Category: Patient Experiences

Who’s Trying a Lectin-Free Diet?

Are you on a lectin-free diet?  Trade notes on this dietary intervention at PatientsLikeMe, where more than 120,000 patients are sharing their experiences with treatments, supplements, lifestyle modifications and more. But first, let’s talk about lectins, which are sugar-binding proteins that mimic insulin. Lectins bind to carbohydrates and various proteins, causing inflammation. As a result,… Continue reading Who’s Trying a Lectin-Free Diet?

PatientsLikeMe at the NHS Innovations Expo

If you’ve ever tuned in to one of our podcasts or had a chance to view one of our videos, there’s a certain characteristic you might have noticed about me.  I’m British.  Very British indeed. During the course of my academic research career, I spent 6 years working alongside neurologists, psychiatrists, and a multidisciplinary team… Continue reading PatientsLikeMe at the NHS Innovations Expo

A Place to Share About Serenagen and Serenagen Side Effects

Have you tried serenagen for stress relief?  Share your experiences with serenagen side effects, effectiveness, cost and more at PatientsLikeMe, a unique data-sharing platform that covers all types of treatments, including supplements and lifestyle modifications. According to traditional Chinese medicine, living a demanding, hectic lifestyle deeply influences mood, mental function, cardiovascular function, the liver and… Continue reading A Place to Share About Serenagen and Serenagen Side Effects

Share your experiences with Stresam

Stresam is an international brand of etifoxine, a non-benzodiazepine anxiolytic (anti-anxiety) and anticonvulsant drug.  It is used to treat anxiety disorders – such as general anxiety disorder (GAD) or social anxiety disorder or panic disorder – and to promote peripheral nerve healing in patients with peripheral neuropathy. At PatientsLikeMe, where more than 120,000 patients are… Continue reading Share your experiences with Stresam

Have you experienced Catalyn side effects?

Looking for a place to share and learn about Catalyn side effects – either the side effects you experienced while taking this supplement or the lack thereof?  You’ve come to the right place. Catalyn is a multivitamin, mineral and trace mineral concentrate that contains Vitamin B6, Riboflavin, Thiamine, Vitamin D, Vitamin C, Vitamin A and… Continue reading Have you experienced Catalyn side effects?

What Other Patients Are Saying About Solupred

Solupred is an international brand of prednisolone, a widely prescribed corticosteroid that modifies the body’s immune response and decreases inflammation. It is used to treat a host of inflammatory and autoimmune health conditions, including multiple sclerosis (acute exacerbations), organ rejection, lupus, psoriasis, asthma and ulcerative colitis. At PatientsLikeMe, where more than 120,000 patients are sharing… Continue reading What Other Patients Are Saying About Solupred

Learn from Others with BVVP (Positional Vertigo)

BVVP (more commonly abbreviated as BPPV) stands for benign paroxysmal positional vertigo.  A disorder caused by inner ear problems, it is characterized by repeated episodes of positional vertigo that are triggered by repositioning or moving the head.  This produces a spinning sensation that disorients the BVVP/BPPV patient. At PatientsLikeMe, patients are sharing their experiences with… Continue reading Learn from Others with BVVP (Positional Vertigo)

Patient Choices: The Deciding Factors

In a recent series on patient choices, we’ve highlighted a lot of the decisions patients like you have to make on a daily basis.  A few weeks ago, David S. Williams kicked off the series with a blog about the treatment and career decisions that patients like you, and his mother, have made.  Kate Brigham… Continue reading Patient Choices: The Deciding Factors

Rare Disease Day 2011: “Rare, But Equal”

For patients with prevalent diseases, it may be easy to find others with your condition.  You meet them at clinics; you run into them when seeing your specialist; or you participate in one of the support groups in your area.  For those with rare diseases, the simple act of finding another patient like you isn’t… Continue reading Rare Disease Day 2011: “Rare, But Equal”