of IPF patients in the world