Today, October 29th, is World Psoriasis Day, sponsored by the International Federation of Psoriasis Associations. Here in the US, the National Psoriasis Foundation has created a special website – WorldofPsoriasis.com – for the occasion that illustrates the global nature of this chronic autoimmune disease, which affects 125 million people worldwide or nearly three percent of… Continue reading Putting Psoriasis on the Map for World Psoriasis Day
Category: Patient Experiences
Spotlighted Author: Parkinson’s Humorist Bev Ribaudo on Dispensing Laughter
PatientsLikeMe member Bev Ribaudo (“YumaBev”) was diagnosed with Parkinson’s disease (PD) at age 47, but it hasn’t dampened her flair for comedy. “Humor comes naturally to me, and a little disease like Parkinson’s can’t take it away,” she says. In fact, her condition has given her a new purpose: entertaining other “Parkies” with her deep… Continue reading Spotlighted Author: Parkinson’s Humorist Bev Ribaudo on Dispensing Laughter
Rediscovering Life’s Simple Pleasures: An Interview with a Heart Patient
Last week, we recognized World Heart Day on the blog and discussed why there is an urgent need for awareness about heart disease and stroke, the world’s number one killer. We also talked about how heart disease can be an abstract concept until you are exposed to someone’s personal story. That’s why we are pleased… Continue reading Rediscovering Life’s Simple Pleasures: An Interview with a Heart Patient
Recognizing the Rare Disease Community’s Champions of Hope
Did you know that 1 in 10 people worldwide have rare and genetic conditions? PatientsLikeMe was a proud sponsor of the 1st Annual Tribute to Champions of Hope, organized by our partner the Global Genes / RARE Project. Held on September 27th in Newport Beach, CA, the gala recognized outstanding individuals who are working to affect… Continue reading Recognizing the Rare Disease Community’s Champions of Hope
Creating Your “A Team” for Health
Today’s guest post is written by PatientsLikeMe Vice President for Advocacy, Policy and Patient Safety Sally Okun, RN, MMHS. Getting health care can often feel like you’re trying to put together a difficult jigsaw puzzle, only to find that some of the pieces are missing. Even under the best circumstances, navigating the health care system is… Continue reading Creating Your “A Team” for Health
World Heart Day: Taking Prevention to Heart
Did your heart beat a little faster this weekend? This past Saturday was World Heart Day, sponsored by the World Heart Federation. Founded in 2000, this global event was created to educate the public about heart disease and stroke, the world’s leading cause of death, claiming 17.3 million lives each year. What’s a major concern… Continue reading World Heart Day: Taking Prevention to Heart
Today’s Photo: 2012 Ride for Dads in Minnesota
Earlier this month, we shared a video interview with PatientsLikeMe member Wayne Sticha, who founded the Ride for Dads in 2010 to raise awareness of prostate cancer. Since September is National Prostate Cancer Awareness Month, we wanted to close out the month by sharing one of Wayne’s photos from 2012 Ride for Dads, which involved… Continue reading Today’s Photo: 2012 Ride for Dads in Minnesota
PatientsLikeMe at Medicine 2.0
With more than 500 attendees from 36 countries, the 5th Annual Medicine 2.0 World Congress took place September 15-16th at Harvard Medical School here in Boston. Among these attendees were several PatientsLikeMe leaders, including keynote speaker Jamie Heywood and conference presenters Sally Okun and Paul Wicks. In an unusual twist, all three PatientsLikeMe speakers got… Continue reading PatientsLikeMe at Medicine 2.0
What We’ve Uncovered About Psoriasis in the Summertime
Want to connect with and learn from psoriasis patients like you? Join PatientsLikeMe Now! (It’s free) Are people with psoriasis more likely to cover up with pants and long sleeves in warm weather? Or are they okay with “showing some skin” in shorts and tank tops? This is just one of the things we set… Continue reading What We’ve Uncovered About Psoriasis in the Summertime
A Day in the Life of PatientsLikeMe Quality Assurance Engineer Brian Boyle
What’s it like to work at PatientsLikeMe? We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features employees from different departments. So far, we’ve interviewed User Experience Engineer Cris Necochea, Research Assistant Shivani Bhargava, Office Manager Alison Dutton, Research Scientist Timothy Vaughan, Biz Dev’er Arianne Graham, Product Manager Maureen Oakes and… Continue reading A Day in the Life of PatientsLikeMe Quality Assurance Engineer Brian Boyle