CAMBRIDGE, Mass.— May 13, 2013—PatientsLikeMe and the nonprofit Center for Information and Study on Clinical Research Participation (CISCRP) announce a new partnership with global healthcare leader Sanofi (NYSE: SNY) to raise awareness about the benefits of participating in clinical trials. The partnership will focus on: spotlighting “Medical Heroes” (those who “give the gift of their… Continue reading PatientsLikeMe and CISCRP Team Up with Sanofi to Spotlight Medical Heros and Clinical Trial Participation
Category: Patient Experiences
May 12th, International Awareness Day for Chronic Immunological & Neurological Diseases
Did you know that May 12th was chosen for International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) because it’s also Florence Nightingale’s birthday? She was a statistician, social reformer and is credited as the founder of modern nursing. It’s also believed that she suffered from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). That’s just one… Continue reading May 12th, International Awareness Day for Chronic Immunological & Neurological Diseases
“Band together for lupus awareness”
Lupus awareness has been observed since 1977. It was originally just one week in September. It’s since moved to October and now finally to May. And while the month may have changed, the message has always been the same; “raises awareness, secure funds and support those who are suffering” from this chronic inflammatory disorder. … Continue reading “Band together for lupus awareness”
“Faces of HD.” Raising awareness for Huntington’s disease
May is Huntington’s Disease (HD) Awareness Month and the Huntington’s Disease Society of America (HDSA) is helping spread the word. For each day of the month, the HDSA is sharing the real-world experience of someone affected by this neurodegenerative disease: patients, caregivers, social workers, doctors and public servants. You can see the latest every day… Continue reading “Faces of HD.” Raising awareness for Huntington’s disease
TEDMED 2013: Creating and experiencing wow!
One word comes to mind when describing my recent experience at TEDMED 2013 – WOW! Held annually at the Kennedy Center in Washington D.C., TEDMED is a conference unlike any other. For 3 ½ days you are immersed in the ideas and creativity of people from around the world who bring diverse perspectives to some… Continue reading TEDMED 2013: Creating and experiencing wow!
“I choose hope.” Interview with Multiple Sclerosis Blogger Tricia
In our “Spotlighted Blogger” series, we’re talking with people who are sharing their personal health experiences to help raise awareness of disease and change healthcare for good. For our latest interview, we’re talking with Tricia who’s writing about her journey with multiple sclerosis (MS) on her blog Love My MS Life. Some of you may… Continue reading “I choose hope.” Interview with Multiple Sclerosis Blogger Tricia
The ‘something’ that helps you forget
If you’re living with a life changing condition, it’s sometimes hard to take your mind off it. We become consumed by medications, side effects, symptoms and everyday living. But every once in a while, we find something that can take our minds somewhere else. And for a time, no matter how brief, all those worries… Continue reading The ‘something’ that helps you forget
Keith & Sarah’s personal journey with rare lung disease. Part I, “Fine”
As part of our “Spotlighted Blogger” series, we’re talking with people who are sharing their personal health experiences to help raise awareness of disease and change healthcare for good. For our latest interview, we’re talking with Sarah and Keith. Sarah started writing about her fiancé Keith’s journey with a rare lung disease back in July… Continue reading Keith & Sarah’s personal journey with rare lung disease. Part I, “Fine”
Irritable Bowel Syndrome Awareness Month
Did you know that between 9%-23% of people around the world suffer from irritable bowel syndrome (IBS)? However, many remain undiagnosed and just aren’t aware “that their symptoms indicate a medically recognized disorder.”[1] April is IBS Awareness Month and the International Foundation for Functional Gastrointestinal Disorders (IFFGD) is working to get information out to the… Continue reading Irritable Bowel Syndrome Awareness Month
Young professionals, students and patients gather to collaborate at 5th Parkinson’s Disease Summer School
The Parkinson’s Disease Summer School was founded in 2008 by Paul de Roos of the European Medical Students’ Association and Krzysztof Nesterowicz of the European Pharmacy Students’ Association. This year, the school is leaving its European roots and relocating to Montreal, Canada. Thirty participants from around the world will work in small teams to develop… Continue reading Young professionals, students and patients gather to collaborate at 5th Parkinson’s Disease Summer School