FOR IMMEDIATE RELEASE Nonprofit and “Not Just for Profit” Announce Collaboration at PartneringForCures Event NEW YORK, NY – November 7, 2011 – Today, PatientsLikeMe and R.A.R.E Project, a nonprofit advocacy and support group for patients with all rare diseases, announce a new partnership to find and connect 1 million rare disease patients to share and… Continue reading PATIENTSLIKEME AND R.A.R.E PROJECT UNITE TO FIND AND CONNECT ONE MILLION RARE DISEASE PATIENTS
Category: Patient Experiences
Medication Non-Adherence: The Costs and Complexities
On October 24-25th, PatientsLikeMe attended the 8th Annual Patient Adherence, Communication and Engagement (PACE) Conference in Philadelphia. The event focused on how the healthcare industry can deliver measurable improvements in patient adherence (i.e., taking medications as prescribed by your doctor). Put simply, how can we help patients like you take the correct dosages at the correct… Continue reading Medication Non-Adherence: The Costs and Complexities
Remembering My Sister Linda: An Interview with Diabetes Patient Michael Burke (Part I)
As we’ve discussed in recent blog posts, November is American Diabetes Month. To help you learn about diabetes from a patient’s point of view, we interviewed Michael Burke, a PatientsLikeMe member who writes “Life on the T List”, a blog about his life as a diabetic before and after a kidney transplant. But as you’ll soon… Continue reading Remembering My Sister Linda: An Interview with Diabetes Patient Michael Burke (Part I)
American Diabetes Month Kicks Off with “T1 Day”
As we mentioned in our blog about the “Calling All Types” campaign last week, November is American Diabetes Month. Today, November 1st, is also “T1 Day,” a new event sponsored by the Juvenile Diabetes Research Foundation (JDRF) to raise awareness about type 1 diabetes (previously known as juvenile diabetes), which is often diagnosed in children,… Continue reading American Diabetes Month Kicks Off with “T1 Day”
A Peek at the October Newsletter for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our October edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to recently, and… Continue reading A Peek at the October Newsletter for Members
Announcing the “Calling All Types” Campaign for Diabetes Awareness
In June, we told you about our new partnership with BBK Worldwide, a pioneer in healthcare communications. Now, we’re excited to report that our first outreach project together is kicking off. In preparation for American Diabetes Month in November, PatientsLikeMe and BBK Worldwide announced today the launch of a new online diabetes health movement entitled… Continue reading Announcing the “Calling All Types” Campaign for Diabetes Awareness
Photo of the Week: Angels in Motion
Please meet ALS patient sillyangel, who led a PatientsLikeMeInMotion-sponsored team at the Walk to Defeat ALS in Des Moines, Iowa, on October 8, 2011. As you’ll see, she proudly wore her bright blue PatientsLikeMeInMotion t-shirt to stand out in the crowd. Congrats to sillyangel and all of our PatientsLikeMeInMotion-sponsored teams for your efforts to raise… Continue reading Photo of the Week: Angels in Motion
H@cking Medicine: Open Up!
This weekend, MIT is hosting the first H@cking Medicine conference and PatientsLikeMe is proud to be a sponsor. The hacking encouraged here isn’t malicious, rather, it refers to a passionate subculture of computer programmers who believe in sharing, openness, and innovation (among other things). Those are three concepts near and dear to us here at… Continue reading H@cking Medicine: Open Up!
Watch Our Very Own “Humanitarian of the Year,” Dr. Paul Wicks, PhD
In August, we proudly announced that our Research & Development Director, Dr. Paul Wicks, PhD, had been named “Humanitarian of the Year” and a TR35 Honoree by MIT Technology Review magazine. This week, he received both awards at MIT’s annual Emtech event, a two-day conference focused on emerging technologies held at MIT’s Boston campus. Below… Continue reading Watch Our Very Own “Humanitarian of the Year,” Dr. Paul Wicks, PhD
Recognizing Breast Cancer Awareness Month
Have you been seeing pink this month – such as on the lids of your Yoplait yogurt? That’s because it’s National Breast Cancer Awareness Month, a partnership of numerous organizations working together to promote breast cancer awareness, share information on the disease and provide greater access to screening services. Here at PatientsLikeMe, we have 147… Continue reading Recognizing Breast Cancer Awareness Month