A heart scare is a frightening event to go through. The concern about your health and your future is often too much for people to process all at once. While working with your doctor, you will likely need to address the healthy lifestyle changes you should make to reduce your chances of a future event.… Continue reading The Walking Routine People Actually Stick With After a Heart Health Scare
How Hormones, Pregnancy, and Menopause Can Affect Research Results
Our understanding of the human body and of medical conditions is driven by clinical studies. Studies that look at internal processes, how we react to treatments, and the potential side effects to be wary of. The first proper clinical trial was conducted all the way back in 1747! Since then, they have only improved and… Continue reading How Hormones, Pregnancy, and Menopause Can Affect Research Results
Managing Fatigue with Friedreich’s Ataxia: Tips For Daily Life
For normies, a full night of sleep means waking up refreshed, ready for the day, and as if your energy battery is at 100%. For people living with Friedreich’s ataxia (FA), it can feel different. PatientsLikeMe member, Tiffany, shares how the chronic fatigue she feels from her FA experience feels as if every morning after… Continue reading Managing Fatigue with Friedreich’s Ataxia: Tips For Daily Life
Realistic Self-Care Tips for Moms in the 4th Trimester
When you think of self-care, you might picture a massage, a quiet morning with coffee, or an uninterrupted yoga class. Then there’s life with a newborn. You’re running on broken sleep, trying to remember if you’ve eaten, and reheating the same cup of coffee for the third time. Which is when the ideas of self-care… Continue reading Realistic Self-Care Tips for Moms in the 4th Trimester
Looking Back on How One Bride Adapted Her Wedding for Friedreich’s Ataxia
Earlier we talked about what helps when planning a wedding as a disabled bride from the lens of Libby, a PatientsLikeMe member living with Friedreich’s ataxia. Living with a progressive disease, like Friedreich’s ataxia, that affects mobility and energy means considering details that many couples never have to consider. Accessibility, energy conservation,mobility, and asking for… Continue reading Looking Back on How One Bride Adapted Her Wedding for Friedreich’s Ataxia
Wedding Planning with a Disability: 5 Lessons from a Bride Living with Friedreich’s Ataxia
Wedding planning comes with plenty of decisions. Choosing a venue, finding the right dress, managing timelines, and trying to enjoy the experience can feel overwhelming for any couple. For people living with a disability, there can be another layer of planning. Accessibility, energy levels, mobility, and adapting expectations become part of the process. For Libby,… Continue reading Wedding Planning with a Disability: 5 Lessons from a Bride Living with Friedreich’s Ataxia
Why Your Newborn Won’t Sleep (And What You Can Do Tonight)
Is your newborn wide awake right now while everyone else is sleeping? You’re probably sitting there wondering what is wrong and how you can get your little one back to bed. Well there’s good news and bad news. Good news is chances are nothing is wrong! This is a normal period where infants stay awake… Continue reading Why Your Newborn Won’t Sleep (And What You Can Do Tonight)
Why Cruising Can Be One of the Best Ways to Travel When You’re Living With FA
Taking a vacation when you have a degenerative condition like Friedreich’s Ataxia takes a huge amount of preparation. You cannot expect to just hop on a plane, get to your destination, and be able to enjoy everything there is to offer! New locations mean new accessibility challenges. Will the restaurants have ramps? Does the hotel… Continue reading Why Cruising Can Be One of the Best Ways to Travel When You’re Living With FA
Feeling Like Your Brain Is Full? How Women Are Managing Decision Fatigue and Mental Overload
One of the most common symptoms of depression is fatigue. Feeling like your body and your mind are just not up to the task is commonplace for people living with MDD! One variation of this is called decision fatigue. Simply put, this is the exhaustion that many people feel after having to make choice after… Continue reading Feeling Like Your Brain Is Full? How Women Are Managing Decision Fatigue and Mental Overload
Planning Ahead with FA: How to Navigate Financial, Insurance, and Future Care Decisions Before They Feel Urgent
Getting a Friedreich’s Ataxia diagnosis means dealing with change. It means accepting and preparing for your life to be different. For many people with the condition, it means being thrown into a world of medical jargon and complicated insurance questions that most people never consider having to get their heads around! But being prepared, and… Continue reading Planning Ahead with FA: How to Navigate Financial, Insurance, and Future Care Decisions Before They Feel Urgent