Collaborators Commit to Sharing Information and Educating Patients CAMBRIDGE, Mass.—December 9, 2014—PatientsLikeMe and the Schwartz Center for Compassionate Healthcare today announced that they will work together to better understand patients’ perceptions of compassionate care. The collaboration’s goal is to strengthen the relationship… Continue reading PatientsLikeMe and the Schwartz Center join forces to better understand patients’ perceptions of compassionate care
Category: Patient Experiences
Seeing [MS]: The invisible symptoms – dizziness
Lyn Petruccelli is living with multiple sclerosis, and she fights random waves of vertigo and dizziness that can strike her at any moment. Sometimes, the feelings are so strong, she can’t even get out of bed. As Lyn says, “I can’t see it coming, and that makes it hard to fight.”1 You are now… Continue reading Seeing [MS]: The invisible symptoms – dizziness
Finding others with PTSD
Sometimes it’s nice not having to explain yourself to people who don’t really understand what it’s like for you, and to surround yourself with people who just get it. As the PatientsLikeMe post traumatic stress disorder community grows, we’ve heard from our members who are veterans about how important it is for them to connect… Continue reading Finding others with PTSD
Throwing it back this Thursday for Crohn’s and Colitis awareness week
We’re throwing it back this Thursday, but to help raise awareness for something that’s happening right now: National Crohn’s and Colitis Awareness Week (Dec. 1st to 7th). For this #TBT, our very own Maria Lowe shares about her experiences with Crohn’s disease. Maria is part of the PatientsLikeMe Health Data Integrity and Research Teams, and… Continue reading Throwing it back this Thursday for Crohn’s and Colitis awareness week
PatientsLikeMe and USF Health collaborate to empower cancer patients
Partnership Marks the First Between the Patient Network and an Academic Health Center CAMBRIDGE, Mass.—December 4, 2014—PatientsLikeMe and the USF Health Internal Medicine Department have partnered to improve health outcomes for multiple myeloma patients. People living with multiple myeloma and other cancers will be directed to PatientsLikeMe to access patient-reported symptom and treatment information and… Continue reading PatientsLikeMe and USF Health collaborate to empower cancer patients
Join Garth Callaghan for 24 Days of Giving
Today’s the day we start to re-think what it means to give back, and we want you to come along with us. We’re kicking off 24 Days of Giving – a new campaign that’s all about the health data PatientsLikeMe members selflessly donate and how we can say thank you. Today is also known as… Continue reading Join Garth Callaghan for 24 Days of Giving
Food for thought: Diabetes awareness edition
It’s American Diabetes Awareness Month, and the American Diabetes Association’s (ADA) theme for November is “America Gets Cooking to Stop Diabetes.” And in that spirit, we’re highlighting the diabetes community on PatientsLikeMe. Members have been sharing about pasta, low-carb diets and ideas for daily menus. Plus, one member graciously shared her personal recipes for some… Continue reading Food for thought: Diabetes awareness edition
Seeing [MS]: The invisible symptoms – spasticity
Australian comedian and public speaker Tim Ferguson said it the best – “Seeing [MS] is all about helping everybody, in society, right across the world, get their heads around this mysterious and sometimes scary condition.” He’s living with multiple sclerosis (MS), and he spoke about his spasticity in the video below. You are now… Continue reading Seeing [MS]: The invisible symptoms – spasticity
Shining a light on lung cancer
Back in 1995, a few organizations came together to recognize Lung Cancer Awareness Day – there were a few awareness activities and some scattered fundraisers. Fast forward to now. Almost 20 years later, over 125 different lung cancer events are spread across three continents during the month of November. This is Lung Cancer Awareness Month,… Continue reading Shining a light on lung cancer
“In my own words” – PatientsLikeMe member Vickie shares about her experiences with lung cancer
Meet Vickie, a PatientsLikeMe member who has survived cancer not once, but twice. She’s sharing her story, from diagnosis to survivorship, during Lung Cancer Awareness Month. She spoke about her reaction to getting diagnosed, the anxiety filled months leading up to surgery and what recovery was like post-operation. Learn about her journey below. The journey… Continue reading “In my own words” – PatientsLikeMe member Vickie shares about her experiences with lung cancer