Describing her loss of stability and balance is difficult for Carol Cooke. One moment, she might be walking, and the next, she’ll fall to the ground. As she says, “I just want to get up and keep going,” but that’s not possible due to the symptoms of her multiple sclerosis (MS). Listen to Carol speak… Continue reading Seeing [MS]: The invisible symptoms – balance
Category: Patient Experiences
New partner, Schwartz Center, calls for nominations: National Compassionate Caregiver of the Year
Remember a time when you were in the hospital or doctor’s office, feeling nervous and anxious about a shot, treatment or diagnosis? And remember there was someone who made you feel safe, answered all your questions, or did something small that had a big impact? It’s like what Ken Schwartz said during his battle with… Continue reading New partner, Schwartz Center, calls for nominations: National Compassionate Caregiver of the Year
Getting to know our Team of Advisors – Deb
You’ve been introduced to five members of the PatientsLikeMe Team of Advisors so far: Karla, Emilie, Becky, Lisa and Dana. This month, meet Deb, a freelance medical writer who was diagnosed with multiple sclerosis (MS) in 2009. Learn about her journey and what being a part of the Team of Advisors means to her. About… Continue reading Getting to know our Team of Advisors – Deb
“Focus on making small but meaningful changes” – an interview with Amy Campbell
Amy Campbell is a registered dietitian nutritionist and certified diabetes educator at Good Measures, a company that combines the expertise of dietitians with state-of-the-art technology to help people improve their eating and exercise habits. Before joining Good Measures, Amy worked for almost 20 years at Joslin Diabetes Center, an internationally recognized diabetes treatment, research and education… Continue reading “Focus on making small but meaningful changes” – an interview with Amy Campbell
“I am not alone in this” – PatientsLikeMe member Rikwood55 shares his journey with lung cancer
New member (and New Zealander) Rikwood55 was diagnosed at age 58 with non-small cell lung carcinoma (stage 4), and he said he joined PatientsLikeMe in the hope of connecting with people on the same or similar lung cancer immunotherapy treatments. Rick took part in a clinical trial, and is now tolerating the immunotherapy treatment well. His scans… Continue reading “I am not alone in this” – PatientsLikeMe member Rikwood55 shares his journey with lung cancer
MARCHing together for myeloma awareness
There’s a lot of awareness going on in March. So far, we’ve learned more about sleep conditions (how pain can increase sleep debt), multiple sclerosis (the myths and facts) and brain injury (how it might be more common than you think). Today, we’re shining a spotlight on myeloma, a type of blood cancer that affects more… Continue reading MARCHing together for myeloma awareness
Myths vs. facts about multiple sclerosis
Stop! What do you know about multiple sclerosis (MS)? That’s the question we’re asking during MS Awareness Month. We’ve heard from many community members that people don’t always get what it’s like to live with MS, and that there’s wrong information out there. So as part of ongoing awareness efforts, we created shareable photos that… Continue reading Myths vs. facts about multiple sclerosis
Hacking our way to new and better treatments with integrated biology
When it comes to discovery and healthcare advancements, too many of us are more focused on the processes we use today rather than at a first principals level looking and what’s possible. We are a sector desperately in need of disruption to accelerate the generation of knowledge and lower the costs of developing new treatments… Continue reading Hacking our way to new and better treatments with integrated biology
Give veterans access to the care they need
By Peter Chiarelli, retired U.S. Army general & CEO of our partner One Mind As originally seen in the Washington Post Soldiers listen as U.S. Secretary of Defense Ash Carter (not pictured) holds a question-and-answer session with U.S.military personnel at Kandahar Airfield in Kandahar February 22, 2015. (Jonathan Ernst/Reuters) The high-grossing film “American Sniper” was… Continue reading Give veterans access to the care they need
PatientsLikeMe Appoints Ed Godber as First Executive Vice President of Life Sciences Ventures
Industry Leader to Head up Patient-Focused Initiatives for Life Sciences Customers CAMBRIDGE, MA., March 10, 2015— PatientsLikeMe today announced it has appointed Ed Godber as Executive Vice President of Life Sciences Ventures. In this newly created position, Ed is responsible for managing PatientsLikeMe’s life sciences business and bringing the patient agenda to the forefront of partners’… Continue reading PatientsLikeMe Appoints Ed Godber as First Executive Vice President of Life Sciences Ventures