Prostate cancer affects 1 in 6 men in the US and is the second leading cause of cancer-related deaths among men. As a result, it affects not just the men battling the disease but also their families, friends and communities. That’s why the White House has declared September to be National Prostate Cancer Awareness Month.… Continue reading Know Your Score for Prostate Cancer Awareness Month
Category: Patient Experiences
Scenes from the PatientsLikeMe Company Picnic
Every summer, PatientsLikeMe pulls out the Nerf guns and throws a company picnic for our employees and their families. This year, the fun took place at Boston’s Museum of Science so that we could enjoy both the museum’s exhibits as well as its prime location on the Charles River. With the Boston skyline twinkling over… Continue reading Scenes from the PatientsLikeMe Company Picnic
The Joy of Being Helpful
Many patients with life-changing conditions report feelings of grief and guilt about no longer being able to do many of the things they did in the past. As a recent discussion in our forum revealed, however, patients are finding ways to reset their perspective and boost their self-esteem by focusing on what they are still… Continue reading The Joy of Being Helpful
$70,000 at Stake in the “Reporting Safety Events Challenge”
How serious is the U.S. Department of Health and Human Services’ Office of the National Coordinator for Health Information Technology (ONC) about increasing patient safety? So serious that they are running a contest challenging the best and brightest developers to create a platform that makes it easier to report a patient safety event electronically. The… Continue reading $70,000 at Stake in the “Reporting Safety Events Challenge”
Redesigning Healthcare: Guest Post by Kirt Hine
Today’s guest post is written by Kirt Hine, who was a research intern at PatientsLikeMe in June and July. On his last day, Kirt gave a presentation to the entire company about his experience at the 2012 Healthcare Experience Design Conference, held in Boston last March. It made such an impression that we asked him… Continue reading Redesigning Healthcare: Guest Post by Kirt Hine
PatientsLikeMe and Merck Establish Health Information Collaboration Focused on Psoriasis
Patient-Based Research Aims to Produce New Insights Into Most Common Autoimmune Disease in U.S. CAMBRIDGE, Mass. — Aug 13, 2012 — PatientsLikeMe announces it has entered into a collaboration with Merck, known as MSD outside the United States and Canada, to evaluate the impact of psoriasis on patients and to inform a novel approach to improving outcomes. “A… Continue reading PatientsLikeMe and Merck Establish Health Information Collaboration Focused on Psoriasis
Know Thyself. Quantify Thyself.
Are you someone who likes to track things about yourself? For example, do you keep an exercise log of how many reps you did – or a food journal that details what (and how much) you consumed? Do you monitor your health and disease progression at PatientsLikeMe? If so, you might not know it, but… Continue reading Know Thyself. Quantify Thyself.
What Part of MS Are You Most Afraid of?
Can facing your fears help you come to terms with them? That’s the idea behind a recent discussion in our multiple sclerosis (MS) forum, in which one member asked, “What part of MS are you most afraid of?” The answers poured in from dozens of MS members who found it cathartic to reveal their true… Continue reading What Part of MS Are You Most Afraid of?
Patients as Partners in Personalized Medicine
“It’s only when you really get into the experience of being a patient with a life-changing illness, where you’re dealing with the uncertainty and the process, that you start to learn things. You start to learn that the experience you’re going through – the pain you’re suffering, or maybe a side effect or something that… Continue reading Patients as Partners in Personalized Medicine
A Day in the Life of PatientsLikeMe Community Manager Jeanette DeVita
What’s it like to work at PatientsLikeMe? We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features employees from different departments. So far, we’ve interviewed User Experience Engineer Cris Necochea, Research Assistant Shivani Bhargava, Office Manager Alison Dutton, Research Scientist Timothy Vaughan, Biz Dev’er Arianne Graham and Product… Continue reading A Day in the Life of PatientsLikeMe Community Manager Jeanette DeVita