Last November, we shared our takeaways from TEDx Cambridge, a one-day event featuring 30+ speakers and lots of Ideas Worth Spreading (TED’s mission). The theme for this particular gathering was “Thrive.” How can we as individuals – and communities – not just survive but thrive? One of the speakers to take a crack at that… Continue reading Thriving Against Expectations: Ben Heywood’s Moving TEDx Cambridge Talk
Category: Rare Diseases
Our Patients’ Hopes, Thoughts and Resolutions for 2012
Many people look at a new year as a fresh start – a chance to begin new routines, eliminate bad habits and shift priorities. But not everyone believes in making resolutions. Here are several different patient perspectives on approaching the new year: “In 2012, I will make daily exercise a priority. Research reveals it is the… Continue reading Our Patients’ Hopes, Thoughts and Resolutions for 2012
Holidays Wishes from PatientsLikeMe to You
The holidays are a time for thinking about everything you hope and wish for in the coming year. They’re also a time for appreciating everything you already have. As our season’s greetings to you, we wanted to share a wish expressed by each member of our management team. “I wish for every patient and family… Continue reading Holidays Wishes from PatientsLikeMe to You
A Peek at the December Newsletters for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our December edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to… Continue reading A Peek at the December Newsletters for Members
Coping with Holiday Stress and Blues
It’s the most wonderful time of the year. Or is it? The holidays can be a time of merriment and joy marked by festive parties and family reunions. But they can also be quite challenging. Despite the great cheer advertised everywhere you look, some people find themselves struggling with stress, anxiety, loneliness and/or depression. This… Continue reading Coping with Holiday Stress and Blues
What Patients Are Thankful For
Thanksgiving is a time for remembering all the reasons you have to be grateful. For patients who face numerous health challenges, this can mean reminding yourself of all the things you have gained – not lost – since your diagnosis. One theme that we’re especially proud to hear our 120,000+ members express is how thankful… Continue reading What Patients Are Thankful For
Giving Caregivers the Recognition They Deserve
“The true strength of the American family finds its roots in an unwavering commitment to care for one another.” – President Barack Obama November is National Family Caregivers Month, “a time to thank, support, educate and empower family caregivers.” There are more than 65 million family caregivers in the US who day in and day… Continue reading Giving Caregivers the Recognition They Deserve
It’s the Season for Seasonal Affective Disorder
Now that daylight savings time has ended, the days are shorter, and before you know it, it’s nightfall. Has this affected your mood? Seasonal affective disorder (SAD), also known as seasonal depression, is a condition marked by a period of depression that occurs during the same season year after year. In most cases, that season… Continue reading It’s the Season for Seasonal Affective Disorder
PATIENTSLIKEME AND R.A.R.E PROJECT UNITE TO FIND AND CONNECT ONE MILLION RARE DISEASE PATIENTS
FOR IMMEDIATE RELEASE Nonprofit and “Not Just for Profit” Announce Collaboration at PartneringForCures Event NEW YORK, NY – November 7, 2011 – Today, PatientsLikeMe and R.A.R.E Project, a nonprofit advocacy and support group for patients with all rare diseases, announce a new partnership to find and connect 1 million rare disease patients to share and… Continue reading PATIENTSLIKEME AND R.A.R.E PROJECT UNITE TO FIND AND CONNECT ONE MILLION RARE DISEASE PATIENTS
Reflecting on National Disability Employment Awareness Month
Have your health conditions ever caused you to lose a job? Or prevented you from applying – or getting hired – in the first place? October is National Disability Employment Awareness Month, an event that aims to recognize the skills that those with disabilities bring to the workforce and promote employment opportunities and access for… Continue reading Reflecting on National Disability Employment Awareness Month