We’re throwing it back this Thursday, but to help raise awareness for something that’s happening right now: National Crohn’s and Colitis Awareness Week (Dec. 1st to 7th). For this #TBT, our very own Maria Lowe shares about her experiences with Crohn’s disease. Maria is part of the PatientsLikeMe Health Data Integrity and Research Teams, and… Continue reading Throwing it back this Thursday for Crohn’s and Colitis awareness week
Category: Patient Experiences
PatientsLikeMe and USF Health collaborate to empower cancer patients
Partnership Marks the First Between the Patient Network and an Academic Health Center CAMBRIDGE, Mass.—December 4, 2014—PatientsLikeMe and the USF Health Internal Medicine Department have partnered to improve health outcomes for multiple myeloma patients. People living with multiple myeloma and other cancers will be directed to PatientsLikeMe to access patient-reported symptom and treatment information and… Continue reading PatientsLikeMe and USF Health collaborate to empower cancer patients
Join Garth Callaghan for 24 Days of Giving
Today’s the day we start to re-think what it means to give back, and we want you to come along with us. We’re kicking off 24 Days of Giving – a new campaign that’s all about the health data PatientsLikeMe members selflessly donate and how we can say thank you. Today is also known as… Continue reading Join Garth Callaghan for 24 Days of Giving
Food for thought: Diabetes awareness edition
It’s American Diabetes Awareness Month, and the American Diabetes Association’s (ADA) theme for November is “America Gets Cooking to Stop Diabetes.” And in that spirit, we’re highlighting the diabetes community on PatientsLikeMe. Members have been sharing about pasta, low-carb diets and ideas for daily menus. Plus, one member graciously shared her personal recipes for some… Continue reading Food for thought: Diabetes awareness edition
Seeing [MS]: The invisible symptoms – spasticity
Australian comedian and public speaker Tim Ferguson said it the best – “Seeing [MS] is all about helping everybody, in society, right across the world, get their heads around this mysterious and sometimes scary condition.” He’s living with multiple sclerosis (MS), and he spoke about his spasticity in the video below. You are now… Continue reading Seeing [MS]: The invisible symptoms – spasticity
Shining a light on lung cancer
Back in 1995, a few organizations came together to recognize Lung Cancer Awareness Day – there were a few awareness activities and some scattered fundraisers. Fast forward to now. Almost 20 years later, over 125 different lung cancer events are spread across three continents during the month of November. This is Lung Cancer Awareness Month,… Continue reading Shining a light on lung cancer
“In my own words” – PatientsLikeMe member Vickie shares about her experiences with lung cancer
Meet Vickie, a PatientsLikeMe member who has survived cancer not once, but twice. She’s sharing her story, from diagnosis to survivorship, during Lung Cancer Awareness Month. She spoke about her reaction to getting diagnosed, the anxiety filled months leading up to surgery and what recovery was like post-operation. Learn about her journey below. The journey… Continue reading “In my own words” – PatientsLikeMe member Vickie shares about her experiences with lung cancer
“I just kind of went on with life.” – PatientsLikeMe member Fred shares his experiences with MS
We’ve interviewed a lot of members on the blog over the years, and each has a different perspective on life with MS. Fred1118 has taken sharing about his life with MS to a whole new level, documenting his life in a personal photoblog and posting the pictures with the world online. Fred shared all about… Continue reading “I just kind of went on with life.” – PatientsLikeMe member Fred shares his experiences with MS
PatientsLikeMe launches “24 Days of Giving” to encourage sharing of health data for good
Napkin Notes Dad Garth Callaghan Joins Campaign Calling on People to Donate Health Data Starting on Giving Tuesday CAMBRIDGE, Mass. (November 17, 2014) – On December 2, PatientsLikeMe will launch a new campaign that will extend through the month and ask people to rethink their giving this year. PatientsLikeMe is calling on patients who are living with a chronic… Continue reading PatientsLikeMe launches “24 Days of Giving” to encourage sharing of health data for good
“Perseverance, patience and acceptance” – PatientsLikeMe member Steve shares what it’s like to live with MND
Those three words describe how PatientsLikeMe member Steve says he has adapted to life with motor neuron disease (MND). He was diagnosed with MND (also known as ALS) in 2007, and technology has helped Steve navigate the challenges of living with ALS while raising three children. He’s also made a video about his journey, called… Continue reading “Perseverance, patience and acceptance” – PatientsLikeMe member Steve shares what it’s like to live with MND