“When you have a child with special needs, you really start to feel like you’re constantly the squeaky wheel as you advocate for your child. After a while, you start to wonder…’is it me?’ But I’ve already found several other parent advocates who are going through the same thing.” – Autism Caregiver It’s Autism Awareness… Continue reading How Much Do You Know About Autism and IBS?
Category: Patient Experiences
Tell the World: Video Contest Update
The countdown is on! There are only two weeks left for our patients to enter the PatientsLikeMe “Express Yourself” Video Contest and have a chance to win one of five American Express gift cards ranging from $150-500. If you haven’t heard, we are asking patients to create a video of three minutes or less that… Continue reading Tell the World: Video Contest Update
Do You Use Refresh Ultra to Treat Dry Eyes?
Refresh Ultra is an over-the-counter (OTC) brand of lubricant eye drops designed to help protect your eyes and keep them lubricated throughout the day. How well does it work? Are there any side effects? And how much does it cost? These are all things you can report when you share your experiences with others at… Continue reading Do You Use Refresh Ultra to Treat Dry Eyes?
The Patient Voice Heard Loud and Clear at AHCJ ’11
Last week, we had the opportunity to be a part of the Association of Health Care Journalists (AHCJ) annual conference in Philadelphia, PA. Carla Johnson, medical writer for the Associated Press, invited PatientsLikeMe to be part of her session entitled “Tapping into the e-patient phenomenon.” It was a great opportunity for us to help healthcare… Continue reading The Patient Voice Heard Loud and Clear at AHCJ ’11
PatientsLikeMeOnCall™: “A Look Ahead” at Openness in Healthcare (Episode 4)
“I think we can see there are a lot of ways where openness can be powerful. What’s necessary is to help facilitate openness and reduce the barriers to sharing medical information.” – Ben Heywood PatientsLikeMe Co-Founder Ben Heywood has blogged previously about openness and sharing – and how important they are for patients. In this… Continue reading PatientsLikeMeOnCall™: “A Look Ahead” at Openness in Healthcare (Episode 4)
Have you experienced Lumiday side effects?
Wondering where you can learn about Lumiday Mood Enhancer or report Lumiday side effects? You’ve come to the right place. At PatientsLikeMe, more than 125,000 patients are sharing their experiences with all types of treatments, including prescription drugs, over-the-counter drugs, supplements and more. A dietary supplement, Lumiday Mood Enhancer contains Vitamins B1, 3, 5, 6,… Continue reading Have you experienced Lumiday side effects?
PatientsLikeMe® Poll Reveals Patients Share Health Data Online Prefer to Keep Quiet With Doctors, Employers
Patients Unveil Top Reasons Not to Share Health Information CAMBRIDGE, MA–(Marketwire – April 13, 2011) – According to a new PatientsLikeMe® Poll, almost one in three (29%) patients have withheld certain health information from their doctor. Of the 4,364 poll respondents, all of whom are members of PatientsLikeMe’s online health data-sharing community (www.patientslikeme.com), nearly half (47%)… Continue reading PatientsLikeMe® Poll Reveals Patients Share Health Data Online Prefer to Keep Quiet With Doctors, Employers
PatientsLikeMe Calls All Patients With Any Condition to Join
Today, PatientsLikeMe announces its expansion in the following news release. ***** CAMBRIDGE, MA–(Marketwire – April 11, 2011) – Today, PatientsLikeMe (www.patientslikeme.com) announces the expansion of its platform and invites patients with any condition to join. The five-year-old free online health data-sharing website was previously only available to patients with 22 chronic conditions (including ALS, Parkinson’s disease, HIV,… Continue reading PatientsLikeMe Calls All Patients With Any Condition to Join
How Would You Evaluate Your Experience with Myrin P-Forte?
Myrin P-Forte is an anti-tuberculosis agent that contains ethambutol, rifampicin, isoniasad and pyrazinamide. An anti-mycobacterial treatment, ethambutol eliminates certain bacteria that cause tuberculosis and is used in combination with other drugs to treat tuberculosis and prevent transmission to others. At PatientsLikeMe, where more than 120,000 patients are sharing their experiences with conditions, symptoms, treatments and… Continue reading How Would You Evaluate Your Experience with Myrin P-Forte?
See What Other Patients Are Saying About Metoprolol Succ ER
Metoprolol Succ ER (the common abbreviation for Metoprolol Succinate ER and a generic form of Toprol XL) is an extended release formulation of the drug metoprolol, which is used for the treatment of angina or hypertension and to reduce mortality/hospitalization in patients with heart failure who are already receiving cardiac and diuretic medications. At PatientsLikeMe,… Continue reading See What Other Patients Are Saying About Metoprolol Succ ER