“I am not a quitter, I never have been” – An interview with lung cancer member Jacquie

For Jacquie (Jacquie1961), a business owner and entrepreneur from New Mexico, 2013 was the worst year of her life – she’d lost two beloved pets to old age and then was diagnosed with lung cancer, which soon turned into colon cancer. After rigorous chemotherapy and the adoption of a new dog, Roman, Jacquie joined PatientsLikeMe… Continue reading “I am not a quitter, I never have been” – An interview with lung cancer member Jacquie

The Schwartz Center for Compassionate Healthcare names their National Compassionate Caregiver of the Year Award recipient

Last night, our partners at the Schwartz Center for Compassionate Healthcare announced the recipient of their National Compassionate Caregiver of the Year (NCCY) Award, a national recognition program that honors outstanding healthcare providers who display extraordinary devotion and compassion in caring for patients and families. Of six nominees, this year’s NCCY Award recipient is Rick Boyte,… Continue reading The Schwartz Center for Compassionate Healthcare names their National Compassionate Caregiver of the Year Award recipient

Getting “Patients Included” right Part II: Planning a patient-centric event

You may remember Part I of this blog that focused on the experiences of two PatientsLikeMe members who attended the Kidney Health Initiative’s (KHI) workshop, “Understanding patients’ preferences: Stimulating medical device development in kidney disease,” back in August. KHI is a partnership between the U.S. Food and Drug Administration (FDA) and the American Society of… Continue reading Getting “Patients Included” right Part II: Planning a patient-centric event

Compassion for all: Krista Nelson, MSW, LCSW, OSW-C – Schwartz Center NCCY Award finalist

Today, we’re happy to introduce the fourth of six nominees for the National Compassionate Caregiver of the Year (NCCY) Award, presented by our friends at the Schwartz Center for Compassionate Healthcare. We’ve already featured Rick Boyte, MD, Melody J. Cunningham, MD and Cheryl D. Kane, MEd, BSN, RN.  Krista Nelson, MSW, LCSW, OSW-C Providence Cancer… Continue reading Compassion for all: Krista Nelson, MSW, LCSW, OSW-C – Schwartz Center NCCY Award finalist

World Diabetes Day: Act today to change tomorrow

Diabetes affects almost 400 million adults[1] around the world and contributes to nearly 5 million annual deaths[2]. November is American Diabetes Month, but on November 14, the entire world joins together to unite their voices against this disease on World Diabetes Day (WDD). It was started back in 1991 by the International Diabetes Federation (IDF).… Continue reading World Diabetes Day: Act today to change tomorrow

Compassion for all: Melody J. Cunningham, MD – Schwartz Center NCCY Award finalist

We’ve already introduced you to Rick Boyte, MD, one of the finalists for the National Compassionate Caregiver of the Year (NCCY) Award presented by our partners at the Schwartz Center for Compassionate Healthcare. Today, we’re happy to introduce you to another nominated healthcare provider who has displayed extraordinary devotion and compassion in caring for patients… Continue reading Compassion for all: Melody J. Cunningham, MD – Schwartz Center NCCY Award finalist

Joining the effort to find answers from brain diseases and injuries

In honor of Veterans Day, we wanted to share two stories from our partner, One Mind. First, the story of retired Colonel Gregory Gadson, who was wounded during his military service and was living with post-traumatic stress (PTS). PTS affects more than 7.7 million Americans each year. The second video shares the story of Roxana… Continue reading Joining the effort to find answers from brain diseases and injuries

Compassion for all: Rick Boyte, MD – Schwartz Center NCCY Award finalist

Back in April, our partners at the Schwartz Center for Compassionate Healthcare called for nominations for their National Compassionate Caregiver of the Year (NCCY) Award, a national recognition program that honors outstanding healthcare providers who display extraordinary devotion and compassion in caring for patients and families. This year’s expansion of the award marks the award’s 16th… Continue reading Compassion for all: Rick Boyte, MD – Schwartz Center NCCY Award finalist

Epilepsy Awareness Month: The value in helping others

It’s November, which means it’s Epilepsy Awareness Month. During our #NotAlone campaign, we shared how PatientsLikeMe member Letitia’s experience on the site helped her feel less alone in living with epilepsy. Letitia (Letitia81), a member of our 2014-2015 Team of Advisors, explains: “I enjoyed connecting with others suffering from seizures and exchanged ideas about diagnostic… Continue reading Epilepsy Awareness Month: The value in helping others

Getting “Patients Included” right Part I: Two members attend a Kidney Health Initiative workshop

Back in August, the Kidney Health Initiative (KHI), a partnership between the U.S. Food and Drug Administration (FDA) and the American Society of Nephrology (ASN), held a workshop called “Understanding patients’ preferences: Stimulating medical device development in kidney disease.” But this was more than a workshop – it was an event centered around the idea… Continue reading Getting “Patients Included” right Part I: Two members attend a Kidney Health Initiative workshop