Here are some of the media items that grabbed our attention recently. What Air Traffic Can Teach Us About Kidney Transplants Air traffic rules balance fairness and efficiency. Can organ waitlists do the same? Open Access Is Not for Scientists. It’s for Patients. A guest blog post by our R&D Director, Paul Wicks, for the… Continue reading What We’re Reading at PatientsLikeMe
Category: Patient Experiences
PatientsLikeMe Adds Three New Executives to Its Leadership Team
New Appointments Cap Active Year, Solidify Team for Strategic Growth CAMBRIDGE, Mass. — Jun 27, 2012 — PatientsLikeMe, the leading health data-sharing website, announces the appointment of three new executives to its leadership team. The company, which recently expanded its website to invite patients with any disease, makes this move to focus on expanding the collection and use… Continue reading PatientsLikeMe Adds Three New Executives to Its Leadership Team
Take an HIV Test. Take Control.
“CDC estimates that 55 percent of adults – and 28 percent of adults with a risk factor for HIV – have not been tested. Too many people living with HIV are being tested and diagnosed too late to take advantage of effective HIV treatment and prevention options.” – Dr. Kevin A. Fenton, Director, CDC’s National… Continue reading Take an HIV Test. Take Control.
Quote of the Day: Jamie Heywood
“People often think of PatientsLikeMe as a social network, and I think what they miss is the fundamental part of our invention. What we’re really building is the first medical record designed to answer questions directly for patients. Not to do billing, not to do some other component of the healthcare system. To actually answer questions for patients. Paul Wicks,… Continue reading Quote of the Day: Jamie Heywood
A Peek at the June Newsletter for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our June edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to… Continue reading A Peek at the June Newsletter for Members
A Day in the Life of PatientsLikeMe Product Manager Maureen Oakes
What’s it like to work at PatientsLikeMe? We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features employees from different departments. So far, we’ve interviewed User Experience Engineer Cris Necochea, Research Assistant Shivani Bhargava, Office Manager Alison Dutton, Research Scientist Timothy Vaughan and Biz Dev’er Arianne Graham. Today… Continue reading A Day in the Life of PatientsLikeMe Product Manager Maureen Oakes
Today’s Photo: Raising Epilepsy Awareness on the National Mall
Summer is here, and that means there are disease-related walk/run events happening all around the country! For inspiration, please meet epilepsy patient Monica (second from right), who led a PatientsLikeMeInMotion-sponsored team at the National Walk for Epilepsy in Washington, DC. Held on March 31, 2012, the two-mile walk occurred between Madison and Jefferson Drives on… Continue reading Today’s Photo: Raising Epilepsy Awareness on the National Mall
Surviving Multiple Sclerosis (MS)
It’s Men’s Health Week, and we’re featuring the perspectives of – you guessed it – men. Following tiredoftired’s guest post about depression on Monday, we are pleased to present this poignant essay by longtime PatientsLikeMe member and mentor Rick N, who has lived with multiple sclerosis (MS) for 23 years. I am a 58-year-old man… Continue reading Surviving Multiple Sclerosis (MS)
Mike Wallace, Depression and Me
In honor of Men’s Health Week, we are pleased to present a guest post by PatientsLikeMe member tiredoftired, a young man who has been living with major depressive disorder since 2007. Don’t miss this moving essay about how Mike Wallace’s passing earlier this year impacted and inspired him. As I was driving to therapy on… Continue reading Mike Wallace, Depression and Me
Why Should I Participate in a Clinical Trial?
“Before me, there were hundreds and thousands of other people with Parkinson’s who participated in clinical trials that gave me the ability to have the medications that I take today. If people today do not participate in clinical trials, there will be no cure. There will be no new medications.” – Parkinson’s patient Jean Last… Continue reading Why Should I Participate in a Clinical Trial?