Humor and a passel of grandchildren keep Lee (slicky) going. He’s been living with ALS for nearly three decades and refuses to let his condition get the best of him. Now retired, he delights in his family and is very active in our forums – welcoming new members, doling out information and sharing his positive… Continue reading “Do not give up, find a reason to keep going.” – An interview with ALS member Lee
Category: Patient Experiences
You helped us reach our goal for #24DaysofGiving!
That’s right, you did it again! A big thank you to the PatientsLikeMe community for helping us reach our #24DaysofGiving goal for the second year in a row. Together, you donated 476,243 health data points! We’ll be making a $20,000 donation to Make-A-Wish® Massachusetts and Rhode Island to help fund life-affirming wishes for seriously ill… Continue reading You helped us reach our goal for #24DaysofGiving!
From our partners at One Mind: Zack Lystedt’s football story
Accidents happen, anywhere to anyone. Whether it’s from playing soccer or football, snowboarding, riding a bike, competing in synchronized swimming, slipping on ice or falling off of a ladder. In sports, even with the best safety procedures in place, there are still accidents. That’s why our partners at One Mind have started the #TreatBrainsBetter campaign.… Continue reading From our partners at One Mind: Zack Lystedt’s football story
Your data doing good: A collaboration with Walgreens
During #24DaysofGiving this December, we’re highlighting all the good your health data is doing within – and well beyond – the PatientsLikeMe website. Here’s another great example. Did you know the side effect data you report on your PatientsLikeMe treatment evaluations is helping pharmacy customers understand how the medications they take may affect them, too?… Continue reading Your data doing good: A collaboration with Walgreens
Your data doing good: The POEM Study
When you share your health data, we all learn Every minute of every day, people are sharing their health data on PatientsLikeMe. Some of you are focused on tracking how you’re doing over time. Many want to make sure the next person diagnosed can learn from your experience. All are contributing to the greater good,… Continue reading Your data doing good: The POEM Study
#24DaysofGiving has now begun!
Today is #GivingTuesday and we’re kicking off this “new tradition of generosity” with another #24DaysofGiving. What’s this about? #GivingTuesday is a day to celebrate generosity, and with #24DaysofGiving, we’re asking you to re-think what it means to give back. We’re hoping that after you celebrate by giving a donation of time or money to your… Continue reading #24DaysofGiving has now begun!
PatientsLikeMe Encourages Sharing of Health Data for Good with 2nd Annual “24 Days of Giving”
The Gift of Health Data Can Help Others, and Advance Research CAMBRIDGE, MASS., December 1, 2015—On this #GivingTuesday, PatientsLikeMe is once again celebrating “the new tradition of generosity” by encouraging people to donate something unusual but vital: their health data. Starting today and continuing for #24DaysofGiving, PatientsLikeMe is asking anyone who is living with a… Continue reading PatientsLikeMe Encourages Sharing of Health Data for Good with 2nd Annual “24 Days of Giving”
Meet Gus from the PatientsLikeMe Team of Advisors
Say hi to Gus, another member of your 2015-2016 PatientsLikeMe Team of Advisors. Gus is someone who’s been very competitive and focused, has always felt that there was nothing he couldn’t accomplish or overcome, and spreads positivity wherever he goes. So when he was diagnosed with familial ALS, positive SOD1 gene – unknown variant, in… Continue reading Meet Gus from the PatientsLikeMe Team of Advisors
More than heartburn: GERD awareness around Thanksgiving
To a lot of folks, this time in November means a holiday feast with all the trimmings – turkey, stuffing, mashed potatoes, pies and other rich foods. But for people living with gastroesophageal reflux disease (GERD), it might mean something different. Today marks the beginning of the 17th Annual GERD Awareness Week (November 23-29). GERD is… Continue reading More than heartburn: GERD awareness around Thanksgiving
Meet Allison from the PatientsLikeMe Team of Advisors
Meet Allison, one of your 2015-2016 PatientsLikeMe Team of Advisors. Allison is living with bipolar II, has been a PatientsLikeMe member since 2008 and is a passionate advocate for people living with a mental health condition. Refusing to let her condition get the best of her, she partners with her family to self-assess her moods… Continue reading Meet Allison from the PatientsLikeMe Team of Advisors