Welcome to the fifth installment of our latest PatientsLikeMeOnCall podcast series, entitled “It’s Friday – Let’s Journal Club.” This week’s guest is Dr. Taha Kass-Hout, Deputy Director of the Division of Notifiable Diseases and Healthcare Information at the CDC. He came by PatientsLikeMe headquarters recently to discuss the BioSense project, an initiative launched following 9/11… Continue reading PatientsLikeMeOnCall: Monitoring Health Hazards with Modern Tools
Category: Patient Experiences
Our Pledge to You, the Patient
“We founded PatientsLikeMe on the concept that sharing health data could lead to a more empowered patient and better overall healthcare system. It’s an exciting and giant step forward for us as an industry as we unite around making health data more accessible to those that matter most – the patients.” – Ben Heywood, PatientsLikeMe… Continue reading Our Pledge to You, the Patient
“Go Back for the Future” of Parkinson’s Research
Haven’t heard of the Nike MAG shoe? Perhaps that’s because it’s only been worn by one person – the indelible Marty McFly (Michael J. Fox). Yet today, this rarest of Nike Footwear will become a reality for a lucky few. 1,500 pairs of “the most famous shoe never made” are being auctioned off on Ebay… Continue reading “Go Back for the Future” of Parkinson’s Research
September Is Recovery Month
Every September, the Substance Abuse & Mental Health Services Administration (SAMHSA) observes Recovery Month. The goal is to promote the societal benefits of treatment for substance use and mental disorders, celebrate people in recovery, recognize treatment providers and spread the message that recovery is possible. As the SAMHSA slogan says, “Prevention works, treatment is effective… Continue reading September Is Recovery Month
PatientsLikeMeOnCall: How Genetics Bears on Your Condition
Welcome to the fourth installment of our new PatientsLikeMeOnCall podcast series entitled “It’s Friday – Let’s Journal Club.” This week’s interview is with PatientsLikeMe’s own Catherine Brownstein, PhD, MPH, who recently won a highly competitive award from the International Congress of Human Genetics (ICHG). One of our in-house Research Scientists, Dr. Brownstein captivated PatientsLikeMe headquarters… Continue reading PatientsLikeMeOnCall: How Genetics Bears on Your Condition
Scoring with ATEC on PatientsLikeMe: New Feature for Patients with Autism
When we expanded PatientsLikeMe from serving a couple dozen conditions to serving several hundred overnight, we realized very quickly that our work was only just beginning. Since that early morning in April, our members (and staff) have added a lot more data to the system, including core symptom groups and commonly prescribed treatment surveys for… Continue reading Scoring with ATEC on PatientsLikeMe: New Feature for Patients with Autism
A Peek at Our August Newsletter for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our August edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up… Continue reading A Peek at Our August Newsletter for Members
What Do You Know About Psoriasis?
Last week, we told you about the Spotlight on Psoriasis and Psoriatic Arthritis Online Film Festival and how you could participate. But for those of you who don’t have psoriasis and don’t know much about it, we wanted to tell you a little more about this chronic condition as August is Psoriasis Awareness Month. An… Continue reading What Do You Know About Psoriasis?
Put Your Psoriasis Story on Video
The most common autoimmune disease in the US, psoriasis affects as many as 7.5 million Americans. Yet many people think it’s just “a skin thing.” To help debunk this misunderstanding and show all the ways psoriasis impacts one’s life, the National Psoriasis Foundation is holding the first-ever film festival for psoriasis and psoriatic arthritis, a… Continue reading Put Your Psoriasis Story on Video
Three Ways to Stand Up to Cancer in August
Stand Up To Cancer (SU2C) was founded in 2008 to mark “where the end of cancer begins.” Since then, the organization has raised over $100 million for cancer research through television specials and other fundraising efforts. SU2C aims to become an unstoppable movement, to accelerate groundbreaking cancer research and to bring together the best and… Continue reading Three Ways to Stand Up to Cancer in August