Last week, we told you about the Spotlight on Psoriasis and Psoriatic Arthritis Online Film Festival and how you could participate. But for those of you who don’t have psoriasis and don’t know much about it, we wanted to tell you a little more about this chronic condition as August is Psoriasis Awareness Month. An… Continue reading What Do You Know About Psoriasis?
Category: Patient Experiences
Put Your Psoriasis Story on Video
The most common autoimmune disease in the US, psoriasis affects as many as 7.5 million Americans. Yet many people think it’s just “a skin thing.” To help debunk this misunderstanding and show all the ways psoriasis impacts one’s life, the National Psoriasis Foundation is holding the first-ever film festival for psoriasis and psoriatic arthritis, a… Continue reading Put Your Psoriasis Story on Video
Three Ways to Stand Up to Cancer in August
Stand Up To Cancer (SU2C) was founded in 2008 to mark “where the end of cancer begins.” Since then, the organization has raised over $100 million for cancer research through television specials and other fundraising efforts. SU2C aims to become an unstoppable movement, to accelerate groundbreaking cancer research and to bring together the best and… Continue reading Three Ways to Stand Up to Cancer in August
Spolighted Blogger: Mollee Sullivan of My Broken Stomach
Recently, it came to our attention that one of our members has an outstanding blog called My Broken Stomach, in which she chronicles her experiences with gastroparesis. We reached out to hear to learn a little more about her as well as how she’s managing her condition, which causes partial paralysis of the stomach. (As… Continue reading Spolighted Blogger: Mollee Sullivan of My Broken Stomach
PatientsLikeMeOnCall: Living with Type 1 Diabetes
Welcome to the third installment of our new weekly podcast series called “It’s Friday – Let’s Journal Club.” This week’s guest interview is with Sarah Taylor, a type 1 diabetes patient, registered nurse (RN) and friend of the company. Sarah stopped by PatientsLikeMe headquarters last Friday to talk about being diagnosed with type 1 diabetes… Continue reading PatientsLikeMeOnCall: Living with Type 1 Diabetes
A Peek at Our July Newsletter for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our July edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to recently,… Continue reading A Peek at Our July Newsletter for Members
What Do You Know About Hepatitis?
Today, July 28th, marks the first official World Hepatitis Day sponsored by the World Health Organization (WHO) and the World Hepatitis Alliance (WHA). Hepatitis kills more than one million people each year, while millions more suffer acute sickness or long-term ill health. The goal of this new event is to raise awareness of this global… Continue reading What Do You Know About Hepatitis?
Photo of the Week: PatientsLikeMe Company Outing
Who are the people behind PatientsLikeMe? You’re looking at them! Every summer, we gather our team for a fun and relaxing company outing. This photo is from our recent summer 2011 event. As you can see, it was a great time for all of us to come together and enjoy each other’s company outside of… Continue reading Photo of the Week: PatientsLikeMe Company Outing
PatientsLikeMeOnCall: From Open Data to Actionable Data
Every Friday, PatientsLikeMe holds “Journal Club” in our Boston headquarters with a different guest speaker. Last week we were privileged to hear from Dave Hale, Project Manager for Pillbox, a National Library of Medicine (NLM) and Federal Drug Administration (FDA) patient safety initiative. And thanks to PatientsLikeMeOnCall’s new podcast series “It’s Friday – Let’s Journal… Continue reading PatientsLikeMeOnCall: From Open Data to Actionable Data
A Little More About Us: A Look Back at the Founding of PatientsLikeMe
“I got this call from my brother Stephen, and he said the news doesn’t look good. At that point, he’d been through enough processes to know what that meant – he had ALS. So I began this journey with my brother and my family…. We were thinking there had to be a way to make… Continue reading A Little More About Us: A Look Back at the Founding of PatientsLikeMe