Say hello to Angela, another member of your 2015-2016 Team of Advisors. When she was diagnosed with MS in 2010, Angela was writing a book while balancing a busy schedule as a university lecturer and community volunteer. Angela sat down with us recently to talk about the new challenges of leading the life she wants… Continue reading Meet Angela from the PatientsLikeMe Team of Advisors
Category: Patient Experiences
PatientsLikeMe and M2Gen Announce Partnership and Plans for Landmark Cancer Experience Study
CAMBRIDGE, Mass. & TAMPA, Fla., March 8, 2016—Patient network PatientsLikeMe® and informatics solutions provider M2Gen® are collaborating to give patients and researchers a more complete picture of patients’ experiences with cancer treatments and to shed new light on the factors that may affect outcomes and quality of life. The partnership aims to advance cancer… Continue reading PatientsLikeMe and M2Gen Announce Partnership and Plans for Landmark Cancer Experience Study
“My data is going to empower the next patient” — PatientsLikeMe member Letitia shares her mission to #PayItForward
Many of you have already met Letitia, an active member of the epilepsy community and part of the 2014-2015 Team of Advisors. In her Patient Voice video, Letitia shares how her research on the site led her to the surgery that changed her life – she’s been seizure free for more than three years. Now,… Continue reading “My data is going to empower the next patient” — PatientsLikeMe member Letitia shares her mission to #PayItForward
Touched with fire: Eliminating the stigma of bipolar
PatientsLikeMe member Paul is a filmmaker who’s harnessed his bipolar into creativity, most recently in the debut feature film, Touched with Fire, which he wrote, directed, edited and scored himself. In the last month, we’ve spoken with him about his diagnosis and what he does to cope. Now he’s opening up about fighting the stigma… Continue reading Touched with fire: Eliminating the stigma of bipolar
“We are the ones that know what is required to give us the care we deserve” — Member Ann shares her story for Rare Disease Day
February 29 only comes around every four years – and this year, it’s extra special: Today marks the 9th annual Rare Disease Day. In the United States, a disease is considered rare if it affects less than 200,000 people at any given time.1 This year’s theme is all about elevating the patient voice, so we caught up with… Continue reading “We are the ones that know what is required to give us the care we deserve” — Member Ann shares her story for Rare Disease Day
2016 National Compassionate Caregiver of the Year Award now accepting nominations
A warm smile. An assuring word. A difficult message delivered with empathy. Has a doctor or other healthcare professional ever made a difference in your life? If you know someone who embodies compassionate care, our partners at The Schwartz Center for Compassionate Healthcare want to hear about it. Their National Compassionate Caregiver of the Year (NCCY) Award… Continue reading 2016 National Compassionate Caregiver of the Year Award now accepting nominations
Touched with fire: Harnessing the fire of bipolar
Over the last few weeks, new PatientsLikeMe member Paul has been opening up about living with bipolar and how this condition inspires his art. Touched with Fire, a debut feature film now playing in select theaters, was written, edited, directed and scored by him and draws on his personal experiences. Discovering Kay Jamison’s book of… Continue reading Touched with fire: Harnessing the fire of bipolar
Meet Cyrena from the PatientsLikeMe Team of Advisors
Say hello to Cyrena, another member of your 2015-2016 Team of Advisors. Cyrena is living with bipolar II and lupus, and currently a PhD candidate in pharmacology. Cyrena describes some days with her conditions as “swimming through a vat of molasses” — which makes managing her intensive student workload along with her health a… Continue reading Meet Cyrena from the PatientsLikeMe Team of Advisors
Leaning on loved ones—An interview with lung cancer member Clare
When Clare (Riverdale) was diagnosed with non small-cell lung cancer, her husband was already living with prostate cancer. While supporting each other through chemotherapy and radiation, the couple has made an effort to eat healthy and keep up the active lifestyle they led before. We recently connected with Clare, who emphasized “the value of a… Continue reading Leaning on loved ones—An interview with lung cancer member Clare
Food for Thought: A heart-healthy recipe for Heart Month
February is Heart Month, a time to raise awareness for the leading cause of death in Americans: heart disease. Healthy eating can lower your risk for heart problems, so for this edition of Food for Thought, we’re sharing a recipe from the American Heart Association. Give this Thai chicken soup a try — it’s… Continue reading Food for Thought: A heart-healthy recipe for Heart Month