Many of you are helping to raise awareness about your conditions. You’re not only encouraging support and donations, you’re spreading knowledge and eliminating stigmas. We want to help support your disease awareness efforts too, with PatientsLikeMeInMotionTM. Over the years, we’ve sponsored hundreds of fundraising teams through our PatientsLikeMeInMotion program. Let us sponsor your team next… Continue reading With you every step of the way- PatientsLikeMeInMotion
Category: Patient Experiences
Raising Awareness for Parkinson’s Disease
Did you know that four to six million people have Parkinson’s disease (PD) worldwide? And that 50,000-60,000 new cases of PD are diagnosed each year in the US?[1] April is Parkinson’s Awareness Month and there are more ways than ever for you to “Join the Fight” against this neurodegenerative brain disorder. The Parkinson’s Disease Foundation… Continue reading Raising Awareness for Parkinson’s Disease
Finding Peace, Confidence and Lifelong Friends: An Interview with Psoriasis Patient Erica
Of all the psoriasis patients we’ve interviewed, Erica was hit by this highly stigmatized autoimmune condition the earliest – she developed visible symptoms at the tender age of 9. Now 21, she shares her decade-plus journey from being the girl that people avoided in school to an increasingly confident young woman who has finally started… Continue reading Finding Peace, Confidence and Lifelong Friends: An Interview with Psoriasis Patient Erica
Can Social Media Strengthen Science?
And more specifically, can it be used to collect patient data, raise investment funds, make scientific data more accurate and even allow regular people to access the world of venture capital? This was the provocative question posed to a five-person discussion panel at the 2012 Partnering for Cures conference last fall that included several thought… Continue reading Can Social Media Strengthen Science?
New on the PatientsLikeMe Team: Sally Okun, VP of Advocacy, Policy and Patient Safety
This week, PatientsLikeMe announced two new appointments to the team: Kim Goodwin and Sally Okun RN. Here Sally, who was promoted to Vice President of Advocacy, Policy and Patient Safety, explains how she’ll continue to make sure the patient voice is heard, collected and disseminated to affect better treatment, services and care. Look for more… Continue reading New on the PatientsLikeMe Team: Sally Okun, VP of Advocacy, Policy and Patient Safety
New To the PatientsLikeMe Team: Kim Goodwin, UX Expert
This week PatientsLikeMe announced two new appointments to the team: Kim Goodwin and Sally Okun. Here Kim, one of the world’s leading user experience (UX) experts, shares her thoughts about why she’s joined the company, and what she hopes to accomplish on the website for members. You’ll hear from Sally too, later this week. What… Continue reading New To the PatientsLikeMe Team: Kim Goodwin, UX Expert
PatientsLikeMe Names Kim Goodwin and Sally Okun to New Web and Patient Advocacy Positions
CAMBRIDGE, Mass.— March 19, 2013—PatientsLikeMe appoints Kim Goodwin and Sally Okun RN to two newly-created positions that will keep patient needs upfront as the company continues to enhance its website and drive industry and government to make more patient-centric decisions. Kim Goodwin has been named Vice President (VP) of User Experience (UX) and Sally Okun has… Continue reading PatientsLikeMe Names Kim Goodwin and Sally Okun to New Web and Patient Advocacy Positions
Attending Partnering with Patients…as a Patient
Last Friday we heard from PatientsLikeMe Head of Community Liz Morgan about her experiences at the Institute of Medicine’s Partnering with Patients workshop. Today we hear from multiple sclerosis (MS) patient Laura Phillips, a PatientsLikeMe member who spoke at the event. As a speaker at the workshop, Sally Okun, PatientsLikeMe’s Health Data Integrity & Patient Safety Director,… Continue reading Attending Partnering with Patients…as a Patient
PatientsLikeMe Unveils New Tool to Match Patients with Clinical Trials Worldwide
Launch at European NHS Healthcare Innovation Expo Comes as PatientsLikeMe Chairman Calls for Revolution in Disease Measurement CAMBRIDGE, Mass. — Mar 13, 2013 — The U.S.-based patient network and real-time research platform PatientsLikeMe unveils its global clinical trials tool today at Europe’s Healthcare Innovation Expo 2013, hosted by the National Health Service (NHS). The free tool, unveiled today by… Continue reading PatientsLikeMe Unveils New Tool to Match Patients with Clinical Trials Worldwide
Creating a Revolution at the Nuffield Trust Health Policy Summit 2013
Last week, health leaders from around the world gathered in the UK for the Nuffield Trust Health Policy Summit 2013, a two-day event focused on evidenced-based research and innovative solutions to the challenges facing the National Health Service (NHS). One of the invited speakers was PatientsLikeMe Co-Founder and Chairman Jamie Heywood, who discussed the drug… Continue reading Creating a Revolution at the Nuffield Trust Health Policy Summit 2013