What’s it like to work at PatientsLikeMe? We are continuing to reveal just that with our ongoing blog series “A Day in the Life,” which features PatientsLikeMe employees from different departments. Today we’d like to introduce you to David Blaser, PharmD, a registered pharmacist who decided to trade his white lab coat for the more casual… Continue reading A Day in the Life of Health Data and Drug Information Clinical Specialist David Blaser
PatientsLikeMe and AKU Society to Develop World’s First Open Registry for Alkaptonuria Patients
Online Patient Network to Connect Patients With Rare Disease, Create Valuable Data for Research CAMBRIDGE, Mass. — January 9, 2013 — PatientsLikeMe and the AKU Society are working together to create the first open, global registry for patients with alkaptonuria (AKU), one of the world’s rarest diseases and the first genetic disease discovered. Nicknamed “black… Continue reading PatientsLikeMe and AKU Society to Develop World’s First Open Registry for Alkaptonuria Patients
Write a Love/Hate Letter to Your Thyroid for Thyroid Awareness Month
Do you love your thyroid? Do you hate it? Or more importantly, do you even know where it is? A small, butterfly-shaped gland located at the base of the neck (just below the Adam’s apple), the thyroid influences the function of the heart, brain, liver, kidneys and skin. That’s why it’s so important to know… Continue reading Write a Love/Hate Letter to Your Thyroid for Thyroid Awareness Month
Live Better Together in 2013
Last year, over 170,00 patients learned from each other’s shared experiences every day on PatientsLikeMe. In 2013, we promise to continue putting the patient first. We’ll provide better, more effective ways for sharing real-world health experiences that help you, other patients like you, and organizations that focus on your conditions. You’ll hear us talk more… Continue reading Live Better Together in 2013
What Would You Tell Yourself 10 Years Ago?
The beginning of a new year is always a time for reflection. You look back, you look ahead and you try to find the big picture. For patients living with chronic health conditions, a new year can be an opportunity to implement and share lessons learned along the way – about how to cope, manage… Continue reading What Would You Tell Yourself 10 Years Ago?
A Patient Poem for the Modern Age
Can you be friends with someone you’ve never met in person? The members of our online health community – now 300, 000+ patients strong – think so. In fact, many of them say they depend on other members for support and encouragement, and for the all-important reminder that they are not alone. As evidence, here… Continue reading A Patient Poem for the Modern Age
Use It or Lose It?
You’ve all heard the phrase “use it or lose it” before. But should it be applied to patients with chronic, debilitating illnesses? That’s an ongoing debate in the PatientsLikeMe forums. Take for example this discussion of cognitive difficulties in our Multiple Sclerosis Forum. On the one hand, there’s the argument that brain exercises such as… Continue reading Use It or Lose It?
Spirited Support at the Jingle Bell Run/Walk for Arthritis
We’ve sponsored hundreds of fundraising teams through our PatientsLikeMeInMotion program, but we’re pretty sure this team wins the blue ribbon for most festive. Please meet PatientsLikeMe member Kennqueen’s very colorful team, who donned their best tutus and striped socks for the Jingle Bell Run/Walk for Arthritis in Richland, Washington, on November 17, 2012. Kennqueen has… Continue reading Spirited Support at the Jingle Bell Run/Walk for Arthritis
Join the Robert Wood Johnson Foundation’s $200,000 Developer Challenge!
Can a game app lead to better health? The Robert Wood Johnson Foundation thinks so. They’ve announced a competition challenging developers to create game apps that “generate useful health care data to improve health and health care.” The competition will be conducted in two phases. Phase One is an “open ideation phase” where interested developer teams… Continue reading Join the Robert Wood Johnson Foundation’s $200,000 Developer Challenge!
Out of the Office: PatientsLikeMe Visits ALS Pioneer Steve Saling
Earlier this month, PatientsLikeMe Co-Founder and President Ben Heywood, along with marketing intern Jenna Tobey, went to visit the Steve Saling ALS Residence, which is part of the Chelsea Jewish Foundation’s Leonard Florence Center for Living in Chelsea, MA. The foundation has been providing high-quality care for over 90 years and includes the nation’s only specialized… Continue reading Out of the Office: PatientsLikeMe Visits ALS Pioneer Steve Saling