Back in April, we wrote a blog post observing Autism Awareness Month. At that time, we had just over 100 members with an autism spectrum disorder (ASD). Now, just two months later, we’re pleased to report that our ASD membership has more than tripled with over 350 members reporting ASD and nearly 100 reporting Asperger’s… Continue reading Calling All Families Affected by Autism
Category: Patient Experiences
Putting a Spotlight on Migraines
In February 2011, CBS Reporter Serene Branson was reporting live at the Grammy Awards when her speech became slurred and incoherent. As the video soon went viral, many speculated that she’d suffered a stroke or worse. In fact, Branson had suffered a complex migraine, a special type of migraine with aura where marked neurological symptoms… Continue reading Putting a Spotlight on Migraines
Data Mashups, “Wow Week” and the Fruits of Experimentation
Recently, I had the pleasure of helping to represent PatientsLikeMe at the 2nd Annual Health Data Initiative Forum, which is known as “Health Data-Palooza” to its friends. (See our first blog post about this event here.) The forum was conceived as a way to showcase the wonderful things that people are achieving with open government… Continue reading Data Mashups, “Wow Week” and the Fruits of Experimentation
Turning Stories into Data…and Data into Knowledge
How do you make sense of all the information and stories that come with chronic illness? That’s exactly the challenge that the Patient Experience Team has taken on at PatientsLikeMe. Our goal is to create data visualizations that help you gain insight into your health, recognize emerging patterns and learn from one another’s experiences. Recently,… Continue reading Turning Stories into Data…and Data into Knowledge
Let’s Hear What Men Have to Say
It’s National Men’s Health Week, and as a follow up to our blog on Monday, we thought you might enjoy hearing the perspectives of four male members of PatientsLikeMe – one with MS, two with Parkinson’s disease and one with HIV. Men may make up a smaller percentage of our 105,000+ patients, but their contributions… Continue reading Let’s Hear What Men Have to Say
Let’s Talk About Men’s Health
Did you know that, on average, American men are more likely to live sicker and die younger than American women? This has been called “the silent health crisis in America” by Dr. David Gremillion of the Men’s Health Network, and it’s one of the startling health statistics for men being brought to the surface during National… Continue reading Let’s Talk About Men’s Health
Janumet Side Effects: What patients say.
Janumet 50 1000 (see details) is the brand name (and dosage level) of sitagliptin-metformin, a combination prescription drug used in the management of type 2 diabetes. (50 refers to 50 mg of sitagliptin while 1000 refers to 1000 mg of metformin.) In addition to diet and exercise, Janumet 50 1000 is prescribed when the use… Continue reading Janumet Side Effects: What patients say.
Improving the Clinical Trial Process with Shared Data
“Today is a day of massive celebration of what health innovators have done,” said US Department of Health & Human Services’ Chief Technology Officer Todd Park this morning as he welcomed everyone to the 2nd Annual Health Data Initiative Forum (or “Health Data-Palooza,” as Park called it). The goal? To create “a self-propelled, open ‘ecosystem… Continue reading Improving the Clinical Trial Process with Shared Data
Coping with Nerve Sensitivity
Do you suffer from nerve sensitivity – or a feeling akin to pins and needles? Known clinically as paresthesia, this uncomfortable sensation if often described as a tingling, pricking and/or creeping feeling. For some people with nerve sensitivity, it can be painful for clothing to touch your skin. Although there is no objective causes, nerve… Continue reading Coping with Nerve Sensitivity
One for All: The Opportunity to Make Patients’ Lives Better
“Patients are giving us their data, and we need to honor that by doing something that advances their disease, their cause, their power in the world.” – Jamie Heywood This week marks the fourth and final installment of our latest video series, which explores what the recent changes at PatientsLikeMe mean for you as well… Continue reading One for All: The Opportunity to Make Patients’ Lives Better