Over the last few months, Keith and Sarah have been sharing their journey with us. In this final interview of our three-part series, they talk about how he got on a transplant list and their “phones at the dinner table” policy. If you missed our first two interviews with Keith and Sarah, you can find… Continue reading Keith & Sarah’s personal journey with rare lung disease. Part III, “Bonus round”
Category: Patient Experiences
Partnering with patients: An interview with Michael Evers and Ken Getz
PatientsLikeMe and the nonprofit Center for Information and Study on Clinical Research Participation (CISCRP) recently announced a new partnership with the global healthcare leader Sanofi (NYSE: SNY) to raise awareness about the benefits of participating in clinical trials. Michael Evers, Executive Vice President of Marketing and Patient Advocacy at PatientsLikeMe, and Ken Getz, Founder and… Continue reading Partnering with patients: An interview with Michael Evers and Ken Getz
Living with diabetes: An interview with Dr. Richard A. Jackson
For many, living with diabetes can be an overwhelming experience that comes with serious health concerns including heart attack, stroke, kidney complications and eye problems. However, Dr. Richard Jackson thinks there is another reason diabetes patients may feel overwhelmed… the medical establishment. “A typical diabetes education program series might tell you 150 things, but that… Continue reading Living with diabetes: An interview with Dr. Richard A. Jackson
PatientsLikeMe and inVentiv Health Partner to Accelerate Clinical Trial Research
First Agreement Between the Online Patient Network and Global Clinical Research Organization Promises to Help Speed Recruitment for Drug Development BURLINGTON, MASS. June 17, 2013 — inVentiv Health, offering best-in-class clinical, commercial and consulting services, today announced a partnership with the innovative online patient network PatientsLikeMe to bring more people more quickly into medical research… Continue reading PatientsLikeMe and inVentiv Health Partner to Accelerate Clinical Trial Research
Out of the office: PatientsLikeMe at the Walk to Cure psoriasis in New York City
Last month, some of our PatientsLikeMe team members journeyed from Boston to New York City for the National Psoriasis Foundation’s Walk to Cure event. Hundreds of people turned out to walk on a very crisp, but sunny day. Jim Murray is on the PatientsLikeMe marketing team and shared his experience with everyone at the office… Continue reading Out of the office: PatientsLikeMe at the Walk to Cure psoriasis in New York City
PatientsLikeMe Names Marcia Nizzari Vice President of Engineering
CAMBRIDGE, Mass.— June 6, 2013—PatientsLikeMe has named Marcia Nizzari Vice President of Engineering. In this role, Marcia creates the blueprint for future platform developments and oversees all engineering projects. A member of the management team, Marcia reports to Chief Operating Officer Sebastiaan Foppema. “Marcia has joined the team at a time when we’re evolving our… Continue reading PatientsLikeMe Names Marcia Nizzari Vice President of Engineering
“Take the step.” Raising awareness for post traumatic stress disorder
June is Post Traumatic Stress Disorder (PTSD) Awareness Month and the US Department of Veterans Affairs is helping to raise awareness of the condition. About 60% of men and 50% of women will go through at least one traumatic event in their life, and 5.2 million adults will experience PTSD during any given year.[1] Here… Continue reading “Take the step.” Raising awareness for post traumatic stress disorder
PatientsLikeMe Names Martin Coulter as CEO
CAMBRIDGE, Mass.— May 30, 2013—PatientsLikeMe has appointed Martin Coulter to the position of Chief Executive Officer, the company’s first CEO since its founding in 2004. Responding to its growing patient community, revenue and customer base, PatientsLikeMe has hired Martin to bring a strategic and operational focus to the company as its business and products expand… Continue reading PatientsLikeMe Names Martin Coulter as CEO
“Shine a spotlight” and raise awareness for Cystic Fibrosis
May is Cystic Fibrosis (CF) Awareness Month and the Cystic Fibrosis Foundation (CFF) is working to “shine a spotlight on what CF is and the progress being made toward a cure.” The CFF has a terrific awareness page where you can find info on ways to get involved, like: Walk in Great Strides, “Take Action”… Continue reading “Shine a spotlight” and raise awareness for Cystic Fibrosis
PatientsLikeMe RFP for PCORI Funding
Last month, the Patient Centered Outcomes Research Institute (PCORI) released a funding announcement entitled, “The National Patient-Centered Clinical Research Network: Patient-Powered Research Networks (PPRNs)—Phase One.” Through this solicitation, PCORI seeks to establish a set of Patient-Powered Research Networks (PPRNs) that complement PCORI efforts to establish a national infrastructure of Clinical Data Research Networks through a… Continue reading PatientsLikeMe RFP for PCORI Funding