Awareness, prevention, education, and family – the four goals of Men’s Health Month

  This June marks the 20th anniversary of Men’s Health Month, first created by the U.S. Congress and a few other organizations in 1994. Men’s Health Month is all about heightening awareness of preventable health problems and encouraging early detection and treatment of disease among men and boys.1 This year, the campaign has four goals: awareness,… Continue reading Awareness, prevention, education, and family – the four goals of Men’s Health Month

Food for thought: June edition

For the past couple months, we’ve been sharing about different members’ favorite foods and recipes, and we’re keeping it going with multiple sclerosis members discussing the pros and cons of smoothies, ALS patients talking about getting sleepy after steak, and the fibromyalgia community sharing about cutting foods out of their diets. MS forum thread: Nutrition… Continue reading Food for thought: June edition

If you could share one thing… -Steven’s inspiring answer

PatientsLikeMe ALS member Steven (sheronemus) was diagnosed with ALS back in 2005, and we recently had the chance to ask a few questions about his experiences. Steven spoke about his initial anger and disbelief, the clarity and focus he developed afterwards and how technology helps him participate in many events he didn’t expect to witness.… Continue reading If you could share one thing… -Steven’s inspiring answer

“In my own words” – PatientsLikeMe member Eleanor writes about her journey with bipolar II: Part 2

Back in May, Eleanor (redblack) wrote about her some of her experiences with bipolar II to help spread the word for Mental Health Awareness Month. She’s continuing this month by sharing about the personal support system she’s developed through a wonderful relationship with her husband Jim, her special bond with a particular mood community member… Continue reading “In my own words” – PatientsLikeMe member Eleanor writes about her journey with bipolar II: Part 2

One Mind and PatientsLikeMe join forces to help people with post-traumatic stress and traumatic brain injury

Collaboration Will Uncover Real-World Experiences, Generate Patient Data That Improves Daily Living and Overall Understanding of Conditions SEATTLE, WA—June 12, 2014—One Mind and PatientsLikeMe announced a new multi-year collaboration to help the millions of people worldwide who are experiencing post-traumatic stress (PTS), traumatic brain injury (TBI), or both. The two organizations will work together to… Continue reading One Mind and PatientsLikeMe join forces to help people with post-traumatic stress and traumatic brain injury

“Sharing has given me support” – PatientsLikeMe member Debbie opens up about her MS

As PatientsLikeMe member Debbie (chilli123) says, it’s a very private decision whether or not to discuss MS openly. But as you’ll read, she’s doing more than just speaking about her MS – Debbie is spending time with others so they can better understand what life with a chronic condition is like. Debbie also talked about… Continue reading “Sharing has given me support” – PatientsLikeMe member Debbie opens up about her MS

“I know that it will pass eventually” – PatientsLikeMe member Jennifer shares about her PTSD

June is National Posttraumatic Stress Disorder (PTSD) Awareness Month, and recently, Jennifer (aka sortaborderline) spoke about her personal experiences with the neurological condition. She talked all about learning to roll with her triggers, leaning on her family and PatientsLikeMe members for support, and recognizing the relationship between her fibromyalgia, myalgic encephalomyelitis (ME/Chronic Fatigue Syndrome) and… Continue reading “I know that it will pass eventually” – PatientsLikeMe member Jennifer shares about her PTSD

Putting a face on PTSD

The National Center for PTSD has named June Post-traumatic Stress Disorder (PTSD) Awareness Month, and over the next few weeks, we’ll all be learning, connecting and sharing about it to better help everyone living with the neurological condition. According to the National Institute of Mental Health, 7.7 million adults are living with PTSD in the… Continue reading Putting a face on PTSD

Help make migraines visible in June

Migraines aren’t just simple headaches – they are intense, debilitating head pains that can last for a very long time if left untreated. That is just one reason why June is National Migraine Awareness Month. This month, everyone is working to get the word out about what it’s really like to experience a migraine.  … Continue reading Help make migraines visible in June

Food for thought: May edition

Just last month, we shared about some of our community members’ favorite foods, and about how what they choose to eat can impact the conditions they live with every day. We heard from the fibromyalgia, type 2 diabetes and multiple sclerosis communities – and to keep the series going, we’ve got three new hot, or… Continue reading Food for thought: May edition