Here at PatientsLikeMe, we’re continuing to talk with people who are sharing their health experiences to help raise awareness about their conditions and change medicine for good. For our latest interview, we spoke with Maria who has been living with psoriasis since age 14. Some of you may know her on PatientsLikeMe as pinkdragonrider. She… Continue reading “The real me” An interview with psoriasis patient and PatientsLikeMe member Maria
Category: Patient Experiences
“It’s all about attitude.” An interview with multiple sclerosis patient and PatientsLikeMe member Alys
Have you met Alys yet? Some of you may know her on PatientsLikeMe as browneyedgirl3. Alys was diagnosed with multiple sclerosis (MS) back in 1987 and has been sharing her own personal health journey on PatientsLikeMe since 2009. She recently took some time to talk to us about her diagnosis, staying optimistic and what inspired… Continue reading “It’s all about attitude.” An interview with multiple sclerosis patient and PatientsLikeMe member Alys
“Unmasking the Mystery” Raising awareness for migraines
Do you know how many people are affected by migraines? And how many are men, women or children? Here are some quick stats… About 36 million Americans (10% of the population) live with migraines And about 27 million of those are women For 14 million people, they experience chronic daily headaches Migraines can start at… Continue reading “Unmasking the Mystery” Raising awareness for migraines
Keith & Sarah’s personal journey with rare lung disease. Part III, “Bonus round”
Over the last few months, Keith and Sarah have been sharing their journey with us. In this final interview of our three-part series, they talk about how he got on a transplant list and their “phones at the dinner table” policy. If you missed our first two interviews with Keith and Sarah, you can find… Continue reading Keith & Sarah’s personal journey with rare lung disease. Part III, “Bonus round”
Partnering with patients: An interview with Michael Evers and Ken Getz
PatientsLikeMe and the nonprofit Center for Information and Study on Clinical Research Participation (CISCRP) recently announced a new partnership with the global healthcare leader Sanofi (NYSE: SNY) to raise awareness about the benefits of participating in clinical trials. Michael Evers, Executive Vice President of Marketing and Patient Advocacy at PatientsLikeMe, and Ken Getz, Founder and… Continue reading Partnering with patients: An interview with Michael Evers and Ken Getz
Living with diabetes: An interview with Dr. Richard A. Jackson
For many, living with diabetes can be an overwhelming experience that comes with serious health concerns including heart attack, stroke, kidney complications and eye problems. However, Dr. Richard Jackson thinks there is another reason diabetes patients may feel overwhelmed… the medical establishment. “A typical diabetes education program series might tell you 150 things, but that… Continue reading Living with diabetes: An interview with Dr. Richard A. Jackson
PatientsLikeMe and inVentiv Health Partner to Accelerate Clinical Trial Research
First Agreement Between the Online Patient Network and Global Clinical Research Organization Promises to Help Speed Recruitment for Drug Development BURLINGTON, MASS. June 17, 2013 — inVentiv Health, offering best-in-class clinical, commercial and consulting services, today announced a partnership with the innovative online patient network PatientsLikeMe to bring more people more quickly into medical research… Continue reading PatientsLikeMe and inVentiv Health Partner to Accelerate Clinical Trial Research
Out of the office: PatientsLikeMe at the Walk to Cure psoriasis in New York City
Last month, some of our PatientsLikeMe team members journeyed from Boston to New York City for the National Psoriasis Foundation’s Walk to Cure event. Hundreds of people turned out to walk on a very crisp, but sunny day. Jim Murray is on the PatientsLikeMe marketing team and shared his experience with everyone at the office… Continue reading Out of the office: PatientsLikeMe at the Walk to Cure psoriasis in New York City
PatientsLikeMe Names Marcia Nizzari Vice President of Engineering
CAMBRIDGE, Mass.— June 6, 2013—PatientsLikeMe has named Marcia Nizzari Vice President of Engineering. In this role, Marcia creates the blueprint for future platform developments and oversees all engineering projects. A member of the management team, Marcia reports to Chief Operating Officer Sebastiaan Foppema. “Marcia has joined the team at a time when we’re evolving our… Continue reading PatientsLikeMe Names Marcia Nizzari Vice President of Engineering
“Take the step.” Raising awareness for post traumatic stress disorder
June is Post Traumatic Stress Disorder (PTSD) Awareness Month and the US Department of Veterans Affairs is helping to raise awareness of the condition. About 60% of men and 50% of women will go through at least one traumatic event in their life, and 5.2 million adults will experience PTSD during any given year.[1] Here… Continue reading “Take the step.” Raising awareness for post traumatic stress disorder