Ever wonder what your fellow members were up to on their sponsored walks and runs in various states across the country? Last week, PatientsLikeMe launched a Flickr page for the PatientsLikeMeInMotionTM program. Now you can see photos of members just like you in motion! We are excited to share the experience of sponsored teams and… Continue reading Flickr-ing PatientsLikeMeInMotionTM
Category: Parkinson’s Disease
It’s Official: Sharing Health Data Improves Outcomes
(Listen here to the PatientsLikeMeOnCallTM podcast on this topic) Last week the PatientsLikeMe R&D team published a study entitled “Sharing Health Data for Better Outcomes on PatientsLikeMe” in the Journal of Medical Internet Research (JMIR), the leading open access peer-reviewed journal on health care in the Internet age. The study aimed to find out direct… Continue reading It’s Official: Sharing Health Data Improves Outcomes
Know Thy Self – Measuring Your Quality of Life
Last Fall, PatientsLikeMe introduced our Quality of Life (QoL) tool which is displayed on the profiles of members in the HIV community. By answering a few questions, patients can see how HIV is impacting them – physically, socially and mentally. Today, this same QoL measure is used by thousands of patients across the HIV community… Continue reading Know Thy Self – Measuring Your Quality of Life
PatientsLikeMeInMotion at 2010 Parkinson’s Unity Walk
Last weekend, we headed to New York City in great anticipation of the 2010 Parkinson’s Unity Walk held each year in Central Park. We were excited once again to meet members of Team PatientsLikeMe, a group of patients who travel from across the country to meet one another and work tirelessly to raise money each… Continue reading PatientsLikeMeInMotion at 2010 Parkinson’s Unity Walk
Tell the World: Daddytom Shares His Experiences with Parkinson’s
To continue our series in honor of Parkinson’s Awareness Month, here’s another interview to bring you “the patient voice.” We recently featured this interview with three-star member daddytom in the April edition of our Parkinson’s Community newsletter. Read on to learn what he has to say about finding courage, recognizing mentors and raising awareness about… Continue reading Tell the World: Daddytom Shares His Experiences with Parkinson’s
Tell The World: Parkinson’s Patients are “In Motion”
The PatientsLikeMeInMotion sponsorship program has been a tremendous success so far this year! Sponsorship requests from members participating in nonprofit events are flying in by the second from all over the country. It’s exciting to see our members are as active offline as they are online about raising awareness of their condition. The PatientsLikeMeInMotion program… Continue reading Tell The World: Parkinson’s Patients are “In Motion”
Tell the World: Parkinson’s Patients Unite Online and Off
At PatientsLikeMe, thousands of patients are uniting online to share health data, find patients like them, and to learn from one another. Since this is Parkinson’s Awareness Month, we wanted to highlight an off-line event that also represents unity – aptly named the Unity Walk. The annual event, which takes place next weekend in New… Continue reading Tell the World: Parkinson’s Patients Unite Online and Off
2010 Parkinson’s Awareness Month: Interview with EnglishTutor
What better way to kick-off 2010 Parkinson’s Awareness Month than to bring you “the patient voice.” At PatientsLikeMe, we believe in getting to know the person, not just the “patient.” That’s why we interview patients each month in our newsletter to find out more about how they approach life. We recently featured englishtutor, a… Continue reading 2010 Parkinson’s Awareness Month: Interview with EnglishTutor
PatientsLikeMe – Out & About and OnCall
The PatientsLikeMe team has been traveling around the globe recently talking about the power of real-world patient data in changing healthcare. You may have heard about our executives at industry conferences, government hearings, or even on TV. Highlights below. Last month, PatientsLikeMe Co-founder and President Ben Heywood was on Fox Business News talking about how… Continue reading PatientsLikeMe – Out & About and OnCall
Where are the Cures? An interview with Myelin Repair Foundation
PatientsLikeMe partner, Myelin Repair Foundation (MRF), is a nonprofit organization devoted to reducing the time it takes to discover and develop treatments for multiple sclerosis (MS) patients. Recently, the MRF launched a campaign called “Where are the Cures?” – a site dedicated to a greater understanding of the barriers slowing the discovery and development of… Continue reading Where are the Cures? An interview with Myelin Repair Foundation