What changes when you or your loved one starts to rely on you more for help around the house? What happens in a relationship when the dynamic now has to accommodate being a caregiver? This is a hard change for anyone to go through, and for people with Friedreich’s Ataxia (FA) it is inevitable that… Continue reading When Your Partner Becomes Your Helper: Navigating Love and Caregiving With FA
‘No Manual For That’: Mental Health & FA
Note: This is a repost from Noah’s Blog. Please visit his fantastic site to read more about his journey! Throwback to a September night in Alabama. It’s hot and the stars are sparkling, but I wouldn’t have known. The roof had been the peak of my view all day. After hours of scrolling on my… Continue reading ‘No Manual For That’: Mental Health & FA
Traveling Overseas For the First Time Since Being Disabled
In this blog, Libby Frandsen shares her experience going overseas for the first time since become a wheelchair user! As someone with Friedreich’s Ataxia, there is a great deal of planning and many extra steps that go into travel. If you are interested in anything else Libby has shared about her life, be sure to… Continue reading Traveling Overseas For the First Time Since Being Disabled
How I Learned to Do Things Differently With FA
In this Q&A with PLM member and FA Ambassador Kelly Gregory, she shares how she has adapted to living with Friedreich’s Ataxia. As someone who heavily prioritizes movement and exercise in her life, FA has presented Kelly with a number of challenges. But she is no stranger to obstacles! If you are interested in any… Continue reading How I Learned to Do Things Differently With FA
Why We Need to Talk More About Women’s Heart Health
Heart disease is sometimes thought of as a “men’s health” issue, but cardiovascular disease is a major health concern for women, too. They may experience symptoms such as chest discomfort, shortness of breath, unusual fatigue, weakness, nausea, or other symptoms. And some women may not experience the classic symptoms associated with a heart attack at… Continue reading Why We Need to Talk More About Women’s Heart Health
My Fall FA Routine: Why Swimming Should Be Your Go-To
Exercise is an important piece of managing a condition like Friedreich’s Ataxia (FA). Regardless of your progression, staying active can and will increase your strength and flexibility, help with balance, coordination, and heart health! But what exercises are best to try? They are going to vary person to person. What works for some might not… Continue reading My Fall FA Routine: Why Swimming Should Be Your Go-To
The Human Brain is Two Separate Organs – New Research
A groundbreaking study done by Stanford Medicine has found that the brain is two separate organs adjacent to one another. Going against the prevailing belief that the brain is a single organ, this finding could change the way we treat diseases that affect the brain like ALS and Multiple Sclerosis (MS). But what exactly did… Continue reading The Human Brain is Two Separate Organs – New Research
Finding Your Footing After an FA Diagnosis
A new diagnosis of Friedreich’s ataxia (FA) can leave you with a long list of questions: What happens next? Which doctors do I need to see? What should I know about FA? What can I do to manage symptoms? And where can I find other people who understand what I’m going through? You do not… Continue reading Finding Your Footing After an FA Diagnosis
The Small Metabolic Health Changes Supporting Fertility Treatment
If you have had questions about fertility, or are curious what changes you can make to improve your fertility levels, look no further! Make no mistake, fertility is a complicated dance between human anatomy and chemistry. There are a lot of factors that can interfere with your ability to get pregnant. But fortunately, there are… Continue reading The Small Metabolic Health Changes Supporting Fertility Treatment
How Menopause Can Affect Ulcerative Colitis
Hot flashes and changes to your period consistency may be some of the first signs of menopause you notice. If you live with ulcerative colitis (UC), digestive changes can add another layer of uncertainty and discomfort. For some women, some menopause symptoms can overlap with UC, which makes it hard to tell whether the changes… Continue reading How Menopause Can Affect Ulcerative Colitis