Stop! What do you know about multiple sclerosis (MS)? That’s the question we’re asking during MS Awareness Month. We’ve heard from many community members that people don’t always get what it’s like to live with MS, and that there’s wrong information out there. So as part of ongoing awareness efforts, we created shareable photos that… Continue reading Myths vs. facts about multiple sclerosis
Give veterans access to the care they need
By Peter Chiarelli, retired U.S. Army general & CEO of our partner One Mind As originally seen in the Washington Post Soldiers listen as U.S. Secretary of Defense Ash Carter (not pictured) holds a question-and-answer session with U.S.military personnel at Kandahar Airfield in Kandahar February 22, 2015. (Jonathan Ernst/Reuters) The high-grossing film “American Sniper” was… Continue reading Give veterans access to the care they need
PatientsLikeMe Appoints Ed Godber as First Executive Vice President of Life Sciences Ventures
Industry Leader to Head up Patient-Focused Initiatives for Life Sciences Customers CAMBRIDGE, MA., March 10, 2015— PatientsLikeMe today announced it has appointed Ed Godber as Executive Vice President of Life Sciences Ventures. In this newly created position, Ed is responsible for managing PatientsLikeMe’s life sciences business and bringing the patient agenda to the forefront of partners’… Continue reading PatientsLikeMe Appoints Ed Godber as First Executive Vice President of Life Sciences Ventures
“I am slowly building my self-esteem “ – PatientsLikeMe member SuperChick shares about her journey with PTSD
PatientsLikeMe member SuperChick is a veteran living with post traumatic stress disorder (PTSD), and her story is one of learning to cope with emotions and frustrations. She’s living proof that things can get better – she’s a loving mother of two, has a great husband and is managing several other mental health conditions. Below, she… Continue reading “I am slowly building my self-esteem “ – PatientsLikeMe member SuperChick shares about her journey with PTSD
Patients as Partners: Hallucinations and Parkinson’s disease questionnaire results
It’s time for another Patients as Partners post, and today, we’re happy to share the results of the Hallucinations and Parkinson’s disease questionnaire. In March 2014, more than 500 PatientsLikeMe members living with Parkinson’s disease (PD) took part in an Open Research Exchange (ORE) questionnaire about their condition. They worked with Dennis Chan and Ruth… Continue reading Patients as Partners: Hallucinations and Parkinson’s disease questionnaire results
PatientsLikeMe adds information about patient experiences with medications to Walgreens Pharmacy website
Newly-enhanced health dashboard now includes access to patient-reported data on side effects for 5000+ medications CAMBRIDGE, MA., February 18, 2015—PatientsLikeMe is working with Walgreens to help make it easier for people to understand how the medications they take may affect them. Now, anyone researching a medication or… Continue reading PatientsLikeMe adds information about patient experiences with medications to Walgreens Pharmacy website
“You can get better” – PatientsLikeMe member jeffperry1134 shares about his journey with PTSD
Many veterans are a part of the PTSD community on PatientsLikeMe, and recently, jeffperry1134 spoke about his everyday life after returning home from military service. In his interview, he touched upon his deployment to Somalia in the early 1990s, and how his memories of Africa cause daily symptoms like anxiety, hallucinations and nightmares. But despite… Continue reading “You can get better” – PatientsLikeMe member jeffperry1134 shares about his journey with PTSD
“The human spirit is more resilient than we think” – PatientsLikeMe member mmsan66 shares her journey with ALS
PatientsLikeMe member mmsan66 was diagnosed with ALS back in 2008, but she’s been fortunate to experience an unusually slow progression, which currently affects only her legs. As a college professor, financial planner and ALS advocate, she raises awareness through her work with the Massachusetts Chapter of the ALS Association. She even finds time to visit… Continue reading “The human spirit is more resilient than we think” – PatientsLikeMe member mmsan66 shares her journey with ALS
“Strength will come, somehow, from somewhere” – PatientsLikeMe member Glow4life shares her journey with lung cancer
PatientsLikeMe member Glow4life was diagnosed with lung cancer (adenocarcinoma) this past June, and her story is a testament to never losing hope. She recently shared her experiences in an interview, and she spared no details in describing her challenges. Despite her terminal diagnosis, four rounds of chemotherapy and the sudden loss of her husband, Glow4life… Continue reading “Strength will come, somehow, from somewhere” – PatientsLikeMe member Glow4life shares her journey with lung cancer
“I continue to be inspired by those who share this fight with me” – PatientsLikeMe member Doug shares his journey with HP
Meet Doug. He’s part of the pulmonary fibrosis (PF) community on PatientsLikeMe and is living with a condition specifically known as chronic hypersensitivity pneumonitis (HP). It’s similar to other types of PF, but also has its differences. We caught up with Doug for an interview to help spread the knowledge about these two conditions, but… Continue reading “I continue to be inspired by those who share this fight with me” – PatientsLikeMe member Doug shares his journey with HP